Heart transplant: recovering but steroids are affecting behavior

Posted by lupedelarosa12 @lupedelarosa12, Feb 28, 2017

My son has had a heart transplant and is recovering but is on a high dose of steroids and is acting really different coherent , bilegernt, not him at all , is this normal

@glinda

Hi@danab,
I'm actually doing good staying safe and well here in Eau Claire WI. It's still been a slow recovery from the accident 2 years ago as I have muscle atrophy from the accident and not being able to move because of it for a long time but I'm slowly improving I walk still with the cane and will have to have it probably the rest of my life just in case I need it so will keep with me wherever I go my health has been good just mild to moderate asthma acting up as always I keep on close contact with my transplant team and coordinator when needed I did pass my nine years post heart transplant exam this January but I did find out that I have to have another right heart cath and angiogram next year as they doing some moderate blockage in 2 on my main arteries and a couple small lesions on my heart but they aren't worried about it the it's just being cautious hence the right heart cath and angiogram again next year otherwise I'm good staying safe I never go out without my mask or without hand sanitizer it's still hard to believe I am 9 years post heart transplant I still feel like it was yesterday hope all is safe and well with you and will try to be on here more often since I am unable to do appointments right now I work on cardio when able to with certain exercises as well as using the treadmill at the YMCA which is closed right now so have to do some therapy at home for cardio with bands and weights when my body allows me to but I am well and safe and following our safer – at – home rules except for having to get essentials like food and stuff even my roommate/caregiver is using a mask and hand sanitizer when we go out so I am always safe.
Please stay safe and well yourself.will keep everyone updated on how I'm doing here also. I know it's been a while since I was on here but have tried to keep up with everyone here also. I'm trying to stay busy with being homebound we are allowed to go out and walk but now with the snow we got again for me it's a risk to fall so have to wait. It's okay though with me waiting to walk outside again spring will come and stay soon 😊
Thank you for asking about me and sorry I haven't checked in lately have more time now with quarintine so am able to get on mayo connect
Thanks Glinda

And everyone here on mayo connect please stay safe and well I'm praying for you all to be well and safe

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@glinda Good to hear your doing well, I too am staying home mostly except for my morning walks. I miss our Gym also and not getting much strength training but I'm confident this will pass and Life my be more like we are used too. I have commented that I always wear a Mask in public and I do get strange looks once in a while but now more people are wearing masks so I'm not so strange anymore. Actually just recently I found out My Pastor was pretty ill in Janurary and did OK got better and is fine. But the amazing part was he was just tested for antibodies and found out he did have the covid-19 and now has antibodies. Well even tho I am attending online now I was going to church and had conversations with him but always wearing my mask and using sanitizer and never caught it. So just maybe our dedication to good masking and sanitation has paid off. I'm not going to assume that i can always be around others that are sick and not get it but I am sure glad for my teams recommendation to wear a mask during flu season. Well great to hear from you and Have a Blessed Day.
Dana

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@danab

@glinda Good to hear your doing well, I too am staying home mostly except for my morning walks. I miss our Gym also and not getting much strength training but I'm confident this will pass and Life my be more like we are used too. I have commented that I always wear a Mask in public and I do get strange looks once in a while but now more people are wearing masks so I'm not so strange anymore. Actually just recently I found out My Pastor was pretty ill in Janurary and did OK got better and is fine. But the amazing part was he was just tested for antibodies and found out he did have the covid-19 and now has antibodies. Well even tho I am attending online now I was going to church and had conversations with him but always wearing my mask and using sanitizer and never caught it. So just maybe our dedication to good masking and sanitation has paid off. I'm not going to assume that i can always be around others that are sick and not get it but I am sure glad for my teams recommendation to wear a mask during flu season. Well great to hear from you and Have a Blessed Day.
Dana

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Hi Dana, I was just reading about your pastor having antibodies to COVID-19. I was not aware of an available serologic test for antibodies yet. I guess I'm surprised and behind the times. Anyone else know about these tests? Are they just in one part of the country? And good for your masking, Dana. I'm with you on that! #maskup

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@estrada53

Hi Dana, I was just reading about your pastor having antibodies to COVID-19. I was not aware of an available serologic test for antibodies yet. I guess I'm surprised and behind the times. Anyone else know about these tests? Are they just in one part of the country? And good for your masking, Dana. I'm with you on that! #maskup

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@estrada53 Yes I also saw a podcast today from Mayo about there starting to test for antibodies here is the link.

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@estrada53

Hi Dana, I was just reading about your pastor having antibodies to COVID-19. I was not aware of an available serologic test for antibodies yet. I guess I'm surprised and behind the times. Anyone else know about these tests? Are they just in one part of the country? And good for your masking, Dana. I'm with you on that! #maskup

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@estrada53 I have definitely heard that they can test for antibodies, and I have heard about a number of people who apparently did have COVID and were sick but not so sick that they needed much medical care, and have tested positive for antibodies.
They have also found, I believe it was in a different country, that some people who had antibodies did get COVID again. The assumption is that they had a very mild case and the antibodies they had were not strong enough to ward off the germs a second time.
JK

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@danab

@estrada53 Yes I also saw a podcast today from Mayo about there starting to test for antibodies here is the link.

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@danab, I want to thank you for sharing this link! I found this 10 minute video to be informative and also promising, especially as the country is beginning to discuss easing restrictions in some areas.

@estrada53, @contentandwell,
Here is another link: Dr. Gregory Poland, an infectious diseases expert and director of Mayo Clinic's Vaccine Research Group, answers questions about the two tests, who should take them, and how they will help scientists and researchers better understand this virus.

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@glinda

Hi@danab,
I'm actually doing good staying safe and well here in Eau Claire WI. It's still been a slow recovery from the accident 2 years ago as I have muscle atrophy from the accident and not being able to move because of it for a long time but I'm slowly improving I walk still with the cane and will have to have it probably the rest of my life just in case I need it so will keep with me wherever I go my health has been good just mild to moderate asthma acting up as always I keep on close contact with my transplant team and coordinator when needed I did pass my nine years post heart transplant exam this January but I did find out that I have to have another right heart cath and angiogram next year as they doing some moderate blockage in 2 on my main arteries and a couple small lesions on my heart but they aren't worried about it the it's just being cautious hence the right heart cath and angiogram again next year otherwise I'm good staying safe I never go out without my mask or without hand sanitizer it's still hard to believe I am 9 years post heart transplant I still feel like it was yesterday hope all is safe and well with you and will try to be on here more often since I am unable to do appointments right now I work on cardio when able to with certain exercises as well as using the treadmill at the YMCA which is closed right now so have to do some therapy at home for cardio with bands and weights when my body allows me to but I am well and safe and following our safer – at – home rules except for having to get essentials like food and stuff even my roommate/caregiver is using a mask and hand sanitizer when we go out so I am always safe.
Please stay safe and well yourself.will keep everyone updated on how I'm doing here also. I know it's been a while since I was on here but have tried to keep up with everyone here also. I'm trying to stay busy with being homebound we are allowed to go out and walk but now with the snow we got again for me it's a risk to fall so have to wait. It's okay though with me waiting to walk outside again spring will come and stay soon 😊
Thank you for asking about me and sorry I haven't checked in lately have more time now with quarintine so am able to get on mayo connect
Thanks Glinda

And everyone here on mayo connect please stay safe and well I'm praying for you all to be well and safe

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Hello @glinda,

It has been several months since you last posted and I was wondering how you are doing. Were you able to get outside a bit more during the summer and fall? I hope that you are still keeping busy with activities that you can do comfortably.

What type of exercises are you able to do these days?

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@lupedelarosa12 , I was on prednisone at a reducing rate throughout my first six months after my heart transplant. I was told that it has two possible side effects on your emotions. You might cry at the slightest provocation, or you might lash out when you had previously been calm. I was quite nervous as I have some natural jerk tendencies when annoyed. For me it primarily made me cry. As I weened down those emotional outbursts lessened though I can say that I am still more emotional now even though I have been off prednisone for nearly six months.

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