Brinsupri (aka Brensocatib)

Happy to hear this awesome news for you. And glad you have not experienced any side effects!

Would it be possible to say how long was the process from when your doctor submitted the prescription?

I signed authorization papers Thursday the 21st. Next day, I heard from Pantherx that they would send it out.

I talked to my doctor right after fda approval of brinsupri. She asked if I wanted her to start the paperwork. I said yes, and was contacted friday to talk with caseworker and coordinator. They offered me copay assistance and a pharmacist called yesterday to go over in depth my medicines, and we talked a lot about the clinical trials, continuing education, ,etc. Today I got a very thorough packet of information and am expecting brinsupri tomorrow. Hope it helps.

It has been almost a week on Brinsupri with no side effects. I'll have to watch my gums even more carefully, but so far so good. My Medicare part D covers it with the Humana Medicare Advantage. I'll send update after a month.

Any difference in the bronchiectasis?

In the Webinar today, the doctor said that the results begin showing after 4 months or so.

I wasn’t able to watch the webinar. I will be looking for the recording and posting it. Any takeaways? Thank you, Sue for explaining that the results take about four months. Would love to hear more… Linda

Took a lot of notes - on a little memo paper that was in my purse as I was listening between appointments. I will put together a new discussion tonight. Today is a garden day - beautiful weather.

FOLLOWING

Below you can find my take on the runningonair/NTMir Webinar on Brinsupri.

This talk did not cover side effects and similar information. I will keep an eye out for that info and post it here as found.

What is my takeaway? This is an exciting development, but not a cure, nor even a full treatment for Bronchiectasis.

According to Dr O'Donnell, you still need to do everything you do today - just add this drug and hopefully reduce your exacerbations. The one year results show a 20-25% reduction in exacerbations. If you have 2 per now, you may be down to 3 every 2 years. We don't know yet if results improve over time.

The cost is high, and it is not yet clear how Medicare, Medicaid and private insurance companies will handle cost sharing.

What will I do? Watch and wait - I think in my risk/benefit world, it is too far from a sure thing yet.