What about Me?

Posted by kartwk @kartwk, Oct 3, 2025

I am so tired, tired of dealing with all the groaning, moaning all day, every day even through meals which is making me not want to prepare meals or eat with H.
I understand he is scared as he has some understanding of what is happening to him mentally, but geez, it is not my fault. He gets mean and yells at me, publicly, like I am a child!

Friends are kind, but as others have said, we - him - are just not fun any more. I know some are afraid this will eventually happen to them. People we really don't know have tried to take advantage of him.
Heck, his middle daughter tried to get him to change his will to her favor when he was in the hospital last year. This daughter he really hasn't seen in almost a year, no birthday card or Father's Day card to him.

I understand the Calvery is not coming, but darn, it sure is difficult as more and more things go on. I am feeling very lonely.

Keeping up the house is difficult. We are just $300 a month from being eligible for various assistant programs.

The above-mentioned daughter has now started lying about me to her sister and brother. I have always had a good relationship with his eldest daughter since her and her father reconciled (over her changing religion before I met her, which no one in the family understood). The last few times I have talked to her she has been frigid at best. Seems the middle daughter is putting things out there that I am stealing their inheritance among other things.
This just floors me. I have had enough and don't need this with his family on top of everything going on with him daily. The door is starting to look pretty good right now and I can guarantee you that none of his adult children will help him out. None of them has done anything for us in the, oh, last 31 years, whether we needed help or not. His son has hit us up for $$ over the years, and the middle daughter's sons always have their hands out.

The truth be told, when I married their father some 31 years ago, he had a decent job but really had nothing. I had a house that was over 50% paid for, a paid off car, furniture. At that time he had just finished paying child support for his youngest son, who came to live with him after the child support stopped.

These people are starting to scare me. Right now I know what his will says, but I am afraid that if he gets enough pressure, he will cave to them.

This is part of me dealing with being his caretaker. It scares the begesus out of me. I did talk to a lawyer but I can only do things with items that are mine. It is not like we have a lot, just the house, the 8 yr. old car, and my furniture with a few pieces added.

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Profile picture for kartwk @kartwk

@celia16

Celia16 - Do they just keep repeating it the same way, or the same thing, different versions?

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@kartwk Either way is way too much !

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Profile picture for celia16 @celia16

@kartwk, both ways. My cousin would get anxious when at the doctor or ER. She would tell me, I love you sooo much. She’d say it about every few minutes for hours. I acted as if every time was the first she had said it. My dad did something similar. He’d call me into the living room where he had his recliner and tv to tell me, call the barber shop in the morning. I need a haircut. He would repeat it dozens of times all day.

Then there were stories of things that never happened. They might tell various versions, with some having slight truth. With my dad, he had delusions people were stealing his things. He’d complain about it dozens of times over and over during the day. Each time, he thought it was the first time he had mentioned it.

Other times, my dad could tell a story of something that happened many years ago with amazing accuracy. Even knew his PIN codes and ss# until near the end. The mental capacity was very varied. Eventually, the body became immobilized by the dementia.

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@celia16

You hit it on the head about him being lucid. That is also concerning because you don't know what you are going to get when you talk to him.
Sadly, I find myself not talking to him as much as I use to or just ignoring his responses when they don't make sense. I feel I shouldn't do that because maybe, I am just missing something I shouldn't be missing.

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Well, another Doc. apt. for him and still nothing even though I let the Doc know in advance H is having problems. When we are there H can hold an intelligent conversation but always looks to me when he isn't catching on.

Doc gave him a few words to remember and told him he would ask him what they were at the end of visit. H. got them right and that was that.

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Profile picture for kartwk @kartwk

Well, another Doc. apt. for him and still nothing even though I let the Doc know in advance H is having problems. When we are there H can hold an intelligent conversation but always looks to me when he isn't catching on.

Doc gave him a few words to remember and told him he would ask him what they were at the end of visit. H. got them right and that was that.

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@kartwk, that’s just a part of the Mini Mental Evaluation. Do you think that doctor is familiar with doing the exams and diagnosing dementia? Also, there are some conditions in which short term memory loss is not a symptom in the early stages, such as with Frontal lobe. In that, memory loss comes later.
https://www.mayoclinic.org/diseases-conditions/frontotemporal-dementia/symptoms-causes/syc-20354737

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You have seen me talk about H's daughter who lives 5 miles away. The one that tried to get him to change his will.
Well, in this time of heavy -12+" and subzero temps when there are warnings about the snow, etc. and even to check on elderly folk etc., H has yet to hear from her.
He keeps hoping, but she never calls or even e-mails. There is nothing in it financially for her so she won't bother. It is sad because he just keeps hoping.

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Profile picture for kartwk @kartwk

You have seen me talk about H's daughter who lives 5 miles away. The one that tried to get him to change his will.
Well, in this time of heavy -12+" and subzero temps when there are warnings about the snow, etc. and even to check on elderly folk etc., H has yet to hear from her.
He keeps hoping, but she never calls or even e-mails. There is nothing in it financially for her so she won't bother. It is sad because he just keeps hoping.

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@kartwk

We brought our 2 stage snowblower down from WI and the neighbors love it. The deal is that they can use it BUT they have to do our driveway, walks, etc. FIRST.
In this single digit cold and massive snowstorm we had over 12" and it works out great. Oh, they have to gas it up too. The driveways are long around here.

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Profile picture for celia16 @celia16

@kartwk, that’s just a part of the Mini Mental Evaluation. Do you think that doctor is familiar with doing the exams and diagnosing dementia? Also, there are some conditions in which short term memory loss is not a symptom in the early stages, such as with Frontal lobe. In that, memory loss comes later.
https://www.mayoclinic.org/diseases-conditions/frontotemporal-dementia/symptoms-causes/syc-20354737

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@celia16
That was very, very informative. Thank you!

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Profile picture for kartwk @kartwk

He did it again today. He was watching a series about America's move westward and was telling me that AFTER the Civil War, north of the Ohio River was all Indian territory! I questioned that was he sure it was after the Civil War and he insisted that the show had a map showing that. This confused me.
I finally figured out that he meant Revolutionary War but when I said that he insisted it was the Civil War. I let it go.

What I am seeing is that he may get the basics of something but can't get things, like the pertinent parts straight. This for example or telling me that Putin was upset with Russia when he really meant to say Trump was upset with Putin.

Can anyone give me more insight on this? He has been having problems but this is really a whole new ball game.

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@kartwk It will be easier on you if you can resist correcting .

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Agree, but there are times I just don't know WHAT he is talking about or referring to.

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Profile picture for kartwk @kartwk

@deniae
I can understand how you feel. I haven't reached that point but what I deal with really gets to me. Especially the CONSTANT moaning and groaning, honking and trying to get up nonexistent phlegm - ALL DAY, EVERY DAY on top of his mental deterioration.
I know I shouldn't let his adult children get to me, but when they are lining up to go for anything he has his name on after he passes (AND he is a long way from that right now), well that is one more thing that adds to my state now.

Like you say, every one tells you to get help. But getting help is difficult and expensive. H also makes it difficult.

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@kartwk I think your main concern right now should be to make sure your will/trust hopefully you have one is sealed in concrete. My husband has three children we haven’t seen in 45 years but I made sure they were listed to receive nothing on our trust. I hope you did the same? There is no way any of his children could contest this.

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