Living with Neuropathy - Welcome to the group

Hi Colleen and everyone, thanks for the warm welcome. I posted my own intro under another related heading last week. I look forward to reading more about you all and see what tips you have and what you’re dealing with.

In a nutshell, since I elaborated in my other post, I’ve had post-surgical neuropathy for over 2-1/2 years. I’ve found things that have helped, dramatically (SCENAR therapy) and in smaller but significant ways (certain lotions and an ointment, I name in my other post).

A couple things I didn’t mention in my intro were OOFOS recovery sandals, my runner husband knew of them and got them for me for Christmas. They’re amazingly comfortable to wear around the house or stand in for longer periods. Also, I’m now bombarded with neuropathy product ads on social media. I’m vetting some and wearing some comforting bamboo compression socks now by onecompress. They relieve some discomfort.

Has anyone tried a grounding pad? I ordered one but haven’t received it yet. I’ll keep you posted.

Wishing you all some relief,

Gail

I had a spinal cord injury that caused paralysis. My C4 and five discs in my neck were surgically replaced, and although I’ve regained most of my motor functions from my surgical incision to my toes, I experience neuropathy. There’s no part of my body that doesn’t experience numbness, pain, weakness, and tightening of the muscles to varying degrees. Yesterday I attended a seminar on stem cell therapy from a company named National Wellness Center out of Scottsdale Arizona. I can provide the address if anyone’s interested my question is has anybody received this Therapy in this group that may have a similar experience I’m looking to connect with people who have had results from these therapies. I can’t cover the cost because there’s no type of insurance that covers this. I’m on Medicare and have no other income, but I am seeking some sort of supplemental income so I wouldn’t be able to do anything for at least a year I’m trying to decide whether or not it’s worth the effort to seek out this Therapy as my energy is low or should I just accept things the way they are. I’m looking for any information that could help me make my decision so I can decide where to invest my energies.

@jasonwalls Welcome to Connect. I know there has been hype about stem cells curing spinal injuries, and patients have turned to unproven therapies. I wish to share with you this information about research with stem cells and spinal injuries with Dr. Bydon at Mayo. He is a neurological surgeon at Mayo Rochester.
https://newsnetwork.mayoclinic.org/discussion/study-documents-safety-improvements-from-stem-cell-therapy-after-spinal-cord-injury/

My name is Rosemary Gaskell and i live in Massachusetts. I have recently recovered from Polymyalgia Rheumatica, an autoimmune illness. Today, my first full physical since recovery, I find that I also have stage 3 kidney disease. This was a shock. The only symptom I have is itching in odd places. No swollen legs or ankles, no weight loss or gain, no high blood pressure. In sort, apart from Kidneys I am in good health for an 80 year old. I had complete kidney failure as a 4 year old, which confounded doctors as I should have died but survived just to fool them. No problems since.

This has hit me hard and I don't know how to cope right now. My last sibling died last year and I have limited people to discuss this with. I am hoping this group can give me some idea of a path to start on to live as long as I can. Many thanks

I have not explored taking Vitamin B12 but many swear that it is life changing. Ask your health care giver if that would help you

Good evening, @kimberly812 ~
I am really sorry to read of the fatigue that is robbing you of the joy you get from spending as much time as you'd like on your photography. It's such a rewarding hobby/pasttime. I can totally relate to the daily fatigue. I take Pregabelin and Tramadol for PN pain, and also other Rxs for unrelated conditions, and Zolpidem (Ambien) for sleep. Like you, I've had PN for over 20 years, and for at least the past 10 years, have also suffered from daily fatigue, even though I sleep very well, though not often over 6 hours/night. I'm convinced that many diseases, but especially those where our energies are spent fighting pain, have to deal with the fatigue that results. I'm almost 78, female, but don't like having fatigue to this degree. You're not alone! Peace to you,
~ Barb