Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

highoctane12 | @highoctane12 | 1 day ago

Hi, I developed a condition called erythromelalgia mid COVID. Spent a year on the medical merry go round diagnosing. Along with the condition I also deal with neuropathy, mostly when I have my feet elevated because of the erythromelalgia. I have found that trying to eliminate sugar as best I can, along with a compound of amitriptyline and ketamine applied twice daily has helped immensely.
Thanks for listening