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Fibromyalgia pain: Let's connect
Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo
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I am so sorry...Did you get any of my message? Please let me know. I must be hitting a key that is sending before I want to send.
Hope you get your pain referral.My Dr put a referral in for me ,haven't heard yet.
I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.
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1 ReactionSorry, but that was not me. You better check further on this. I also wrote the person an email and told them it could not be done. I honestly think it was someone just playing with us. Of course that is illegal. Please check the messages as I don't want anyone to think that was me.
Amen. I remember the women who was successful in Oregon to bring the Bill to the State lever on Marijuana. She was in pain every minute of her life. How she did it and worked thru a about 4 years of people saying no, is beyond me. She was a saint. Eventually, she won her fight. Probably not remember by many that it was her in pain fighting for all of us.
Gail, Thank you for your suggestions. I do not suffer from fear.. I have no fear of anything - really. By my age, what can frighten me. I do not like rude people. I too treat people with respect. My doctors are my lifeline and are great. But, their hands are tied by the laws. I was diagnosed with RA about 15 yrs ago. It was not bad at that time. I was able to keep working (which no way could I do now.) I always had a pain mgt doctor. He used injections and pain meds and I was sailing thru life But, any help was shut down over the last few years by the laws that have been passed by well meaning people. If my children had used drugs, they know it would not please me. The parents who did not disapline their children and guide them in the way they should go have produced many drug addicts.
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1 ReactionI was voted to be the most positive person in our office. I did not show the disappointment I felt at times. However, now that I am in full blast RA, of course I get down. But, I am never to far down. What good does it do to be depressed around your loved ones. They will help you as long as your receive their help in good spirits. If you get down, just remember how Jesus Christ suffered much more than we do. That alone keeps me going.
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2 ReactionsGale, I am so happy that you never see or experience disrespect. All I did was make a call. She was on me immediately. We can't take you. At that point whatever she said, I could hardly hear. She talked down to me. I never had a chance to talk. I wish I had all the positive people in your life, in my life. I would be lying if I said that RA does not put me in a position of hightened upset. I just want to feel like I did before this horrible disease came on me. At first, the doctors diagnosed me with FM and soon, they went to RA. I have tried for years to deal with the negativity of pain drugs. And, please find that person who wrote the note about printing her own scripts. It as not me. How would anyone be able to do that. That is what I asked her. I wish I would have kept the note. But, I am sure you can find it
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1 ReactionI have two referrals and all tests including x-rays. I just have to wait for my doctor to refer and not leave it up to me.
Parus...you affect many in your life. God promises we will have no pain and no tears In our Home to come. God did not give us this disease but I am sure He knew we would support each other. As bad as I feel, God created me and You. He does not make junk. I pray for both if us.