Reclast Infusion

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

Hello @cindydee, welcome to Connect. I am sorry you are having the side-effects that you explain, they sound painful and concerning. I would like to invite @AgentDarien, @arthritichands, @arthritichands, @texasmimi, @faith123, @ritafarmer, and @edieguinn to this conversation to share their experiences with reclast infusions.

@cindydee, you mentioned that you went to the ER for this issue but did not get any new information. If you don't mind sharing, did they explain that this was even a possible side-effect? Are you to return for monitoring or just wait it out?

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I had my first one in april of last year with no problems at all. Will get second one soon.
Hope this one does as well. Sorry you had such disturbing things go wrong. Maybe they
from somthing else. Have you asked your osteoporosis dr. About this?

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@JustinMcClanahan

Hello @cindydee, welcome to Connect. I am sorry you are having the side-effects that you explain, they sound painful and concerning. I would like to invite @AgentDarien, @arthritichands, @arthritichands, @texasmimi, @faith123, @ritafarmer, and @edieguinn to this conversation to share their experiences with reclast infusions.

@cindydee, you mentioned that you went to the ER for this issue but did not get any new information. If you don't mind sharing, did they explain that this was even a possible side-effect? Are you to return for monitoring or just wait it out?

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I see my general practitioner tomorrow. The doctor that prescribed it said he had never heard of this kind of reaction and the ER doctor was totally in the dark. The prescribing doctor said it must be working since the inflammation was in each of the joints. This morning my right foot was so swollen that all of my toes were pointing straight up. The pain is almost to the point of being unbearable. And yes, thoughts of just ending it have gone through my head but the repercussions of that keep me from doing it. I don't want anyone to have to clean up the mess!

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@JustinMcClanahan

Hello @cindydee, welcome to Connect. I am sorry you are having the side-effects that you explain, they sound painful and concerning. I would like to invite @AgentDarien, @arthritichands, @arthritichands, @texasmimi, @faith123, @ritafarmer, and @edieguinn to this conversation to share their experiences with reclast infusions.

@cindydee, you mentioned that you went to the ER for this issue but did not get any new information. If you don't mind sharing, did they explain that this was even a possible side-effect? Are you to return for monitoring or just wait it out?

Jump to this post

@cindydee, I am sorry that your pain has pushed you to such a point that you are having those kind of thoughts. Chronic pain can be isolating, debilitating and worst of all, it can be invisible to those around us. While we don't have the same causes, I have dealt with chronic pain since birth due to a rare genetic bleeding disorder that caused severe joint damage in my knees and ankles. Before I had my knee replaced and ankle fused, there were some serious dark days due to pain, swelling, and having to be bedridden as a result. While we don't have the same exact causes, I mean it when I say, I know how you feel. Things can get better, if we can get through the dark days.

It took me some time, but I did eventually learn that allowing yourself to have a bad day is not only OK, it is necessary from time to time. But I had to learn to not let that bad day turn in to a bad week, a bad month, a bad year, etc.. Chronic pain can rob of us of who we view ourselves to be, but it can be temporary and it can be beat. I hope you keep coming back to the community, there are many great members on here that are willing to not just offer advice or experiences, but willing to listen.

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Oh my am so sorry for you, i had my second one yesterday and so far no side effects. Just didn't want to get up this morning. Keep us posted and hope you feel better soon

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Hello everyone, I am on this site due to an infusion I received on Nov. 12, 2018. I am so miserable I have had such a bad reaction and I guess I just have to wait it out. I have Lupus but they gave me this treatment for osteoporosis. Has anyone else had a bad reaction to this medication and how long does it take to get over.

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@ychavez

Hello everyone, I am on this site due to an infusion I received on Nov. 12, 2018. I am so miserable I have had such a bad reaction and I guess I just have to wait it out. I have Lupus but they gave me this treatment for osteoporosis. Has anyone else had a bad reaction to this medication and how long does it take to get over.

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Hello @ychavez, welcome to Connect. I moved your discussion and combined it with a discussion also titled "Reclast Infusion." I did this so the members already discussing this treatment would also see your post. I'd also like to invite @bonnieh218 and @edieguinn back to this discussion to share updates on their treatments with reclast.

@ychavez, if you don't mind sharing, what reactions are you having to deal with?

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@cindydee. Im so sorry to hear of your misery I never had a Reclast infusion so dont know what to tell you I do know Ice helps with inflammation I use ice on my back and legs when Im in pain hope this helps you There,s Nothing worse then pain

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I have had two horrible reactions to injections.
Google the mfg and product you will be shocked.Many women are being affected. I am
trying to get the toxic stuff out of my body. I wish we could talk!

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I have been on Fosamax for 2 years but had to come off in December due to stomach inflammation which I had never had before. Now my rheumatologist wants me to start Reclast. Has anyone had a good experience with this drug? The side effects are frightening.

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@ldawn

I have been on Fosamax for 2 years but had to come off in December due to stomach inflammation which I had never had before. Now my rheumatologist wants me to start Reclast. Has anyone had a good experience with this drug? The side effects are frightening.

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Hello @ldawn. I moved your discussion and combined it with a discussion already titled, "Reclast infusion." Here, you will meet other members talking about their experiences with reclast infusions. I'd also like to invite @bonelady, @bonnieh218, @dkapustin, @arthritichands back to this discussion as well to share their experience with reclast.

Liked by ldawn

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Hi there. Thanks, @JustinMcClanahan for adding me. I have Osteoporosis and tried supplements, diet, and exercise to increase my bone density but nothing worked. I was getting worse. I also want to add that I had been active for decades so weight bearing exercises (weights, walking, elliptical, tennis) still produced a 60 year old with weak bones. Blood tests showed a healthy parathyroid and calcium and Vitamin D levels. With all of that said, I realized that Osteoporosis was a disease. A progressive disease that sometimes needed medication. I didn't want to take the drugs either but I am currently taking care of my 83 year old mother who can only walk to the bathroom due to falls and untreated OP. I spent years in skilled nursing facilities and memory care units caring for my father with Alzheimers and I've seen the lives of those with brittle bones and I just don't want to end up that way. At 62, I've had my right hip replaced, am now recovering form a right knee replacement and will get the other one replaced next year. All as a result from Osteoarthritis which is the sister of the OP. I took Forteo for a year and had no side effects but had a problem with my insurance so switched to Recast. I had the infusion last year and I followed the 3 simple rules. 1. Drink tons of water days before, day of, and day after infusion. 2. Make sure they give the infusion over a 45 minute time frame. NOT the 20 minutes they normally do. If they refuse, get it done elsewhere. 3. Take a couple of Tylenol before going to bed. I had no horrific side effects and although I have joint blame, I couldn't never say with certainty that it is a side effect from the OP drugs. But if you do nothing, lean to heavily on social media and people calling the drugs poison, you may find yourself in trouble later on. All drugs come with risks and you have to weigh the risk/benefit ratio. If you do nothing and your bone density keeps decreasing every year, you will not have a good quality of life in your elder years. I am going to fight for my quality of health and take the drugs. I do know that Reclast should only be sued for about 5 years. I also know that at some point my life, I will probably have to get on Prolia but I'm trying to use all of the other drugs first. I plan on finishing the year of Forteo and staying on Reclast as long as possible. This is certainly something you need to discuss with your doctor. If you don't trust your doctor, find another one. I do recommend seeing an RA or endocronolgist to discuss your OP because they are more knowledgeable about the treatment options for OP. But please be cautious about listening to the people calling it poison. Make your own informed decision.

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@dkapustin

Hi there. Thanks, @JustinMcClanahan for adding me. I have Osteoporosis and tried supplements, diet, and exercise to increase my bone density but nothing worked. I was getting worse. I also want to add that I had been active for decades so weight bearing exercises (weights, walking, elliptical, tennis) still produced a 60 year old with weak bones. Blood tests showed a healthy parathyroid and calcium and Vitamin D levels. With all of that said, I realized that Osteoporosis was a disease. A progressive disease that sometimes needed medication. I didn't want to take the drugs either but I am currently taking care of my 83 year old mother who can only walk to the bathroom due to falls and untreated OP. I spent years in skilled nursing facilities and memory care units caring for my father with Alzheimers and I've seen the lives of those with brittle bones and I just don't want to end up that way. At 62, I've had my right hip replaced, am now recovering form a right knee replacement and will get the other one replaced next year. All as a result from Osteoarthritis which is the sister of the OP. I took Forteo for a year and had no side effects but had a problem with my insurance so switched to Recast. I had the infusion last year and I followed the 3 simple rules. 1. Drink tons of water days before, day of, and day after infusion. 2. Make sure they give the infusion over a 45 minute time frame. NOT the 20 minutes they normally do. If they refuse, get it done elsewhere. 3. Take a couple of Tylenol before going to bed. I had no horrific side effects and although I have joint blame, I couldn't never say with certainty that it is a side effect from the OP drugs. But if you do nothing, lean to heavily on social media and people calling the drugs poison, you may find yourself in trouble later on. All drugs come with risks and you have to weigh the risk/benefit ratio. If you do nothing and your bone density keeps decreasing every year, you will not have a good quality of life in your elder years. I am going to fight for my quality of health and take the drugs. I do know that Reclast should only be sued for about 5 years. I also know that at some point my life, I will probably have to get on Prolia but I'm trying to use all of the other drugs first. I plan on finishing the year of Forteo and staying on Reclast as long as possible. This is certainly something you need to discuss with your doctor. If you don't trust your doctor, find another one. I do recommend seeing an RA or endocronolgist to discuss your OP because they are more knowledgeable about the treatment options for OP. But please be cautious about listening to the people calling it poison. Make your own informed decision.

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Thank you for your thoughtful reply. I think I’m ready to go ahead and get the infusion, but there is so much negative information out there that I found myself scared to move forward, especially after developing gastritis while using the Fosamax. Again, thank you for taking the time to better inform me.

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@dkapustin

Hi there. Thanks, @JustinMcClanahan for adding me. I have Osteoporosis and tried supplements, diet, and exercise to increase my bone density but nothing worked. I was getting worse. I also want to add that I had been active for decades so weight bearing exercises (weights, walking, elliptical, tennis) still produced a 60 year old with weak bones. Blood tests showed a healthy parathyroid and calcium and Vitamin D levels. With all of that said, I realized that Osteoporosis was a disease. A progressive disease that sometimes needed medication. I didn't want to take the drugs either but I am currently taking care of my 83 year old mother who can only walk to the bathroom due to falls and untreated OP. I spent years in skilled nursing facilities and memory care units caring for my father with Alzheimers and I've seen the lives of those with brittle bones and I just don't want to end up that way. At 62, I've had my right hip replaced, am now recovering form a right knee replacement and will get the other one replaced next year. All as a result from Osteoarthritis which is the sister of the OP. I took Forteo for a year and had no side effects but had a problem with my insurance so switched to Recast. I had the infusion last year and I followed the 3 simple rules. 1. Drink tons of water days before, day of, and day after infusion. 2. Make sure they give the infusion over a 45 minute time frame. NOT the 20 minutes they normally do. If they refuse, get it done elsewhere. 3. Take a couple of Tylenol before going to bed. I had no horrific side effects and although I have joint blame, I couldn't never say with certainty that it is a side effect from the OP drugs. But if you do nothing, lean to heavily on social media and people calling the drugs poison, you may find yourself in trouble later on. All drugs come with risks and you have to weigh the risk/benefit ratio. If you do nothing and your bone density keeps decreasing every year, you will not have a good quality of life in your elder years. I am going to fight for my quality of health and take the drugs. I do know that Reclast should only be sued for about 5 years. I also know that at some point my life, I will probably have to get on Prolia but I'm trying to use all of the other drugs first. I plan on finishing the year of Forteo and staying on Reclast as long as possible. This is certainly something you need to discuss with your doctor. If you don't trust your doctor, find another one. I do recommend seeing an RA or endocronolgist to discuss your OP because they are more knowledgeable about the treatment options for OP. But please be cautious about listening to the people calling it poison. Make your own informed decision.

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GOOD LUCK WITH THE TREATMENT I HAVE HAD 3 PROLIA INJECTIONS ONE TODAY AND NOT HAD ANY SIDE EFFECTS TERESA 🤗😍💐

Liked by lioness

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@ldawn

Thank you for your thoughtful reply. I think I’m ready to go ahead and get the infusion, but there is so much negative information out there that I found myself scared to move forward, especially after developing gastritis while using the Fosamax. Again, thank you for taking the time to better inform me.

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@ldawn I had my first reclast infusion two weeks ago. I went in scared to death of side effects. On day two I had some achiness in my legs (like I exercised to much). It was not bad and went away in a couple days. For some reason I was extremely tired for about a week. But it was all good. I was stressed over nothing. Hope it goes as well for you. My sister had reclast infusions five times. She has never had any side effects other than a tingling feeling in her bones for a couple days. Her bone density has increased immensely.

Liked by ldawn, lioness, jmanj

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