Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for dannyandebbie @dannyandebbie

@askjewels some of these symptoms are quite scary! You know, I do not recall my endocrinologist expressing any of these side effects before or during my infusion! Wish he had, might of changed my mine. I also know, the symptoms I’ve experienced has helped make up my future mind, no more infusion. In fact, I went to primary Friday for my annual and they wanted to give me RSVP, Flu and Covid vaccine to which I declined all 3, proud of myself! Stand strong for myself! Bast of luck for Short term symptoms!

Jump to this post

@dannyandebbie Y E S - me too - NO MORE nothing! I had a reaction to the Hep A vaccine that I got in 2018. I have controlled psoriasis - no flare ups for years now, thanks to taking 1000 vitamin d-3 for past 9 years now. I was going with my husband to visit his brother in Virginia, and they had a huge outbreak of Hep A. So I asked, would this vaccine give me any side effects with he having an autoimmune disease. The health dept said no. Within seconds of getting the vaccine, I blacked out, woke up with books stacked up under my head on their floor. For 8 weeks after that I had a poor appetite, nausea, lost 10 pounds, weak. It was horrible. So do not get vaccines.

REPLY

jcl75.
Addendum to my Reclast saga: I had a 2nd opinion with an opthalmologist. This time (after 3-4 hours) it was decided that I should go directly to the ER. There was concern about Giant cell arteritis. I was seen by a neuro opthalmologist who was concerned about Giant Cell Arteritis (not good). I had a biopsy yesterday to rule this out. I am to return in a few days for lab and biopsy results.

REPLY

I had my first infusion on Monday, April 13, 2026.
Other than sleeping all day. No issues.

I did hydrate well as suggested, and drank
plenty of water the day before, the morning of and two bottles of water during the infusion and plenty of water the rest of the day.

I took two Extra Strength Tylenol about an hour before.

You are correct, the doctors don't tell you much about side effects, alternative treatments or how to prepare. For what they charge, you'd think they would have a little information, send you home with instructions on how to prepare, what side effects may occur and what to expect. NOPE....You have to go on this forum for that.....as they say "the best things in life are free"....

REPLY
Profile picture for gowalking @gowalking

I had my first infusion on Monday, April 13, 2026.
Other than sleeping all day. No issues.

I did hydrate well as suggested, and drank
plenty of water the day before, the morning of and two bottles of water during the infusion and plenty of water the rest of the day.

I took two Extra Strength Tylenol about an hour before.

You are correct, the doctors don't tell you much about side effects, alternative treatments or how to prepare. For what they charge, you'd think they would have a little information, send you home with instructions on how to prepare, what side effects may occur and what to expect. NOPE....You have to go on this forum for that.....as they say "the best things in life are free"....

Jump to this post

@gowalking glad no real side effects, hopefully none pop out days later either!

REPLY
Profile picture for dannyandebbie @dannyandebbie

@gowalking glad no real side effects, hopefully none pop out days later either!

Jump to this post

@dannyandebbie

Keeping my fingers crossed!!

REPLY
Please sign in or register to post a reply.