NAFLD (nonalcoholic fatty liver disease): Want to connect with others

Posted by mydogsbestfriend @mydogsbestfriend, Dec 11, 2023

I’m looking for anyone dealing with fatty liver

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@rllh5403

I have NAFLD. My mother died of cirrhosis of the liver (NAFLD). I lost a nephew to a liver disease, but he had a liver transplant and died a year later. Now his sister, my niece, has cirrhosis. Obviously, genetic. I am overweight, have high cholesterol and just found out my glucose is 176. I am under Dr. care; she has recommended more blood work. My liver enzymes are up too. I research a lot. I read there are certain supplements you should not take if you have NAFLD, but it didn't specify which ones. Does anyone know what they might be? I am taking Milk Thistle. I'm also curious about green tea. Is it good for NAFLD. I read one place it is and another that it isn't.

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I supposedly have NASH. Or NAFLD. My doctor doesn’t seem too concerned, I think, because my lab results had been just over the ‘normal range’. I am female, nearly 78, overweight by < 10 lbs ( it fluctuates). Prediabetic but again numbers are just over the recommended range. My last physical was in November & the lab values were stable (ie didn’t go up) so I’m not sure if I should be worried. Unfortunately my primary MD now works 3 days a week so I was seen by a PA. The previous year my MD said lose some weight ( I did but it fluctuates (depends on what I eat). No bread etc my weight goes down fast. I started taking milk thistle and drink more green tea, 1 cup of low caffeine coffee ( only in cold weather); I am going to start drinking buckwheat tea ( yes I never heard of it either so I hope I like it). I only take levothyroxcin & Amlodopine low doses . B12, Lutein with no zinc. No other vitamins, my doctor says get your vitamins from real food. My next physical isn’t until December so I have a few months to lose 10 lbs & see if the tea etc have any effect. I do think the milk thistle brought my enzyme numbers down. Good luck

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I imagine you are really concerned, but you are also in a good place knowing and having a doctor who is being proactive. She no doubt will have more recommendations for you as more is learned about your unique situation. It sounds like getting your weight, cholesterol and blood sugar down are your priorities. Good news, too that science is pretty sound about some basic things that will help.

I did a quick search and found recommendations that are go-to’s. They are the best bang for your buck as far as where to focus, proven to help the liver. Maybe try them first as you learn more about what your further testing indicates.
-Eat a healthy diet rich in fruits, vegetables, whole grains and healthy fats.
-Limit alcohol, simple sugars and portion sizes. Avoid sugary drinks, alcohol can damage your liver.
-Keep a healthy weight.
-Exercise. Be active most days of the week.
https://www.mayoclinic.org/diseases-conditions/nonalcoholic-fatty-liver-disease/symptoms-causes/syc-20354567
This is a lot for you to take in right now. How are feeling about it? I am cheering for you, that you are able to gradually tweak your diet and exercise routines, get this turned around.

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@mydogsbestfriend

I supposedly have NASH. Or NAFLD. My doctor doesn’t seem too concerned, I think, because my lab results had been just over the ‘normal range’. I am female, nearly 78, overweight by < 10 lbs ( it fluctuates). Prediabetic but again numbers are just over the recommended range. My last physical was in November & the lab values were stable (ie didn’t go up) so I’m not sure if I should be worried. Unfortunately my primary MD now works 3 days a week so I was seen by a PA. The previous year my MD said lose some weight ( I did but it fluctuates (depends on what I eat). No bread etc my weight goes down fast. I started taking milk thistle and drink more green tea, 1 cup of low caffeine coffee ( only in cold weather); I am going to start drinking buckwheat tea ( yes I never heard of it either so I hope I like it). I only take levothyroxcin & Amlodopine low doses . B12, Lutein with no zinc. No other vitamins, my doctor says get your vitamins from real food. My next physical isn’t until December so I have a few months to lose 10 lbs & see if the tea etc have any effect. I do think the milk thistle brought my enzyme numbers down. Good luck

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Well if I was your Dr. I'd say you are in good shape, but I'm not a Dr. However, my liver Dr. told me not to drink green tea bc it could make my liver enzymes go up. But I've read the coffee is really good for fatty liver disease; I just don't like coffee. If you are within 10 lbs of your ideal weight, I think that's great. I need to lose 30-40 lbs at least. If your enzymes are just slightly elevated, I wouldn't be too concerned either. My cholesterol and glucose is also high. If I could lose the weight maybe I could kill 3 birds with one stone. Hang in there.

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@rllh5403

Well if I was your Dr. I'd say you are in good shape, but I'm not a Dr. However, my liver Dr. told me not to drink green tea bc it could make my liver enzymes go up. But I've read the coffee is really good for fatty liver disease; I just don't like coffee. If you are within 10 lbs of your ideal weight, I think that's great. I need to lose 30-40 lbs at least. If your enzymes are just slightly elevated, I wouldn't be too concerned either. My cholesterol and glucose is also high. If I could lose the weight maybe I could kill 3 birds with one stone. Hang in there.

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Same story here

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@susanjane77

I recently have a CT for my IBS. I was told that I have nonalcoholic fatty liver. Has anyone been diagnosed with such? I am not obese, diabetic but do have hypothyroid and high cholesterol. Seems they are somewhat of a cause. Yet, my blood work states my liver is just fine.
Any insight would be greatly appreciated. Thank you.

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When in doubt go to Mayo Clinic. I went to Cleveland Clinic bc that was the closest for me. Then there's Vanderbilt too. I couldn't get a diagnosis for another illness I have and Cleveland Clinic diagnosed it (over the phone) with a follow up to do the actual test. It was during Covid and they had to postpone my appt to a later date. But the neurologist called me and questioned me for about an hour. My Humana insurance paid every dime except travel and motel of course.

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@misssuezq

I had a liver biopsy and was diagnosed with NAGLD. A few years later I had a liver biopsy that showed no NAFLD.

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Was your liver biopsy painful? Did they sedate you?

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