Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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Profile picture for bonebuddiesforlife @bonebuddiesforlife

Researchers (from University of Leipzig, Germany and Shandong University, China) identified GPR133/ADGRD1 as a receptor that plays a central role in bone formation and maintenance. 
I’m wondering if anyone here in the forum has heard or read about this study ?

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Profile picture for bonebuddiesforlife @bonebuddiesforlife

Researchers (from University of Leipzig, Germany and Shandong University, China) identified GPR133/ADGRD1 as a receptor that plays a central role in bone formation and maintenance. 
I’m wondering if anyone here in the forum has heard or read about this study ?

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@bonebuddiesforlife I read that the other day, as well. I'm going to send it to my endocrinologist, inc case he hasn't seen it.

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Profile picture for harborside24 @harborside24

@bonebuddiesforlife I read that the other day, as well. I'm going to send it to my endocrinologist, inc case he hasn't seen it.

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@harborside24 my specialist won’t entertain listening to anything new .
She only wants to prescribe medication.
She won’t acknowledge my DEXA or REMS testing.
I have decided to move on.
Please let me know what you find out .

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Profile picture for bonebuddiesforlife @bonebuddiesforlife

Researchers (from University of Leipzig, Germany and Shandong University, China) identified GPR133/ADGRD1 as a receptor that plays a central role in bone formation and maintenance. 
I’m wondering if anyone here in the forum has heard or read about this study ?

Jump to this post

@bonebuddiesforlife

I have read it too. Sounds very promising, but I am afraid the development of cure based on the receptor will take too much time to be of importance for me.

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