1. < Heart & Blood Health

Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

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HomeAgainLA | @llynch17056 | 1 day ago
In reply to @con123 "I’m going to ask my cardiologist about betasistosterol. I was not happy with statins at all..." + (show)
@con123

I’m going to ask my cardiologist about betasistosterol. I was not happy with statins at all but suffered a year for a moderate decrease in lipids levels. Then when I quit all of it, my lipid levels dropped further over an 8 month level. Still, they wanted it under 200, so tried Repatha. Had a severe sinusitis situation, facial flushing, low back pain and injection site redness/bruising.

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Good luck. My cardiologist wouldn’t even discuss anything but statins and Repatha. Literally said that. But, my internist said he had heard of Betasistosteroil to reduce LPa.

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con123 | @con123 | 22 hours ago

Yes, I hear you. I really like my cardiologist, but his specialty is renal, so of course he wants to do a renal anteriogram, and get that number down to under 200, where it has not been since I was in my 40's and now 66. I have a calcium score of 0 and passed all tests. I'm going to have a serious talk about number vs. quality of life. I guess if I refuse his tests, I walk away. I also have an issue with labile blood pressure which upsets all the doctors I see - too high, too low, just right - I never know...

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1 reply
HomeAgainLA | @llynch17056 | 17 hours ago
In reply to @con123 "Yes, I hear you. I really like my cardiologist, but his specialty is renal, so of..." + (show)
@con123

Yes, I hear you. I really like my cardiologist, but his specialty is renal, so of course he wants to do a renal anteriogram, and get that number down to under 200, where it has not been since I was in my 40's and now 66. I have a calcium score of 0 and passed all tests. I'm going to have a serious talk about number vs. quality of life. I guess if I refuse his tests, I walk away. I also have an issue with labile blood pressure which upsets all the doctors I see - too high, too low, just right - I never know...

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I get it. I did have to walk away from my cardiologist when he said “if you don’t take statins or Repatha, then, I have nothing for you.” I said “but, I can’t take them due to extreme side effects and you are my heart doctor, so how can you say that’s all you will do?” He stuck with it. I walked away. I went through a very fearful time because my cardiologist lead me to believe I was in dire danger of death. My internist said “your weight is good, you eat healthy, your cholesterol is high but it’s been that way for 20 years and it’s stable, you exercise, you don’t drink or smoke, you’re ok.”

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1 reply
con123 | @con123 | 4 hours ago
In reply to @llynch17056 "I get it. I did have to walk away from my cardiologist when he said “if..." + (show)
@llynch17056

I get it. I did have to walk away from my cardiologist when he said “if you don’t take statins or Repatha, then, I have nothing for you.” I said “but, I can’t take them due to extreme side effects and you are my heart doctor, so how can you say that’s all you will do?” He stuck with it. I walked away. I went through a very fearful time because my cardiologist lead me to believe I was in dire danger of death. My internist said “your weight is good, you eat healthy, your cholesterol is high but it’s been that way for 20 years and it’s stable, you exercise, you don’t drink or smoke, you’re ok.”

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I had a serious talk with him and he agreed and gave me full permission to stop lipid lowering drugs and that some people cannot tolerate them. I was so relieved. He mentioned fish oil which I take and red rice yeast. Looked at my scans again and said there was only a slim chance an angiogram would show an abnormality. So I’m off the hook on that one!

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1 reply
HomeAgainLA | @llynch17056 | 1 hour ago
In reply to @con123 "I had a serious talk with him and he agreed and gave me full permission to..." + (show)
@con123

I had a serious talk with him and he agreed and gave me full permission to stop lipid lowering drugs and that some people cannot tolerate them. I was so relieved. He mentioned fish oil which I take and red rice yeast. Looked at my scans again and said there was only a slim chance an angiogram would show an abnormality. So I’m off the hook on that one!

Jump to this post

I wish my cardiologist was cooperative. He absolutely would not even suggest care without statins or Repatha. Dr. Marty Malory wrote Blind Spots which includes a chapter on how the myth of statins got started.

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