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Fibromyalgia pain: Let's connect
Fibromyalgia | Last Active: Feb 26 8:41pm | Replies (1327)Comment receiving replies
I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.
Replies to "I would love to come to Mayo. However I am seeing my doctors at the University..."
My state of mind is PLEASE GOD TAKE THIS PAIN AWAY. I just got a text from my drs office and I have been approved to have an appt with Pain Mgt. Thank God. By the way, Gail...Do you have RA? If you do, you will understand most of the statements made on here.
Sorry Gail....I doubt I will be posting here any longer.
Congrats! I hope the pain doc will be able to help you! Even if it is for a couple of months at a time, it is a blessing!
Good luck!
Great you will get some relief now ,pain Dr,s work wonders for us
@oregongirl I don't have RA. My best friend and another friend of mine both have RA. I don't know how you feel, I only know what my friends go through when they are having flares. I know there are different kinds of RA, and my one friend has been through many surgeries on her hands and feet to just make her pain somewhat less. She has suffered greatly, except that for the past few years she has been in remission. Her doctor found a medication that is working for her. She's 73 years old and has been on disability since her early 40s.
I'm wondering why you're not going to be posting here anymore? I know this thread is for fibromyalgia, so I'm hoping you have found the RA posts and are switching to that group. I hope I haven't discouraged you from expressing your thoughts here.
Warm regards,
Gail B
Volunteer Mentor
I'm happy to hear that you will be seeing a pain doctor. I hope you find some relief soon.
Gail B
Volunteer Mentor
@lioness Maybe for some. My pain specialist told me to get out and walk to deal with my pain.
Well tho I agree with the walking, I can't do it I hear that all the time. My legs have gotten so bad and I don't want to end up in a wheel chair. I just don't understand why it is so difficult for people to understand your pain. I know there is a difference between RA and Fibro,but we seem to have he same feedback from people. The next time someone offers advice to me, I will ask "have you ever had RA? or Fibro" If they have not or don't at this time, take your talk somewhere else.
The reason why Fibro is so difficult to understand is because it is not a popular condition that is talked about. As a matter of fact until Lady Gaga mentioned it, I can only remember one time it was mentioned on a TV medical show.
Fibro is still a condition that many docs don't believe in. The old, it's in your head thing. As a result, not much has been researched or has changed.
Treatment has not changed since I was diagnosed over 30 years ago......PT, exercise, chiropractor, therapeutic massage, meds to get you into a deep sleep (the healing depth), rest when you are inflamed. Years ago, they didn't give me pain meds. Now, with what is going on, who knows???
We NEED more research, new meds and a way to diagnose Fibro other than by the process of elimination.
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@oregongirl
I'm happy you're working with your doctors at University of Texas. I wasn't aware of that. I was just concerned about your state of mind because of your posts recently. I hope your RA is better and that your flare is receeding. My best friend has RA and she struggles with it. I don't know if anything I said was helpful, but I hope something was. Please keep posting here.
Warm regards,
Gail B
Volunteer Mentor