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Lichen sclerosis diagnosis correct?

Posted by moontree @moontree, Apr 7 8:15am

Hi, new to the site. I have had vaginal/perianal burning for 6 months.
Culture all negative. Burning comes and go. Redness only. No itching at all. Biopsy finally done showed only “mild” sclerosis.
Told to start on Clobetasol. It’s been a week. It’s making my burning worse. Before the drug the burning was at a 3, now it’s at an 8. To a point I need to wash it off after 30 minutes.
I have no other skin changes. No white patches at all. You would think there would be some other skin changes after 6 months. No itching what so ever.
Does anyone have similar experience? How common is sclerosis without white patches or itching? Is the ointment making me worse?

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echapman | @echapman | 21 hours ago
In reply to @annieparker51 "When I have an uncomfortable flare up I get a urine culture for a UTI as..." + (show)
Profile picture for annieparker51 @annieparker51

When I have an uncomfortable flare up I get a urine culture for a UTI as the symptoms are similar. But, most times there is no infection. I do use a topical corticosteroid cream. I’m a 72 year old woman. I had ovarian cancer in my 30’s so I know my condition is caused by lack of hormones.
I’d like to hear from others about their experiences with lichen sclerosis.

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I use Lisepten and nothing else. My symptoms are zero most every day. It's been my go to for many years. Be positive and know you aren't alone.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | 5 hours ago
In reply to @annieparker51 "When I have an uncomfortable flare up I get a urine culture for a UTI as..." + (show)
Profile picture for annieparker51 @annieparker51

When I have an uncomfortable flare up I get a urine culture for a UTI as the symptoms are similar. But, most times there is no infection. I do use a topical corticosteroid cream. I’m a 72 year old woman. I had ovarian cancer in my 30’s so I know my condition is caused by lack of hormones.
I’d like to hear from others about their experiences with lichen sclerosis.

Jump to this post

Hello @annieparker51,

I combined your discussion on lichen sclerosis with an existing discussion on the same topic titled:

"Lichen sclerosis diagnosis correct?"
- https://connect.mayoclinic.org/discussion/lichen-sclerosis-diagnosis-correct/

Here you can meet @moontree, @sandy07 and @diwhitham2347 who discussed symptoms similar to yours.

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