Why am I so tired, especially on the days I take my MAC meds?

@lilbit59 have your doctors discussed pulmonary rehab with you? Two breathing exercises helpful for shortness of breath are 1) diaphragmatic breathing, 2) pursed lip breathing. With COPD, and also asthma depending on the type of asthma you have, you likely have some degree of air trapping. Pursed lip breathing is specifically targeted at air trapping. There are a lot of resources online discussing both breathing exercises, below are a couple links discussing each.
https://my.clevelandclinic.org/health/articles/9445-diaphragmatic-breathing
https://my.clevelandclinic.org/health/treatments/9443-pursed-lip-breathing

She added sodium chloride to my treatment. No respiratory therapy or breathing exercises.

I feel so bad, I don't want to go anywhere or do anything. But I try to make myself do it anyway.

I have one. My o2 levels are usually good.

Thank you, I'll check it out. I'm willing to do just about anything at this point. I'm so tired all the time. There has to be something that will help.

Hi, I am new to this blog or section
I also am experiencing intermittent exhaustion.
I was diagnosed with Bronch about two months ago after a year and a half of almost chronic pneumonia
At first, at ucla recommended esophageal hernia surgery because they thought it might be causing pneumonia and then sinus surgery. Before, and during that time, my right upper lobe developed an abscess, necrosis and cavitation.
Initially,, I only had my right upper lobe affected but now it is right middle and lower, even after all the surgeries
My pneumonia never truly went away. It seems to wax and wane according to labs x-rays and CT scans.
I just started on Aerobica, Oscillating vest
Nebulizer and nasal lavage all twice a day along with exercise, which I’ve always done
Doing this twice a day is incredibly draining along with the fact that both of pneumonia and BE are probably contributing as well
It’s very scary because I now have progressed to having three lobes affected, and it is multifocal as well.
I still have semi me chronic pneumonia after all the surgeries which did not help at all
Will this ever get better? I am trying to be as normal as possible, and I do get some relief in between sessions of
Airway clearance in the morning and evening, but after a few hours, I am totally exhausted again
PS I was tried on a zillion. Antibiotics had two bronchoscopies and now they have decided to take me off antibiotics and just take with just do airway clearance.
Besides intermittent exhaustion, my only symptoms are a huge amount of sputum in the a.m. Dizziness and instability
Sorry for this long post, but it’s very complicated
I’ve also tried to Find out if there are specialists and or other Local patients in my area]
Andy advice or thoughts would be welcome
Thank you, Jill

PS I live in LA

Hi, I was overly tired on days I took my meds when first starting. I’d get up at 6.00am take meds and by 12 noon I was out, needed a sleep. I think it was my body adjusting to the shock of all meds. At 3 months it had improved. Not so bad. Take a nap when needed in initial stages. Best of luck to you

Thank you so much.

Lilbit59
Talk to you pulmonologist again. Do you have asthma. I have mild but there was time I had tight chest, problems breathing, could not walk without pain in the chest. After all possible cardio test and excluding heart problems and blood clot I was given symbicort, steroid long lasting inhaler and yupelri to nebulize. It was such a relief. And yes I having mac should avoid steroids but what option there is if every step is a challenge. It’s just a thought for your tired body and mind. I hope you get help you need.