1. < Heart & Blood Health

Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

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Mentor
Janell, Volunteer Mentor | @jlharsh | 1 day ago
In reply to @repathaconcerns "Thanks so much :). That was very kind of you. I'm feeling a little better. Oddly,..." + (show)
@repathaconcerns

Thanks so much :). That was very kind of you. I'm feeling a little better. Oddly, it seems the muscle relaxers that I've taken some evening seem to have some long term effects. I haven't taken Repatha for a month now. I still have back pain and leg pain, but at least it's a little more tolerable. Now my cardiologist wants me to try Praluent. (I had a very long talk with the office manager about my frustrations regarding the way this has been dealt with). Looks like myalgia is more common in that one though.

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@repathaconcerns I am glad you are able to tolerate the pain you have been having, and I hope that continues to get better.

I followed recommendations after Repatha to take a 3 month break then try Praluent as well. After one injection I was done. I don’t think I was aware of all it impacted in my body, and as time passes I am more convinced the drug is the culprit. I went in circles until finding a doctor I trusted. Then, it has taken a long, long time of an extreme level, consistent exercise, strengthening, and eating to feel better.

What do you think you will do?

REPLY
HomeAgainLA | @llynch17056 | 1 day ago

The Repatha back pain I have may be permanent as I’ve been off of Repatha for over 6 months. Just trying to feel better. I eat heathy organic foods and exercise, but I need to shift my exercise because it’s dangerously hot outside. I’m trying walking in the library (if I walk in the mall I spend money). I do yoga twice a week and trying to get myself on the treadmill (ugh) and to start resistance exercises at the gym. I don’t have any problem getting exercise other times of the year.

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Mentor
Janell, Volunteer Mentor | @jlharsh | 15 hours ago
In reply to @repathaconcerns "Hi, did your side effects subside? I got muscle pain from statins so I had to..." + (show)
@repathaconcerns

Hi, did your side effects subside? I got muscle pain from statins so I had to discontinue them. I’ve been on Repatha for a few months and my LDL has dropped to about 70. All was well and good until just over the three month mark and now I have severe body aches and pains, especially in my legs. My cardiologist doesn’t seem to believe it’s the Repatha for some reason but had me discontinue it to see if the pain subsided. My last injection was 3 weeks ago and the pain hasn’t subsided yet. I’ve tried Advil, Xanax and magnesium without any relief. I’m wondering other people’s experiences, how long it took for the pain to stop after discontinuing, and how they treated it. Thanks in advance.

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@repathaconcerns, I have a burning question…
You mention trying Xanax without any relief. What prompted you to try it? I had explained my symptoms when prompted by one doc. He left, came back and handed me a paper script for Xanax, then walked away.

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2 replies
HomeAgainLA | @llynch17056 | 12 hours ago
In reply to @repathaconcerns "Hi, did your side effects subside? I got muscle pain from statins so I had to..." + (show)
@repathaconcerns

Hi, did your side effects subside? I got muscle pain from statins so I had to discontinue them. I’ve been on Repatha for a few months and my LDL has dropped to about 70. All was well and good until just over the three month mark and now I have severe body aches and pains, especially in my legs. My cardiologist doesn’t seem to believe it’s the Repatha for some reason but had me discontinue it to see if the pain subsided. My last injection was 3 weeks ago and the pain hasn’t subsided yet. I’ve tried Advil, Xanax and magnesium without any relief. I’m wondering other people’s experiences, how long it took for the pain to stop after discontinuing, and how they treated it. Thanks in advance.

Jump to this post

It would take a month or so for statin pain to go away, but Repatha is much longer. I’m about 6 months out and am better but still have some pain, especially low back pain. Repatha gave me very intense low back pain. It’s better but still there. I hope it’s not permanent. I have been treating it with Yoga Balm.

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HomeAgainLA | @llynch17056 | 12 hours ago
In reply to @jlharsh "@repathaconcerns, I have a burning question… You mention trying Xanax without any relief. What prompted you..." + (show)
@jlharsh

@repathaconcerns, I have a burning question…
You mention trying Xanax without any relief. What prompted you to try it? I had explained my symptoms when prompted by one doc. He left, came back and handed me a paper script for Xanax, then walked away.

Jump to this post

Lord have mercy! I truly wonder about some of these doctors.

REPLY
missey | @missey | 2 hours ago
In reply to @jlharsh "@repathaconcerns, I have a burning question… You mention trying Xanax without any relief. What prompted you..." + (show)
@jlharsh

@repathaconcerns, I have a burning question…
You mention trying Xanax without any relief. What prompted you to try it? I had explained my symptoms when prompted by one doc. He left, came back and handed me a paper script for Xanax, then walked away.

Jump to this post

So your doctor is saying it’s anxiety! Honestly, I would find a new doctor so fast! That is so dismissive of him.

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