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Anyone been prescribed Ohtuvayre (new med)? Your experience?
Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work
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Good for you! Are you on oxygen? How do you swim if you are? Pushing yourself is not always a good thing with COPD. It's important to know your limits and when it's time to take a break and rest. I also have a-fib so pushing needs to be limited.
It is true that the more you do, the mote you CAN do. I just came back from a trip to DC, NYC and SF. We had a nice time and I’m still healthy after all our travels—Yay! I enjoy seeing loved ones and that’s one of my main incentives for travel.
Pulmonary rehab is an excellent option—ask your MD if you can be referred to a great in person or virtual program. The program should provide education and help you develop a custom exercise program!
Unfortunately I have not heard many, if any positive outcomes with the use of Ohtuvayre! So much hype but not power packed. Ohtuvayre was developed to help those with COPD with a CB phenotype (chronic bronchitis) so not appropriate for COPD without bronchitis. I started Dupixent in November 2023 and had great results with it for about 5 months, significantly decreased secretions. Have tried literally everything with little success in secretion management. Finally, my treatment team thought perhaps I should see an Allergist/pulmonologist. Hopefully, we will find a reason that the Dupixent effect waned - antibody formation, maybe. Just started Daliresp at 500 mcg today so am giving that a try. Keeping my fingers crossed!
Not on oxygen yet, and indeed you are correct. I did not mean to give the impression that I pushed as hard as I could. Actually I know my limits and I try to abide by them.
That’s for your response.
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2 ReactionsYes. And to been wonderful for me
3 months now. Can breath so much better.
I'm having the same problem and only been on it for 4 days, I spoke with my Dr, he would like for me to start taking it again at 8am and 8pm until I see him on Tuesday.
I have used it for 2 months now but am not seeing much for results. We (my husband and I) decided I'd stay on it for 4-6 months to see if that changes. If not, I am stopping as it is so expensive.
Unfortunately my insurance won't pay for genetic testing. Through a gifted genetic test I learned I had one allele for cystic fibrosis. The company tests for more "popular" health issues such as breast cancer but not for COPD issues.