Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

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@colleenyoung

Hi @agnes01, I just want to say welcome. You're so right that not knowing the future can create a lot of anxiety. Glad you came here to learn with others. Things will change, always. Your biggest challenge is adapting to those changes. But you're not alone.

When a new frustration, complication, or behavior leads to you asking questions, now you have a place to find answers, share or just plain vent.

How are you and your husband doing today?

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Hi Colleen, thank you for your kind words. We are doing fine. I am getting over the flu and my husband is busy with the newspaper. I am learning to take over the paperwork and some other things. One of the biggest is expectations. I know there are times he may remember and times he will have a blank stare. Thankfully he is almost always in a good mood and does not get upset with himself. My regards and thoughts are with you and the others in this group.

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@centre

If you want to try, the alone time I found was to set my cell phone alarm on low volume on the bedside table next to my head and set it for a time that I knew I would have at least an hour before he normally woke up. I’d slide carefully out of bed, tiptoe to the door, gently ease it open and closed, go to the bathroom, then go make coffee, which I would enjoy in a chair next to a window and use my I-pad to read a newspaper, do a puzzle, read the daily e-mailed Guideposts- whatever felt relaxing.
Ya gotta do what ya gotta do 🤣😂

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I usually get up around 6. Often my husband does, too, but other times he sleeps in. But he also goes to bed early—generally around 7:30 or 8—and I stay up until around 10:30 reading. I really look forward to those quiet hours before I lie down. I usually sleep just fine and that might be part of it—although my taking the occasional "chill pill" (doctor prescribed) probably helps, too. 🙂 I know some people need time on their own with other people than the one they're caring for, but some of us really just need the alone time.

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Yes. I have the same feelings. My husband is 60 and was diagnosed with mci at 59. It breaks my heart. We had plans for retirement but some of that is on hold.

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I just googled "spouse with cognitive decline" and found this site. I relate to so much I'm reading! My husband has various serious health issues that have been ongoing for approximately 5 years and, after noticing several changes in him, I talked to our doctor. She referred us pronto to a memory care doctor who diagnosed mild cognitive decline. He is normally stubborn and can be difficult, this makes it worse. 🙁 I get so very frustrated with him. At the moment, he is insisting on doing our taxes - which I made clear I don't think it's a good idea and want to get a tax accountant. He won't hear of it - he wants to prove to himself he can still do it. He has been hospitalized twice in the last 6 months so physically he is still not his best - which exacerbates his mental health. I'm tired of the arguments, the nastiness, the wanting his own way (at my expense!). How does one cope with this daily?

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@maryb86

I just googled "spouse with cognitive decline" and found this site. I relate to so much I'm reading! My husband has various serious health issues that have been ongoing for approximately 5 years and, after noticing several changes in him, I talked to our doctor. She referred us pronto to a memory care doctor who diagnosed mild cognitive decline. He is normally stubborn and can be difficult, this makes it worse. 🙁 I get so very frustrated with him. At the moment, he is insisting on doing our taxes - which I made clear I don't think it's a good idea and want to get a tax accountant. He won't hear of it - he wants to prove to himself he can still do it. He has been hospitalized twice in the last 6 months so physically he is still not his best - which exacerbates his mental health. I'm tired of the arguments, the nastiness, the wanting his own way (at my expense!). How does one cope with this daily?

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@maryb86 Welcome to Mayo Clinic Connect ! I think that all of the discussions in this support group will be able to answer your questions. If you scroll up to the top, left side, you will see ‘Caregivers Dementia’ in blue words. Tap on it and it will bring you to one of the pages of topics/discussions. This list will go on forever. See what you may like. Click on any and become part of the discussion!

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@maryb86

I just googled "spouse with cognitive decline" and found this site. I relate to so much I'm reading! My husband has various serious health issues that have been ongoing for approximately 5 years and, after noticing several changes in him, I talked to our doctor. She referred us pronto to a memory care doctor who diagnosed mild cognitive decline. He is normally stubborn and can be difficult, this makes it worse. 🙁 I get so very frustrated with him. At the moment, he is insisting on doing our taxes - which I made clear I don't think it's a good idea and want to get a tax accountant. He won't hear of it - he wants to prove to himself he can still do it. He has been hospitalized twice in the last 6 months so physically he is still not his best - which exacerbates his mental health. I'm tired of the arguments, the nastiness, the wanting his own way (at my expense!). How does one cope with this daily?

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Hello. Welcome to the group.

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It's not wise to let him do the taxes. Can you let him fill out the forms then take everything to a tax accountant? My husband used to manage our checkbook but I had to take it away after his diagnosis. Don't argue about it, just do what is best for your finances.

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@maryb86

I just googled "spouse with cognitive decline" and found this site. I relate to so much I'm reading! My husband has various serious health issues that have been ongoing for approximately 5 years and, after noticing several changes in him, I talked to our doctor. She referred us pronto to a memory care doctor who diagnosed mild cognitive decline. He is normally stubborn and can be difficult, this makes it worse. 🙁 I get so very frustrated with him. At the moment, he is insisting on doing our taxes - which I made clear I don't think it's a good idea and want to get a tax accountant. He won't hear of it - he wants to prove to himself he can still do it. He has been hospitalized twice in the last 6 months so physically he is still not his best - which exacerbates his mental health. I'm tired of the arguments, the nastiness, the wanting his own way (at my expense!). How does one cope with this daily?

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I was in the same boat with the taxes and this is how I worked around it. I told my husband that he needed to have the taxes done and filed by a date certain….and if he missed that date, I was going to make an appointment with HR Block. He agreed.

Well, 3 weeks went by and he had made NO efforts to do them. So I told him, we’re getting close to the deadline. I am going to go on-line to make an appointment with HR Block “just in case.”He agreed. HR Block assigned us a Tax Advisor and we were encouraged to start uploading documents in advance of our appointment….but had still not committed to having HR Block prepare them. And then our Tax Advisor said, “I have everything I need. Can I start preparing your returns.” At this point, I did NOT consult my husband and simply said to the Tax Advisor, “Go ahead.” I then waited until my husband was in a good mood and relaxed later in the evening and said “Hey! HR Block said that they have everything that they need from us and can prepare the return and we can just review and sign it at our scheduled appointment. It seems so easy so I just told him to go ahead,” And my husband agreed!

I actually think that my husband knew that he would have trouble preparing our tax returns but was too proud to admit it….and I gave him an easy way to hand off that responsibility to someone else. Just a suggestion to see if it can work for you,

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@alwayda

I was in the same boat with the taxes and this is how I worked around it. I told my husband that he needed to have the taxes done and filed by a date certain….and if he missed that date, I was going to make an appointment with HR Block. He agreed.

Well, 3 weeks went by and he had made NO efforts to do them. So I told him, we’re getting close to the deadline. I am going to go on-line to make an appointment with HR Block “just in case.”He agreed. HR Block assigned us a Tax Advisor and we were encouraged to start uploading documents in advance of our appointment….but had still not committed to having HR Block prepare them. And then our Tax Advisor said, “I have everything I need. Can I start preparing your returns.” At this point, I did NOT consult my husband and simply said to the Tax Advisor, “Go ahead.” I then waited until my husband was in a good mood and relaxed later in the evening and said “Hey! HR Block said that they have everything that they need from us and can prepare the return and we can just review and sign it at our scheduled appointment. It seems so easy so I just told him to go ahead,” And my husband agreed!

I actually think that my husband knew that he would have trouble preparing our tax returns but was too proud to admit it….and I gave him an easy way to hand off that responsibility to someone else. Just a suggestion to see if it can work for you,

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Many thanks for sharing. Please give me details of how to reach & make appointment with HR Block for my Taxes? We live in Baltimore. Please help as soon as you can. Thanks, ksl.

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Dear Friends: Thanks for sharing. Kindly give us the details of how to make appointment with HR BLOCK for preparing our Taxes . We live in Baltimore; is there any recommendations for reaching agent similar to HR Block in Baltimore areas? Thanks in advance, ksl.

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