1. < Heart & Blood Health

Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

HomeAgainLA | @llynch17056 | 3 days ago
In reply to @valcie "What reports that Repatha has negative effects? I’ve been on it for a couple months with..." + (show)
@valcie

What reports that Repatha has negative effects? I’ve been on it for a couple months with no issues.

Jump to this post

Drugs have side effects. Some people experience them in disabling ways others do not. I don’t know why you can take Repatha and not experience side effects and others have debilitating and disabling side effects.

REPLY
con123 | @con123 | 3 days ago
In reply to @llynch17056 "Mine are soft gels. 2 are 1,000 mg. (500 mg each). I’ve been taking two a..." + (show)
@llynch17056

Mine are soft gels. 2 are 1,000 mg. (500 mg each). I’ve been taking two a day to start to be sure that I wouldn’t have any side effects. If I went up to three I’d be right in that pocket.

Jump to this post

That’s close to the stated effective dose. Do you mind my asking what brand?

REPLY
1 reply
HomeAgainLA | @llynch17056 | 3 days ago
In reply to @con123 "That’s close to the stated effective dose. Do you mind my asking what brand?" + (show)
@con123

That’s close to the stated effective dose. Do you mind my asking what brand?

Jump to this post

This is what I’m talking.

REPLY
1 reply
HomeAgainLA | @llynch17056 | 3 days ago
In reply to @llynch17056 "This is what I’m talking." + (show)
@llynch17056

This is what I’m talking.

Jump to this post

Here it is.

REPLY
scpatient24 | @scpatient24 | 3 days ago
In reply to @llynch17056 "There is an obsession with “numbers.” I hate that word. EVERYTHING was LDL. Then the number..." + (show)
@llynch17056

There is an obsession with “numbers.” I hate that word. EVERYTHING was LDL. Then the number considering LDL HDL and triglycerides. Then LPa. Then the “ratio” considering LDL/LPa. Sometimes I think we are all guinea pigs. They tell us to take a drug then tell us it’s bad and to stop. Meanwhile, the side effects cause loss of enjoyment of life. Most of the Repatha side effects are now gone after MONTHS. I am feeling strong again and doing my activities, EXCEPT, Repatha caused me extreme low back pain that remains. It makes me wonder if it caused permanent damage to those nerves. Right now I’m just going with weight, exercise, diet, sleep. My “numbers” have improved. My internist said “you are good.”

Jump to this post

I understand. I went off Repatha after having severe side effects that stopped so many life activities. I waited, hoped, and prayed if I waited long enough…the effects would eventually get better. Nope! So on Nexletol (doing very well) until I see the lipids specialist. Thank you all for the information and support.

REPLY
1 reply
HomeAgainLA | @llynch17056 | 3 days ago
In reply to @scpatient24 "I understand. I went off Repatha after having severe side effects that stopped so many life..." + (show)
@scpatient24

I understand. I went off Repatha after having severe side effects that stopped so many life activities. I waited, hoped, and prayed if I waited long enough…the effects would eventually get better. Nope! So on Nexletol (doing very well) until I see the lipids specialist. Thank you all for the information and support.

Jump to this post

I’m truly happy that you don’t have side effects. ❤️Since I have had side effects with all the drugs my doctor has prescribed in attempts to lower my cholesterol and because it takes months to get back to normal, I just am not willing to continue the drug experiments. And, it wouldn’t surprise me if a few years from now they said not to take any of them. I do think we must be responsible to keep our weight down, eat fresh organic foods, exercise daily and sleep to maintain good health. And, of course, not smoke or drink hard alcoholic beverages.

These are the listed side effects for Nexketol. I’m sure I would experience that, and, what else is it doing to my body. If I die sooner, at least I will feel good, we all die sometime.
Common side effects include cold or flu-like symptoms, muscle spasms, back pain, and stomach pain. More serious side effects include increased uric acid levels, potentially leading to gout, and tendon rupture or injury, especially in those over 60 or with other risk factors. A full list of potential side effects can be found in the referenced document.

I am so skeptical about so much of this.

I have lowered my LPL LOa and raised my HPL by the life style changes and Beta Sitestrol OTC and I feel good, I’m strong and athletic. I’m 77 years old.

REPLY
View MoreView Less
Please sign in or register to post a reply.