Help - I am burned out and dealing with someone who is stubborn
My husband has a history of COPD and asthma. He has used every inhaler that is available and same with the drugs, which is claims to have problems with all of them
For the last two months it has been awful. We seem to be at the ER and doctor every few days. Last time at doc was Friday. He was given an antibiotic. This morning, I ask him how his lungs are doing and he tells me fine. I figured this because for the last two months or so all he does is go around honking, deliberately, up stuff and looking at what color it is. Trust me, I have the kleenex all over that I keep picking up. He is OBSESSED with the color - is it green, is it gray, is it clear. This even though the doc on Friday told him that color doesn't matter.
Now he is back on the phone for another doc. apt. His lungs, which were fine just an hour ago are now "all clogged up" and he is honking (generally becauses he keeps trying to) and he feels awful.
I must say, this shocked me as he just told me he was getting better.
Anyway, I can not clean around the house and he is b*tching that because of the house his lungs are bad. BULL. I do not use any strong chemicals. I generally use vinegar and water to clean floors, I dust weekly. NOW, though even vinegar bothers his lungs, so he claims.
The final straw for me came this weekend after it had rained several days. He walked outside and, oh his lungs were bothered. Why you ask, Because of the smell the air gets after it rains! This is not about pollen, etc, but just the earthy smell that comes after a good rain. At this point I am having my doubts.
I cannot tell you how many differnt doctors we have been to. Two weeks ago he told me to be ready to take him to the hospital, that didn't happen. Now he is sitting there telling me he is gonna die!
I just don't know what to do.
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Hi. Please accept my condolence. Yes, I’m sure that he is in a better place even to this day. I sense that you have some peace of mind. I hope that you continue to do well and I just want to say that you did the very best you can for him. I wish that you do the same for yourself. Take care.
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2 ReactionsOh Denise, I’m so sorry for your loss! It was a comfort to know he was getting the meds and pain care he needed at the hospice house to ease his discomfort. That’s the final gift of dignity we can give our loved ones. Knowing what a difficult time this is, my thoughts and prayers are with you and your family. Gentle hug…
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2 ReactionsI hear your frustration and underlying fear that you aren't doing enough. You are. The old adage "you can take a horse to water, but you can't make him drink" can be applied here. Hydration is so important; lack of it leads to UTI's. My husband suffers from ALZ is now in a Memory Care Facility. I visit daily and bring him a container of ice water with a straw and a small bag of potato chips. The chips make him thirsty, so he'll drink his water. Is it enough for the day? No. But it makes me feel like I've had a small win. He had a fall, broke his hip, and had to be in rehab. All of these setbacks caused him to lose more and more weight. With ALZ, his essence is long gone, but now I see him physically shrinking before my eyes. Think about tiny snacks like you would have for children. For example, cut a banana horizontally in half and slather with peanut butter. Put the halves back together and cut it into chunks. Freeze them to pop out for a snack. Little portions often work better. Vent away. It is essential for your mental health. I vented and shared on this forum for many months when I was caretaking for my husband at home. Reach out to those who have walked your walk. You are treading water and need a lifeline.
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6 ReactionsThanks for responding. Glad that you understood my venting. But now my venting has turned into grief as my husband passed away on Sunday the 23rd. I knew it was coming soon. I took him to a good samaritan house which is part of hospice last wednesday and he passed sunday. But it was a wonderful place and he got the best care he could get. I think my husband weighed about 75 pounds if that when he passed. He suffered so much that I wish they could have gotten him in that place long before this. But I know he wouldn't have went. He did not want to go last week, but we told him it would only be for 3 days and that it would be a break for me. That is why he agreed to go. To give me a break. Little did he know that he would not be back. But at least he was no longer suffering and he was at peace. Now I grieve, then I feel relieved and then I feel guilty for feeling relieved. But like you said, I watched him fading away day by day. He kept falling and I could not always pick him up and I knew that I could not give him the care he needed. It was so hard to see him in that much pain but now he is at peace.
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4 ReactionsThank you so much. Yes, he did not suffer. For which I am very grateful, but he suffered a long time and he tried to fight it but the cancer got the best of him. Thank God he is at peace now.
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3 ReactionsI am very sorry for your grief and loss. Your emotions are quite normal and expected. In my case the advice do not doing anything for a year at least was not wise for me
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2 ReactionsLet me offer my condolences. I hope you will find peace in knowing you did all you could do. Your husband knew he mattered and was loved. That is what we all want in this world. You matter too. I have been in a grief support group which I highly recommend. Sharing is the best way to find steady ground again. Clearly, your husband loved you and wanted to give you a break, so he would want you to go forward with your life. Take some time to regroup, but then start saying "yes" to things you never thought you'd enjoy. It is OK to have fun again; find what makes you happy and do it. You can do this. Women can do hard things.
A big hug to you.
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5 ReactionsThanks so much for reaching out. I think I will look into a grief support group. I just feel kind of numb now, wanting to sleep alot, but I know this will pass in time. Thanks again.
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2 ReactionsThank you. Right now I don't feel like doing anything but it has only been a week. But I am sure I will be back to doing things before a year. Just sitting here alone with my two dogs won't be healthy for me in the long run. I guess we all handle it in the best way we know how.
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4 ReactionsDenise, please accept my condolences. I know that is a difficult time for you and your family but you and hospice took great care of him. May his memory always be a blessing to you. God bless you and give you strength, comfort and peace as you go this
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