Blaming and anger: How do you deal with it?

Posted by murkywaters @murkywaters, Dec 3 8:59am

He spilled cereal and blamed me.
He suggested I invite my son for Thanksgiving, even though he's been out of my life for ten years. The doctor gave him a referral to a neurologist, which he ignored. These are just a few examples of my current situation. How do you all cope? I'm ill today with Norovirus, and hiding away in my bedroom.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

In reply to @merriannie "@elliottw" + (show)

@merriannie. When you signed on yesterday, you mentioned @elliott and then never wrote your comment
Are you having some trouble with formatting your answers or did you change your mind about answering? It’s no big problem. Just let me know so I can help!

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@merriannie. When you signed on yesterday, you mentioned @elliott and then never wrote your comment
Are you having some trouble with formatting your answers or did you change your mind about answering? It’s no big problem. Just let me know so I can help!

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@becsbuddy

Yes I was not getting the opportunity to comment but either forgot my password or never finished the set up.

I think I am good now.

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Profile picture for lizzabeth @lizzabeth

@lkbous
My husband was just having several days a month of the strange behavior but now it is daily and hourly. I journal every day and that helps. Our normal is not normal but we get used to it so if I don't journal I forget what the days behaviors were. The behaviors are so bizarre that a person who is functioning normal cannot recall them properly. Years ago a schizophrenic person was talking to me and when I tried to recount the conversation to my husband, I couldn't because my mind was rational and remember something so irrational just was not possible. So anyway journaling helps. When I go back and read my journal I am amazed that his behaviors did not just shock me but it is my new normal.

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@lizzabeth I too journal. It is a good way to keep up with the progression of the disease and very helpful to have when it’s time to go to the doctor.

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Profile picture for lueverson @lueverson

My husband is undiagnosed because he is in denial and his medical team is of no help, as they say that he has to agree to testing, allowing me to attend medical appointments, etc. I would say that he suffers from Mild Cognitive Impairment because he manages fairly well for the most part. He has undergone a major personality change, but it's a positive change. He only "blows up" very seldom. I get so angry when he leaves stove on, blames me for things that he has done, insists that he has told me certain things, etc. I just need someone to validate what I'm going through. By the way, I am on medication for Severe Major Depression and sometimes deal with suicidal ideation.

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@lueverson , It is imperative to get help for yourself. Professionals can best determine what treatment you need. I will add that I understand the frustration of dealing with a person who has dementia and who is uncivil towards you in the home.

You describe your husband’s cognitive decline as mild……please get a legal consultation to learn your rights and responsibilities. As your husband’s condition progresses, it will only get more frustrating and demanding. After what I have experienced with caregiving family members who have dementia in the home……I highly encourage lots of outside help or placement in a facility if that level of care is warranted.

Most people can’t imagine this care 24/7. Even for someone who doesn’t have depression, it’s overwhelming. Please protect your own health.

I’ll also add that the prospect of getting a loved one to admit they have dementia isn’t a big help. It seems like it would help, but not really. Even if they do admit it, the’ll forget. Because the reasoning is off, they can’t process how the disease is affecting them. The inability to recognize their condition is quite common. And even if they do, it’s momentary.

It sounds like his doctor may not have experience treating dementia patients. There are ways to handle it.

So, I would certainly get legal advice to get advice on estate planning and your marital rights. Best wishes with everything.

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Profile picture for celia16 @celia16

@lueverson , It is imperative to get help for yourself. Professionals can best determine what treatment you need. I will add that I understand the frustration of dealing with a person who has dementia and who is uncivil towards you in the home.

You describe your husband’s cognitive decline as mild……please get a legal consultation to learn your rights and responsibilities. As your husband’s condition progresses, it will only get more frustrating and demanding. After what I have experienced with caregiving family members who have dementia in the home……I highly encourage lots of outside help or placement in a facility if that level of care is warranted.

Most people can’t imagine this care 24/7. Even for someone who doesn’t have depression, it’s overwhelming. Please protect your own health.

I’ll also add that the prospect of getting a loved one to admit they have dementia isn’t a big help. It seems like it would help, but not really. Even if they do admit it, the’ll forget. Because the reasoning is off, they can’t process how the disease is affecting them. The inability to recognize their condition is quite common. And even if they do, it’s momentary.

It sounds like his doctor may not have experience treating dementia patients. There are ways to handle it.

So, I would certainly get legal advice to get advice on estate planning and your marital rights. Best wishes with everything.

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@celia16 My husband is in a senior facility where he's independent but gets lots of care. He's always been very loving toward me and even with dementia he's been really appreciative of me in general, even bragging about me to nurses and doctors. But recently he's been agitating for a return home (he's always done that but it's more heated now) and I'm afraid to do that for several reasons, one being my own nervousness. Now he's insisting that he owns the house, that he's the one who paid for it (he did contribute the lion's share to our 26 yr. marriage) and I feel guilty because I also feel very grateful and beholden to him. I've done everything I can since he had a bad fall in August to get him to where he is today and I'm exhausted, to say the least. It's hurtful to hear him say it's his house or that I've thrown him out. He's where he needs to be and it's a very good place. Since August, I've visited him every day but three. I pulled out all the stops to make his apartment a pleasant place to be, bought him a terrific new TV and do a whole lot of other stuff too. I don't know what to say when he starts in on how he owns the house because he paid for it and asks me how much I contributed to the down payment 23 years ago. Any suggestions for how to handle this or think about it my self would be appreciated.

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Profile picture for pamela78 @pamela78

@celia16 My husband is in a senior facility where he's independent but gets lots of care. He's always been very loving toward me and even with dementia he's been really appreciative of me in general, even bragging about me to nurses and doctors. But recently he's been agitating for a return home (he's always done that but it's more heated now) and I'm afraid to do that for several reasons, one being my own nervousness. Now he's insisting that he owns the house, that he's the one who paid for it (he did contribute the lion's share to our 26 yr. marriage) and I feel guilty because I also feel very grateful and beholden to him. I've done everything I can since he had a bad fall in August to get him to where he is today and I'm exhausted, to say the least. It's hurtful to hear him say it's his house or that I've thrown him out. He's where he needs to be and it's a very good place. Since August, I've visited him every day but three. I pulled out all the stops to make his apartment a pleasant place to be, bought him a terrific new TV and do a whole lot of other stuff too. I don't know what to say when he starts in on how he owns the house because he paid for it and asks me how much I contributed to the down payment 23 years ago. Any suggestions for how to handle this or think about it my self would be appreciated.

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@pamela78 p.s. I have Power of Attorney.

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Profile picture for pamela78 @pamela78

@celia16 My husband is in a senior facility where he's independent but gets lots of care. He's always been very loving toward me and even with dementia he's been really appreciative of me in general, even bragging about me to nurses and doctors. But recently he's been agitating for a return home (he's always done that but it's more heated now) and I'm afraid to do that for several reasons, one being my own nervousness. Now he's insisting that he owns the house, that he's the one who paid for it (he did contribute the lion's share to our 26 yr. marriage) and I feel guilty because I also feel very grateful and beholden to him. I've done everything I can since he had a bad fall in August to get him to where he is today and I'm exhausted, to say the least. It's hurtful to hear him say it's his house or that I've thrown him out. He's where he needs to be and it's a very good place. Since August, I've visited him every day but three. I pulled out all the stops to make his apartment a pleasant place to be, bought him a terrific new TV and do a whole lot of other stuff too. I don't know what to say when he starts in on how he owns the house because he paid for it and asks me how much I contributed to the down payment 23 years ago. Any suggestions for how to handle this or think about it my self would be appreciated.

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@pamela78 , navigating through dementia caregiving is challenging. It progresses at different rates, so the level of care someone requires changes. Does he have supervised care where he is? Is there anyone to alert you if he tries to leave? Does he have the means to leave? Since he’s talking about visiting home, I’d explore those issues and address them. Longterm, an independent living situation usually isn’t feasible. My cousin went from regular assisted living to a Secure Memory Care pretty quickly. I can’t recall any positive posts reports about taking family members back to the home. There are many risks….them getting disoriented, confused, agitated and even refusing to return to the facility. If that happens it’s a huge problem.

People with dementia may make all kinds of statements. Some true, some based on some truth and some completely false. Not letting the statements distract you is key. The top priority is having them in an environment of protection and care. Their claim on the home does not change that. Because reasoning, judgement and processing information is often missing, getting them to understand and accept an explanation is often impossible. So, regardless of what you say….will it placate him? Are there words that will acknowledge his feelings yet keep him from acting out? Complimenting him on what a good provider he was, thanking him for his hard work, etc. But, delaying any plans for visits. For a short while my dad thought people were stealing from him. They weren’t, but after he could not be convinced otherwise, I promised, I would get video cameras installed to catch them. And, any missing funds would be returned by insurance. Dealing with what works in the moment was the best we could do. Eventually, it’s forgotten. Consoling, distracting, staying positive…….

I always recommend a legal consult to find out your rights and responsibilities for marital issues and Estate planning.

Teepa Snow you tube videos may be helpful.

Unfortunately, with dementia progressing….there doesn’t seem to be a way to address an issue and things become ok. There are usually daily issues, problem behaviors, agitation, etc. Even with meds there seems to be issues. Often, keeping a person with this condition happy and content isn’t possible, even with meds, based on my experiences. Please take breaks. It will impact your health too. Please take care.

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Profile picture for celia16 @celia16

@pamela78 , navigating through dementia caregiving is challenging. It progresses at different rates, so the level of care someone requires changes. Does he have supervised care where he is? Is there anyone to alert you if he tries to leave? Does he have the means to leave? Since he’s talking about visiting home, I’d explore those issues and address them. Longterm, an independent living situation usually isn’t feasible. My cousin went from regular assisted living to a Secure Memory Care pretty quickly. I can’t recall any positive posts reports about taking family members back to the home. There are many risks….them getting disoriented, confused, agitated and even refusing to return to the facility. If that happens it’s a huge problem.

People with dementia may make all kinds of statements. Some true, some based on some truth and some completely false. Not letting the statements distract you is key. The top priority is having them in an environment of protection and care. Their claim on the home does not change that. Because reasoning, judgement and processing information is often missing, getting them to understand and accept an explanation is often impossible. So, regardless of what you say….will it placate him? Are there words that will acknowledge his feelings yet keep him from acting out? Complimenting him on what a good provider he was, thanking him for his hard work, etc. But, delaying any plans for visits. For a short while my dad thought people were stealing from him. They weren’t, but after he could not be convinced otherwise, I promised, I would get video cameras installed to catch them. And, any missing funds would be returned by insurance. Dealing with what works in the moment was the best we could do. Eventually, it’s forgotten. Consoling, distracting, staying positive…….

I always recommend a legal consult to find out your rights and responsibilities for marital issues and Estate planning.

Teepa Snow you tube videos may be helpful.

Unfortunately, with dementia progressing….there doesn’t seem to be a way to address an issue and things become ok. There are usually daily issues, problem behaviors, agitation, etc. Even with meds there seems to be issues. Often, keeping a person with this condition happy and content isn’t possible, even with meds, based on my experiences. Please take breaks. It will impact your health too. Please take care.

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@celia16 Thank you. This is helpful. It's so confusing, knowing what to do as the circumstances keep changing. When he speaks, he sounds like himself, more or less, but "working through" anything really isn't possible. I want to respect him and still set the proper boundaries and, since I'm pretty much of a pushover anyway, saying No is difficult for me. But everyone is telling me the same thing--don't bring him home--that I don't believe I will. The trouble is, we're having Christmas at my daughter's and she lives in our neighborhood, so we'll be very near our house and he'll know that. His proximity is great in that it makes it easy for me to visit him, but sometimes it's too close for comfort. Honestly, I'll be glad when he remembers less.

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Profile picture for pamela78 @pamela78

@celia16 My husband is in a senior facility where he's independent but gets lots of care. He's always been very loving toward me and even with dementia he's been really appreciative of me in general, even bragging about me to nurses and doctors. But recently he's been agitating for a return home (he's always done that but it's more heated now) and I'm afraid to do that for several reasons, one being my own nervousness. Now he's insisting that he owns the house, that he's the one who paid for it (he did contribute the lion's share to our 26 yr. marriage) and I feel guilty because I also feel very grateful and beholden to him. I've done everything I can since he had a bad fall in August to get him to where he is today and I'm exhausted, to say the least. It's hurtful to hear him say it's his house or that I've thrown him out. He's where he needs to be and it's a very good place. Since August, I've visited him every day but three. I pulled out all the stops to make his apartment a pleasant place to be, bought him a terrific new TV and do a whole lot of other stuff too. I don't know what to say when he starts in on how he owns the house because he paid for it and asks me how much I contributed to the down payment 23 years ago. Any suggestions for how to handle this or think about it my self would be appreciated.

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@pamela78

Hang in there, Pamela. You made the right decision for you and your husband. It's time for you to self-care.

Does your husband have a will or trust? Is your name on the deed to to house? If you don't already have an attorney to protect your rights, you should think about getting one.

I wish you the best.

Hugs,
George's Wife

P.S. George has fallen at least 25 times in the last year but he has never seriouly hurt himself. If your husband comes back home, who knows whether he'll have another bad fall--and then blame you!

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Profile picture for georgescraftjr @georgescraftjr

@pamela78

Hang in there, Pamela. You made the right decision for you and your husband. It's time for you to self-care.

Does your husband have a will or trust? Is your name on the deed to to house? If you don't already have an attorney to protect your rights, you should think about getting one.

I wish you the best.

Hugs,
George's Wife

P.S. George has fallen at least 25 times in the last year but he has never seriouly hurt himself. If your husband comes back home, who knows whether he'll have another bad fall--and then blame you!

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@georgescraftjr Thank you. Yes, I have POA and all the documents are in order. My name is on the house and I own the car outright. I'm exhausted but all the advice I'm getting helps me know I'm doing the right thing. I watched a movie on TV last night--Blythe Danner was a woman with dementia--and her family were at odds about what to do. It showed just how difficult this is. I could relate.

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