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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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Well, we speak the same language, because I understood it all. I remember having the ‘rocks’ in my shoes. Seems like 3-4 years ago. And, not sure if I had socks on or not. Then weird sensations in my feet and ankles at night, starting about a year ago. This summer, I didn’t feel balanced when I walked. Bought Hoka shoes. Helped until it didn’t. And, now numbness in both feet, left foot worse; don’t feel anything under that foot at times. Started with my primary doctor. She said take B12. Got a a bit worse and got a referral for neuro. Blood work and nothing to be done. Cannot cure numbness. Gave me lopoic acid. I started using a cane about 2 weeks ago. Still slip-sliding away. Last week, a podiatrist took a look at the feet, a few questions, a quick poke with a pointed tool, and said nothing to be done. He said I should not have let myself become dependent on the cane. 🤔 I slipped several times getting into the building, with the cane. And, today I just put two walkers together. Much safer feeling, legs still feel heavy but moving better and faster. Left foot feels stuck, when I can actually feel it, and stays a bit behind. The stairs are a nightmare and I’m getting myself together to just move downstairs. Getting up and down the stairs, hardest part of my day. I’m sorry to hear you have pain. I have been reading people are given gabapentin and it does not work for most. I haven’t read too much that’s encouraging, but I am taking the supplements. Adding B6 and B-complex per podiatrist. Haven’t been on anything long enough to gage if it helps. What has helped a bit….I do use a foot massage machine and a recumbent bike. Massage my feet with lotion with menthol. Wear my old Sketcher's inside the house now. I haven’t had any pain really. Except for the ‘rocks’, I just went right into numbness and quickly needing a cane. I haven't really accepted it, because the numbness progressed so fast. I can drive. Right foot is much better. Just cannot get out like before. Maybe I’ll try once I break in the walkers.
I hope you can continue to move a bit with a walker. I’ve ordered a portable elliptical machine, to pedal from the couch. Ha! Anything that makes the blood flow. I come on here a bit everyday. Only people who understand what we are going through. Best wishes to you and thanks for sharing.