Anyone been prescribed Ohtuvayre (new med)? Your experience?

Posted by kdalda75 @kndaustin71, Oct 18, 2024

Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work

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hicopd | @hicopd | Mar 8 11:09am

In reply to @csv "Is anyone taking Ensifentrine (Ohtuvayre) for copd?" + (show)

For some reason, Rx delivered by nebulizer are part B medicare while other Rx are part D.

marczappa | @marczappa | Mar 8 11:26am

Started it yesterday. I called the company and pharmacy. The residue looks like soap bubbles and is natural. Not clumpy solid.

hellopam | @hellopam | Mar 8 11:57am

In reply to @pamelaaci "The white clumps will easily dissolve if you shake the plastic ampule back and forth and..." + (show)

I've done that but I'll try again. Thanks.

parpro2 | @parpro2 | Mar 8 12:50pm

In reply to @hellopam "I have tried warming it in my hands and that doesn't help. The clear liquid does..." + (show)

Verona is the manufacturer. A specialty pharmacy sends you the medication. Contact them. Try to speak with their pharmacist or customer service. Not Verona.
Also a lot of assistance available for payment. You could also check that with the specialty pharmacy.

hellopam | @hellopam | Mar 8 1:16pm

In reply to @hicopd "For some reason, Rx delivered by nebulizer are part B medicare while other Rx are part..." + (show)

Let's keep things as complicated as possible! Geez...

hellopam | @hellopam | Mar 8 1:21pm

In reply to @parpro2 "Verona is the manufacturer. A specialty pharmacy sends you the medication. Contact them. Try to speak..." + (show)

I understand that but the 'bridge' package came directly from Verona. CVS is the Specialty Pharmacy that will send future refills but they would not speak with me since I did not get the product from them. Not happy about that.

I'm aware of a couple of financial assistance programs - applied for both. Have been approved for one. So, good news there!

pamelaaci | @pamelaaci | Mar 8 7:06pm

In reply to @marczappa "Started it yesterday. I called the company and pharmacy. The residue looks like soap bubbles and..." + (show)

Should be fine. Am sure the different temperatures around the country cause that.

parpro | @parpro | Mar 8 8:36pm

In reply to @hellopam "I understand that but the 'bridge' package came directly from Verona. CVS is the Specialty Pharmacy..." + (show)

Best of luck to you! Hope it works for you. I’m gonna try Dupixent next

darlenec | @darlenec | Mar 15 6:52pm

In reply to @kndaustin71 "Not sure that I understand what you mean by "you crashed." But do hope all is..." + (show)

Hello, I also had issues with Delaresp. I was on that for over a year and was in the bathroom a whole lot. Now they put me on this medicine OHTUVAYRE. I’ve only been on it for three days and I can’t catch my breath. I hadn’t been on it that long but I don’t see where it’s helping any it seems to be hurting me more than anything else so I stopped taking it and I will call my pulmonologist Monday morning

parpro | @parpro | Mar 16 2:29pm

I was on it for about 6 weeks. Thought I would give it 3 months- but saw no results. Possibly worse. So I too recently stopped. Now waiting for Dupixent. But not optimistic about that either. Something to do with blood.
Hate this quality of life. Feeling discouraged b