Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Good morning, my name is Norman Chester, I have been diagnosed with Afib, I'm currently taking Diltiazem SR 120, I've been taking it for about 3 months to control my heart rate, it got very fast, I'm also taking eliquis, for blood clots, to keep new ones from forming, I haven't had any procedures yet, there's a possibility I already have a blood clot in my heart, have a Merry Christmas

REPLY

Hi I’m Lorrean, for Afib I had first stent, then 3 yrs ago The Watchman! Everything went fine except now it’s NSVT which now I am on 100mgs of Amiodarone (3 months) doesn’t seem to do much just makes me feel tired. Also baby aspirin daily. Anyone out there with this condition?!?

REPLY
Profile picture for gloaming @gloaming

@boopea Hello, Boopea. Welcome to you. I agree with hopeseeker22 and urge you to begin a process of discovery on your own behalf. I have had two ablations for AF, diagnosed paroxysmal in June 2017. I am now coming up to three years free of AF due to the completion of what is called a 'pulmonary vein isolation' via catheter ablation. I began intense self-teaching pretty much immediately that I was diagnosed, and have kept up. AF is treatable, but not beatable. It's a progressive disorder, but its progress gets very fast and potentially damaging to the heart the longer it is left untreated. If your meds keep you free from AF, that's a really great place to be. I hope it continues for you, but I also hope you understand that it may not continue to work. If you find yourself slipping a bit into more AF, please read up on catheter ablations, whether radio frequency energy or pulsed field energy. Both have good results in the right hands....so the electrophysiologist is a very important part of your eventual success. Best wishes to you.

Jump to this post

@gloaming I recently had my second AFib treated by ablation. I don't know how other people are able to tell when they have AFib. I don't know when I do. So, please, can you please help me with clues as to how I can tell when I do.

REPLY
Profile picture for normanchester @normanchester

Good morning, my name is Norman Chester, I have been diagnosed with Afib, I'm currently taking Diltiazem SR 120, I've been taking it for about 3 months to control my heart rate, it got very fast, I'm also taking eliquis, for blood clots, to keep new ones from forming, I haven't had any procedures yet, there's a possibility I already have a blood clot in my heart, have a Merry Christmas

Jump to this post

@normanchester All best wishes. You may need to be a bit pushy about getting a procedure in a timely way. I waited 5 months! I'm in California near San Francisco and we have a shortage of specialists --the cost of living discourages doctors from moving here which is a shame because it is beautiful here.

REPLY
Profile picture for too @too

Hi I’m Lorrean, for Afib I had first stent, then 3 yrs ago The Watchman! Everything went fine except now it’s NSVT which now I am on 100mgs of Amiodarone (3 months) doesn’t seem to do much just makes me feel tired. Also baby aspirin daily. Anyone out there with this condition?!?

Jump to this post

@too I don't know much about Amiodarone but what I do concerns me., especially since I'm elderly. Please do a search and learn more about it.

REPLY
Profile picture for sweetmarie4me2 @sweetmarie4me2

@normanchester All best wishes. You may need to be a bit pushy about getting a procedure in a timely way. I waited 5 months! I'm in California near San Francisco and we have a shortage of specialists --the cost of living discourages doctors from moving here which is a shame because it is beautiful here.

Jump to this post

@sweetmarie4me2 thank you very much, Merry Christmas to you, I'm sorry you had to wait,

REPLY
Profile picture for sweetmarie4me2 @sweetmarie4me2

@too I don't know much about Amiodarone but what I do concerns me., especially since I'm elderly. Please do a search and learn more about it.

Jump to this post

@sweetmarie4me2 I do know the adverse side effects, and plan on talking to my primary, my cardiologist is the one who prescribed this medication! I think it’s making me feel worse! Thanks for replying.

REPLY

Previously, I had supra ventricular tachycardia and had 2 cardiac catheter ablations to resolve it. For about 7 years everything was fine.

But recently, I noticed a very fast heartbeat when I exercised on my spin bike. My heart rate would jump from 85 to 185 and then bounce around from 120 to 170 or so. My cardiologist prescribed a 2-week monitor and it showed A-Fib. I was prescribed Eliquis and I am seeing my doctor early in January. I will be 82 in February.

REPLY

I'm a month post-ablation, very stable, except I was prescribed an Albuterol inhaler for a bad cold and congestion. I got palpitations and my heart rate spiked into the 150s overnight, so I stopped using it. Anyone else have that experience with this drug?

REPLY
Profile picture for CapnHal @capnhal

I'm a month post-ablation, very stable, except I was prescribed an Albuterol inhaler for a bad cold and congestion. I got palpitations and my heart rate spiked into the 150s overnight, so I stopped using it. Anyone else have that experience with this drug?

Jump to this post

@capnhal
I was diagnosed with sleep apnea and low oxygen at night. Now on BIPAP and oxygen. Still have shortness of breath so tested for lung problems. Diagnosed with exercise induced asthma. Prescribed Albuterol. Used it before exercise. No discernible effect. Don't know if I had side effects, but I just stopped using it as well. I wonder if the NP who prescribed it was aware of my heart palpatations or not, but because of your experience, I will make sure the new lung testing people are aware. Thanks for posting. It is always good to be informed of other's experience. I wish I could offer something useful to you. I can just wish you well. Happy hollidays!

REPLY
Please sign in or register to post a reply.