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Lichen sclerosis diagnosis correct?
Hi, new to the site. I have had vaginal/perianal burning for 6 months.
Culture all negative. Burning comes and go. Redness only. No itching at all. Biopsy finally done showed only “mild” sclerosis.
Told to start on Clobetasol. It’s been a week. It’s making my burning worse. Before the drug the burning was at a 3, now it’s at an 8. To a point I need to wash it off after 30 minutes.
I have no other skin changes. No white patches at all. You would think there would be some other skin changes after 6 months. No itching what so ever.
Does anyone have similar experience? How common is sclerosis without white patches or itching? Is the ointment making me worse?
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I am unable to taper down also. Last May I started using Clobetesol twice a day for a month then once a day for one month, then every other day for a month. When I saw the Dr. he wanted me to go to 2-3 times a week which is nearly every other day. I was having trouble on the days I do not use Clobetasol so I decided to try the coconut oil ointment. It is so soothing I can skip a day, otherwise it was hard to skip even one day. I have been using it every other day for nine months. I see my dermatologist in Feb. and will see what she says. It is very hard to control.
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3 Reactions@queenie2030
I have been diagnosed with LS by my dermatologist. Put on clobetasol which calmed down the itchiness & inflammation. I have a sore or blister that hasn’t calmed down. Will the clobetasol help this? If so how long will it take? Any suggestions?
@annieparker51
Hi lichen sclerosis sufferers. Thanks for all the valuable info. I haven't tried ozonated coconut oil, but I am a Emu Oil users. I find works well. I use it when I'm not in a flareup and in between the usage of Clobetasol when I'm in a flareup.
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1 ReactionHas anyone tried using lidocaine to help with LS sores?
That seems to help a little.
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2 Reactions@andwho I don’t know if it will heal bumps or blisters. I have bumps that have not healed after 7 months on clobetasol. It does keep the burning and itching under control.
@queenie2030
Yes the clobetasol definitely helped the itchiness & inflammation but not the sore or blister (whatever you want to call it) it burns when urinating. What do you use on your bumps or blisters? Any suggestions?
I use my bidet to keep the skin clean and apply Pur ozone infused coconut oil ointment on the days I don’t use clobetasol. Best wishes.
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2 Reactions@queenie2030
I am going to get coconut oil lotion ASAP. I appreciate the suggestion. Does anyone have a reaction to decaf coffee. I am not a water drinker ,but drink weak decaf . Any comment?
@lwkansas I don’t but decafe makes my husbands stomach hurt.