Heart transplant: recovering but steroids are affecting behavior

yes

@ca426 Hi, Charlie. It is good to hear from you. Thanks for dropping in for a brief visit. It is always nice to 'hear' from another old transplant friend!
I hope that you are warm and comfortable wherever you are right now. It is cold here in central Kentucky, but I am warm and inside recovering from a cold. My goal is to be extra cautious and not to pick up any kind of germ that is circulating during this flu season.

I am guessing that your reply "Yes" is to the high dose of steroids concern in the original post. I have read a lot of responses from other transplant patients, any I have noticed that they, too, have experienced the same effects.
Rosemary

@glinda, Hi Glinda. I feel much better today! After a good night sleep and returning appetite, I'm ready to have a normal day! But I do plan to take it slow and stay inside and warm for the next couple days. You said your fear is colds; my fear is fevers. So I have been vigilant on checking it.
Glinda, On this forum, we have many people who follow along by reading our conversations. That is how we learn and encourage each other. And of course anyone is welcome to join at anytime, just like you did
If you are comfortable, would you share with us some of your journey? Keep in mind that this is a public forum. Glinda, how did you learn that you would need a heart transplant?

Rosemary

yes nice and warm, although I am no stranger to the cold I grew up in Illinois but I've been in North Carolina for 30 yrs., I get some form of cold or something once in awhile but not much of a problem, I'm carful out in public, I think that there's a lot of things out there to scare people, I've only had a flu shot twice my entire life and ( my adult life ) and I only got the flu once, when everybody was at our house for Christmas and out of 7 people only 2 weren't sick. That was a ruff one but for the most part I do real well. I hope you cold get's better, I take vitamin c on a regular basis and it helps a lot, there's been a little dusting of snow hear but nothing to speak of, anyhow nice to hear from you have a merry Christmas.

I would be happy to share with everyone. I started out with what my doctor and i thought was my asthma and we kept trying different medicines that weren't working so she sent me to see a pulmonologist on the 23rd of december of 2005 and i mentioned to him that i had had a heart mumur when i was little so he decided to do and EKG on me he came back in and told me I was not going home that i had had a major heart attack and I was going to the hospital thats when the cardiologist first saw me and on christmas eve of 2005 they did an emergency angiogram on me but i knew on tbe 23rd of december that i needed tne transplant because they did an x-ray and an MRI and a CT scan and they all should that I should not have survived the heart attack as i had the rarest form of congestive heart failure or cardiomyopathy there is i had cardimyopathy with ridgity and there was no coming back from that. I was 40 years old when diagnosed with CHF and it was determined that a cold caused it and mind you it was the very fist real cold i had ever had not caused by allergies they determined that i had caught the cold when i did a 13 mile walk with my daughter and her gym class and when we thought it went away after a couple days it had actually moved into my heart and waited to attack my heart so even though I don't need to wear a mask anymore I still do ad I take public transportation ( the city bus) and so take all precautions and my doctors agree with me that it is safer for me to wear one

For me it was a long journey as my doctors and I were not sure that i would ever get a heart and as i couldn't go on the transplant list until both my kids were taken care of i had to wait until my daughter was old enough to move into an adult family home where they would take care of her. I wasn't worried about whether I would get a heart my concerns were about my son and daugjter and my mom and who would take care of them when I was gone if I didn't get the transplant or even when I did get it just staying alive for them was my main concern while waiting for transplant

@glinda, Thank you for sharing your story. I feel like I need to say more, however, the only word that comes to my mind is, "Inspiring!"

Did you know that we have a discussion that was started a few months ago, in October, that is titled, "Transplant Stories that Inspire: What's Yours?" I invite you to click on this link and read what others have already shared. Please, consider adding your own.
https://connect.mayoclinic.org/discussion/patient-stories/

Rosemary

@glinda, Is that your Heart Transplant Pillow? Rosemary

Yes it is and for me it represents the strength and the fight thst i had and will always have to keep healthy and strong and it is something that both my son and daughter are proud of that mom had the transplant not just for them but also for myself

@lupedelarosa12 Unfortunately yes i went thru it also. Try to be patient and at about 6 months he should be taken off the steroids and it will get better.