New Transplant Blog Posts

Hi Dave, @davebarnes

How wonderful! Light at the end of the tunnel is always a good thing.

Teresa

Well that is good news! So glad your path to a transplant has made such a dramatic turn in the right direction. How was your anniversary? I haven't had a transplant yet but I'm assuming your wife must attend all your pre-transplant classes?

Lynn

Anniversary wen well Friday and Saturday, Sunday I was in ER. But I was well enough to take her to a Musical and a casino on Saturday. Thanks for asking

Sounds like you had a good celebration and got it all in before you got under the weather. So glad you had that time together. It's got to be tough being sick and not living in the same state as your wife.

Lynn

I signed up for a clinical study called: A Multicenter Randomized Controlled Trial to Compare the Efficacy of Ex-vivo Normothermic Machine Perfusion with Static Cold Storage in Human Liver Transplantation.
My doctors say it is safe.
Has anyone heard of this?

Good morning everyone, Today’s blog post might be our best post yet! As you might know, we put together a list of transplant hacks from the amazing discussions you have all had in this discussion group! We want to thank you from the bottom of our hearts for the wonderful information you provide every day to each other, and to the many people who might be watching but not yet participating in your discussions. We hope you enjoy and share this blog post with others who might benefit. Thank you for the great information you provide every day!
– Kristin
https://connect.mayoclinic.org/newsfeed-post/top-transplant-hacks-patients-share-their-best-tips-and-tricks/

Thank you Kristin for the notification!!
I want to flag all of the following members, who might have in some way contributed to this discussion to form this blog. I encourage you to take a look. Can you recognize your idea?

ters1993, @coastalgirl, @ca426, @powderpuf, @lcamino, @peterm53, @cehunt57, @dglass4040, vandenberglm, @swordfish, @2011panc, @contentandwell, @dave12,
@lupedelarosa12 @skittles25 @chattykathy @cehunt57 @timfair @linda59 @eileenheart @wkary @swordfish @linmarie @maryallard @vacamrc

Hello everyone!
Today our blog post talks about your post-transplant life. Were any of you surprised by the level of follow-up care you received after your transplant or were you expecting it? We would love to hear from you on our blog today!
Have a wonderful week!
http://mayocl.in/2wCvDHs
- Kristin

@keggebraaten Kristin, my transplant center gave me a schedule of what is typical in visits after transplant. I was basically ahead of schedule in my recovery so the time between visits lengthened more quickly than for many patients. At this point I am every three months but I expect that to change tomorrow when I have my appointment with my surgeon -- September will be one year anniversary of my transplant. I haven't checked the schedule but I presume it will go to every six months at this point. I can't believe it's been that long!
JK

@contentandwell, so glad you are doing well enough to move to a lighter schedule of visits. It's great to see what everyone is accomplishing in this group. So happy for you all!