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cindydee
@cindydee

Posts: 2
Joined: Mar 20, 2018

Reclast Infusion

Posted by @cindydee, Tue, Mar 20 4:38am

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

REPLY

Hello @cindydee, welcome to Connect. I am sorry you are having the side-effects that you explain, they sound painful and concerning. I would like to invite @AgentDarien, @arthritichands, @arthritichands, @texasmimi, @faith123, @ritafarmer, and @edieguinn to this conversation to share their experiences with reclast infusions.

@cindydee, you mentioned that you went to the ER for this issue but did not get any new information. If you don't mind sharing, did they explain that this was even a possible side-effect? Are you to return for monitoring or just wait it out?

I had my first one in april of last year with no problems at all. Will get second one soon.
Hope this one does as well. Sorry you had such disturbing things go wrong. Maybe they
from somthing else. Have you asked your osteoporosis dr. About this?

@JustinMcClanahan

Hello @cindydee, welcome to Connect. I am sorry you are having the side-effects that you explain, they sound painful and concerning. I would like to invite @AgentDarien, @arthritichands, @arthritichands, @texasmimi, @faith123, @ritafarmer, and @edieguinn to this conversation to share their experiences with reclast infusions.

@cindydee, you mentioned that you went to the ER for this issue but did not get any new information. If you don't mind sharing, did they explain that this was even a possible side-effect? Are you to return for monitoring or just wait it out?

Jump to this post

I see my general practitioner tomorrow. The doctor that prescribed it said he had never heard of this kind of reaction and the ER doctor was totally in the dark. The prescribing doctor said it must be working since the inflammation was in each of the joints. This morning my right foot was so swollen that all of my toes were pointing straight up. The pain is almost to the point of being unbearable. And yes, thoughts of just ending it have gone through my head but the repercussions of that keep me from doing it. I don't want anyone to have to clean up the mess!

@JustinMcClanahan

Hello @cindydee, welcome to Connect. I am sorry you are having the side-effects that you explain, they sound painful and concerning. I would like to invite @AgentDarien, @arthritichands, @arthritichands, @texasmimi, @faith123, @ritafarmer, and @edieguinn to this conversation to share their experiences with reclast infusions.

@cindydee, you mentioned that you went to the ER for this issue but did not get any new information. If you don't mind sharing, did they explain that this was even a possible side-effect? Are you to return for monitoring or just wait it out?

Jump to this post

@cindydee, I am sorry that your pain has pushed you to such a point that you are having those kind of thoughts. Chronic pain can be isolating, debilitating and worst of all, it can be invisible to those around us. While we don't have the same causes, I have dealt with chronic pain since birth due to a rare genetic bleeding disorder that caused severe joint damage in my knees and ankles. Before I had my knee replaced and ankle fused, there were some serious dark days due to pain, swelling, and having to be bedridden as a result. While we don't have the same exact causes, I mean it when I say, I know how you feel. Things can get better, if we can get through the dark days.

It took me some time, but I did eventually learn that allowing yourself to have a bad day is not only OK, it is necessary from time to time. But I had to learn to not let that bad day turn in to a bad week, a bad month, a bad year, etc.. Chronic pain can rob of us of who we view ourselves to be, but it can be temporary and it can be beat. I hope you keep coming back to the community, there are many great members on here that are willing to not just offer advice or experiences, but willing to listen.

Oh my am so sorry for you, i had my second one yesterday and so far no side effects. Just didn't want to get up this morning. Keep us posted and hope you feel better soon

Hello everyone, I am on this site due to an infusion I received on Nov. 12, 2018. I am so miserable I have had such a bad reaction and I guess I just have to wait it out. I have Lupus but they gave me this treatment for osteoporosis. Has anyone else had a bad reaction to this medication and how long does it take to get over.

@ychavez

Hello everyone, I am on this site due to an infusion I received on Nov. 12, 2018. I am so miserable I have had such a bad reaction and I guess I just have to wait it out. I have Lupus but they gave me this treatment for osteoporosis. Has anyone else had a bad reaction to this medication and how long does it take to get over.

Jump to this post

Hello @ychavez, welcome to Connect. I moved your discussion and combined it with a discussion also titled "Reclast Infusion." I did this so the members already discussing this treatment would also see your post. I'd also like to invite @bonnieh218 and @edieguinn back to this discussion to share updates on their treatments with reclast.

@ychavez, if you don't mind sharing, what reactions are you having to deal with?

@cindydee. Im so sorry to hear of your misery I never had a Reclast infusion so dont know what to tell you I do know Ice helps with inflammation I use ice on my back and legs when Im in pain hope this helps you There,s Nothing worse then pain

I have had two horrible reactions to injections.
Google the mfg and product you will be shocked.Many women are being affected. I am
trying to get the toxic stuff out of my body. I wish we could talk!

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