Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

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HomeAgainLA | @llynch17056 | May 17 7:34am

In reply to @valcie "What reports that Repatha has negative effects? I’ve been on it for a couple months with..." + (show)

Drugs have side effects. Some people experience them in disabling ways others do not. I don’t know why you can take Repatha and not experience side effects and others have debilitating and disabling side effects.

con123 | @con123 | May 17 7:52am

In reply to @llynch17056 "Mine are soft gels. 2 are 1,000 mg. (500 mg each). I’ve been taking two a..." + (show)

That’s close to the stated effective dose. Do you mind my asking what brand?

HomeAgainLA | @llynch17056 | May 17 8:30am

In reply to @con123 "That’s close to the stated effective dose. Do you mind my asking what brand?" + (show)

This is what I’m talking.

HomeAgainLA | @llynch17056 | May 17 8:33am

In reply to @llynch17056 "This is what I’m talking." + (show)

Here it is.

scpatient24 | @scpatient24 | May 17 8:51am

In reply to @llynch17056 "There is an obsession with “numbers.” I hate that word. EVERYTHING was LDL. Then the number..." + (show)

I understand. I went off Repatha after having severe side effects that stopped so many life activities. I waited, hoped, and prayed if I waited long enough…the effects would eventually get better. Nope! So on Nexletol (doing very well) until I see the lipids specialist. Thank you all for the information and support.

HomeAgainLA | @llynch17056 | May 17 9:36am

In reply to @scpatient24 "I understand. I went off Repatha after having severe side effects that stopped so many life..." + (show)

I’m truly happy that you don’t have side effects. ❤️Since I have had side effects with all the drugs my doctor has prescribed in attempts to lower my cholesterol and because it takes months to get back to normal, I just am not willing to continue the drug experiments. And, it wouldn’t surprise me if a few years from now they said not to take any of them. I do think we must be responsible to keep our weight down, eat fresh organic foods, exercise daily and sleep to maintain good health. And, of course, not smoke or drink hard alcoholic beverages.

These are the listed side effects for Nexketol. I’m sure I would experience that, and, what else is it doing to my body. If I die sooner, at least I will feel good, we all die sometime.
Common side effects include cold or flu-like symptoms, muscle spasms, back pain, and stomach pain. More serious side effects include increased uric acid levels, potentially leading to gout, and tendon rupture or injury, especially in those over 60 or with other risk factors. A full list of potential side effects can be found in the referenced document.

I am so skeptical about so much of this.

I have lowered my LPL LOa and raised my HPL by the life style changes and Beta Sitestrol OTC and I feel good, I’m strong and athletic. I’m 77 years old.

tcarter1908 | @tcarter1908 | Jun 4 7:46pm

In reply to @agb "I'm approaching 6 months on Repatha with no side effects. I saw something about the trials..." + (show)

I had 6 Repatha injections and had a severe allergic reaction. On May 11th, i had angioedema, then on May 12th (Mother’s Day) I had severe sinusitis. I woke up on May 13th with my soft tissue of my gums swollen, then i had severe sinusitis swelling of the tongue. I continued to Swell for another week while visiting 4 hospitals with no clinician familiar with the drug. ( Monoclonal antibodies) I have been still experiencing fatigue, while on Famotidine, Allegra and Augmentin. I’m scheduled for a specialist at the end of June. The studies for this drug was performed in China!!! Scary!

tcarter1908 | @tcarter1908 | Jun 4 8:04pm

In reply to @scpatient24 "Very interesting. Repatha made a significant difference in my numbers, but I had such significant side..." + (show)

Please be cautious! I’ve had a crappy experience with Repatha. severe angioedema 3x and nasal congestion, sinusitis and fatigue. My tongue swell and eye… Dangerous drug…

HomeAgainLA | @llynch17056 | Jun 4 8:23pm

In reply to @tcarter1908 "I had 6 Repatha injections and had a severe allergic reaction. On May 11th, i had..." + (show)

OMG!!! That is horrible!! That’s why I am not taking any of those drugs again. I am happy for those that can take the drugs without side effects, I am not one of them and I prefer to live without disabilities caused by these drugs. A shorter life? Maybe, but a good life.

con123 | @con123 | Jun 5 6:24am

I’m going to ask my cardiologist about betasistosterol. I was not happy with statins at all but suffered a year for a moderate decrease in lipids levels. Then when I quit all of it, my lipid levels dropped further over an 8 month level. Still, they wanted it under 200, so tried Repatha. Had a severe sinusitis situation, facial flushing, low back pain and injection site redness/bruising.