Reclast Infusions: Side-effects & Recovery time

All I can say is never again for Reclast! After 2 years, still struggling with shortness of breath, leg weakness and several other issues. Endo dismissed my complaint as Reclast couldn't have been the problem.

@takady Totally agree with you about Reclast. Never again!!!! Reclast is the DEVIL!!!

@takady I would seek out a pharmacist to consult with as they are more in tune with medication and side effects then any doctor. Remember, the doctors only study and learn about the treatment, not potential side effects. All’s I know is that I was feeling fine, just getting ready to retire, have infusion and the next day on it has been constant pain from one degree to another. Shoulders and left foot are the worse. There are also times that the burning sensation in and around bladder area is really bad. Not sure if that is from the Reclast or this Urolift that was implanted and most of it removed due to the constant burning. No one ever said that it could cause burning. In the future, any future treatments will require time, time for me to research and if I see any negative side effects, no way! We are all here for just a short while and I’m not going to stay here in constant pain from others hands!

Reclast last week. Never again. Horrible reaction like all those above. My hands have osteoarthritis and I am having so much pain in them now. I pray they will return to their prior condition. I’ve never had this much pain. I plan on taking calcium and vit.D daily. That’s it. No more.

@dannyandebbie I'm totally in agreement with you. I firmly believe my last DEXA scan was erroneous to begin with, but even if it weren't my bone loss is not in the least severe and I have way too many other problems with my joints and spine to have any more aches and pains than I already have. With any of the treatments out there right now, I might as well reserve a bed in the local nursing home if I had to take any of them. Not for me. I prefer to exercise, eat as right as possible, and be very careful not to fall than to only be able to ache 24/7 and sit or lay down all the time. You would think our drug makers could make something that didn't have worse adverse affects than what they are intended to help/cure. Guess all that money we throw at them ain't going to research and development, probably in the CEO's pocket!

I prepared for my first reclast infusion just as directed by amping up my water intake all weekend. Infusion was midway Monday and I had no symptoms leaving the hospital and thinking maybe I will be one of the lucky ones. Didn’t sleep well, body aches and headache started Tuesday morning with extreme tiredness and drowsiness. By noon my chills so bad my teeth chatter and my electric blanket on high was not enough to warm me up. My husband checking my temp stayed at 102 all afternoon. He diligently attended me with cool damp cloths for my forehead and back of my neck. And he kept up with my Tylenol intake precisely on time so I’d have in my system and lots and lots of water. I was nauseous and had stabbing pains that would make me call out Ouch! I was just so miserable! Today is Wednesday and had a up and down toss and turn night trying to find a comfortable position. My splitting headache continues with almost crippling joint pains even my skin is sore . My face feels like it’s blistered from the sun. I’m rethinking the infusion next year.

@crown7930 Wednesday day 3 one of my eye really getting red and eyelid puffy no pain tho. Eye problem in take home drug side effects listed as rare and a medical emergency. Texted my orthopedic office to inform them of my symptoms also i want these side effects im experiencing in my chart if I change my mind to get the 2nd infusion next year. Nurse called late afternoon totally cut me off about flu symptoms and fever and said go to ER now about eye. I tried explaining not severe just unusual and I don’t want it to get worse and be a med crisis. As awful I felt sitting in pjs going to ER would be a nightmare so I called my eye doctor got appmt next day. Eye was some worse Thurs day 4. Good eye report just inflammation from Reclast that caused fever. Diagnosed OTC drops and cool ice packs for swelling. Doctor said your body definitely did not want that medicine talking about Reclast. BTW joint pain not gone but better and headache not constant just comes goes.

I had a Reclast infusion yesterday. Today I'm sore all over but no real pain, I'm also very cold, can't seem to get warm, hoping for the best.

If anyone is having a Reclast infusion soon, please be sure to begin these things a day or two before, day of, and a day or two after: lots of hydration, Tylenol, and your choice of antihistamine. All of these help to minimize the potential acute phase reactions. Reading the side effects can be daunting, but keep in mind that the FDA is required to list any side effect reported even if it's rare. And of course, any other health issues you may have could possibly affect how your body responds. Make sure your infusion is at least 30 minutes, preferably 45 for some of us. I learned so much about the Reclast infusion from this group, and I am grateful for the tips shared by patients who had a positive experience. It made all the difference for me, and I'm praying that continues when I have my second one this summer. We are all in this together!

Hi, so sorry you are really suffering. I had Reclast infusion 6 days ago. Fevers the next day. Now I am having weak legs and trembling, so gonna have bloodwork. I am pre-diabetic and may have chronic fatigue. Good luck.