1. < Heart & Blood Health

Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

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Mentor
Janell, Volunteer Mentor | @jlharsh | 4 hours ago
In reply to @repathaconcerns "Thanks so much :). That was very kind of you. I'm feeling a little better. Oddly,..." + (show)
@repathaconcerns

Thanks so much :). That was very kind of you. I'm feeling a little better. Oddly, it seems the muscle relaxers that I've taken some evening seem to have some long term effects. I haven't taken Repatha for a month now. I still have back pain and leg pain, but at least it's a little more tolerable. Now my cardiologist wants me to try Praluent. (I had a very long talk with the office manager about my frustrations regarding the way this has been dealt with). Looks like myalgia is more common in that one though.

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@repathaconcerns I am glad you are able to tolerate the pain you have been having, and I hope that continues to get better.

I followed recommendations after Repatha to take a 3 month break then try Praluent as well. After one injection I was done. I don’t think I was aware of all it impacted in my body, and as time passes I am more convinced the drug is the culprit. I went in circles until finding a doctor I trusted. Then, it has taken a long, long time of an extreme level, consistent exercise, strengthening, and eating to feel better.

What do you think you will do?

REPLY
HomeAgainLA | @llynch17056 | 3 hours ago

The Repatha back pain I have may be permanent as I’ve been off of Repatha for over 6 months. Just trying to feel better. I eat heathy organic foods and exercise, but I need to shift my exercise because it’s dangerously hot outside. I’m trying walking in the library (if I walk in the mall I spend money). I do yoga twice a week and trying to get myself on the treadmill (ugh) and to start resistance exercises at the gym. I don’t have any problem getting exercise other times of the year.

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