fibromyalgia pain

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the ‘tender spot test’ several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I’m alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I’ve tried them all, I think), or anything, besides hobbies and such? I’ve tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn’t help, but I’m hoping one of our members might have some knowledge that could help. I’d really appreciate it.
hugz,
Clownscrytoo

@tonyc55

Try marijuana with lots of cbd

Jump to this post

Many of my friends love it but it never helped me.

REPLY
@chari978

Hi There, I think I’ve just met my sister from another mother. My life is almost identical to yours. I live in the middle of 70 acres of land so I rarely get to see people all week.. Even on weekends I see people but I can’t really talk to them as they’re just enjoying the property. Once a month or when I’m feeling up to it, I go out and talk to someone. Plus, I’ve had two spinal surgeries and a knee replacement. Turns out I’m allergic to the titanium implants. Now that pain has been heightened by the fibro. Sometimes I feel like I’m in hell on earth. I used to be able to get around better until the back op. It was from S1 to T12.
Most days I stay laying in bed for about a half hour, take my meds go lay down watch a couple of my favorite shows.. After that, I scream at myself to stop being such a baby and picture some of the patients that I’ve seen at MGH That really helps me to drag myself out of bed and take a nice hot bath. Going to get a nice soft massage is a relief. For however much time you can afford. I’d rather go to the spa than eat. Also, my husband bought me a massager with two big round devices on the end. I feel it works for a while and gets the blood moving.—-Doctors say that better blood flow helps heal the body faster, it’s worth a shot. Try to shop on line if you can. I buy myself a lot of beautiful clothes(in the size I’d like to be). I shop at expensive stores, sometime for hours.
In the end I have to go back and delete all of the items I’ve “purchased”, but it was fun for a while. If you’re not into clothes that much, just look at things you’ve always wanted to have. One more thing, I’ve noticed that there a lot of clinical trials out there. Just my sister sent me a medical magazine and it had several talks on Fibro. Keep Praying! Carol

Jump to this post

@chari978 sorry about your pain , in back problems are the worst or is it fibro no both which is what a lot of us have but we are fibro Warriors for sure.In 2005 I fractured my back ,and as I'm older now it's worse but for me doing exercise everyday even if it's just moving what you can helps Fortunately I'm still active ,I think just by moving and stretching my muscles have helped ,can you do this in bed? That's how I started,now I can do chair exercises which get your heart raising ,you don't have to go to gym which is out of the question for me. Can you do any?

REPLY
@chari978

Hi There, I think I’ve just met my sister from another mother. My life is almost identical to yours. I live in the middle of 70 acres of land so I rarely get to see people all week.. Even on weekends I see people but I can’t really talk to them as they’re just enjoying the property. Once a month or when I’m feeling up to it, I go out and talk to someone. Plus, I’ve had two spinal surgeries and a knee replacement. Turns out I’m allergic to the titanium implants. Now that pain has been heightened by the fibro. Sometimes I feel like I’m in hell on earth. I used to be able to get around better until the back op. It was from S1 to T12.
Most days I stay laying in bed for about a half hour, take my meds go lay down watch a couple of my favorite shows.. After that, I scream at myself to stop being such a baby and picture some of the patients that I’ve seen at MGH That really helps me to drag myself out of bed and take a nice hot bath. Going to get a nice soft massage is a relief. For however much time you can afford. I’d rather go to the spa than eat. Also, my husband bought me a massager with two big round devices on the end. I feel it works for a while and gets the blood moving.—-Doctors say that better blood flow helps heal the body faster, it’s worth a shot. Try to shop on line if you can. I buy myself a lot of beautiful clothes(in the size I’d like to be). I shop at expensive stores, sometime for hours.
In the end I have to go back and delete all of the items I’ve “purchased”, but it was fun for a while. If you’re not into clothes that much, just look at things you’ve always wanted to have. One more thing, I’ve noticed that there a lot of clinical trials out there. Just my sister sent me a medical magazine and it had several talks on Fibro. Keep Praying! Carol

Jump to this post

I do some gentle stretching and walking when possible. I have to be careful stretching as I'm waiting for surgery in December. I have fibro, arthritis, bursitis, tendonitis, bone spurs, degenerative disc disease. I am 54 but feel 94. No fun.

REPLY
@chari978

Hi There, I think I’ve just met my sister from another mother. My life is almost identical to yours. I live in the middle of 70 acres of land so I rarely get to see people all week.. Even on weekends I see people but I can’t really talk to them as they’re just enjoying the property. Once a month or when I’m feeling up to it, I go out and talk to someone. Plus, I’ve had two spinal surgeries and a knee replacement. Turns out I’m allergic to the titanium implants. Now that pain has been heightened by the fibro. Sometimes I feel like I’m in hell on earth. I used to be able to get around better until the back op. It was from S1 to T12.
Most days I stay laying in bed for about a half hour, take my meds go lay down watch a couple of my favorite shows.. After that, I scream at myself to stop being such a baby and picture some of the patients that I’ve seen at MGH That really helps me to drag myself out of bed and take a nice hot bath. Going to get a nice soft massage is a relief. For however much time you can afford. I’d rather go to the spa than eat. Also, my husband bought me a massager with two big round devices on the end. I feel it works for a while and gets the blood moving.—-Doctors say that better blood flow helps heal the body faster, it’s worth a shot. Try to shop on line if you can. I buy myself a lot of beautiful clothes(in the size I’d like to be). I shop at expensive stores, sometime for hours.
In the end I have to go back and delete all of the items I’ve “purchased”, but it was fun for a while. If you’re not into clothes that much, just look at things you’ve always wanted to have. One more thing, I’ve noticed that there a lot of clinical trials out there. Just my sister sent me a medical magazine and it had several talks on Fibro. Keep Praying! Carol

Jump to this post

@medicallew the other day I did all of walking not by choice ,if your my walker and thought my legs where going to call off I have gone spurs on hip joints ,next time used all Dr walked alot and hips did,it hurt as bad ?

REPLY

Amazingly enough I am still around. It is a beautiful, sunny day and my pain is ferocious. So many I know in the fibro realm feel better on nice days. I am the opposite. Any other member experience thus? Where I reside no doctors want to prescribe even Baclophen to help through a flare. I am desperate enough to look into CBD oil. I know where a lady works that carries the sublingual. Stopped by and she was not in-bummer. She carries one of the better quality as they can vary. Yup, I am desperate. I am not into narcotics and did/do not use them. I also have other physical issues and have learned not to mention pain to a PCP. Wanted to send me to a mental health clinic for antidepressant, etc. for physical pain. They do not even prescribe antidepressants anymore which I will not take as they did terrible things to my psyche/body. I learned the hard way to not ask for help. Anyone w/ an IQ larger than their shoe size and asks intelligent questions evidently is now a threat.

REPLY
@tonyc55

Try marijuana with lots of cbd

Jump to this post

Hello Jen.. I’m new here and wanted to say hi. I’ve been reading that some people haven’t heard of pain management dismissing you if you test positive for marijuana,and I’ve been in pain management for 18 years and every pain management Dr I’ve been to has that rule. They also have signs posted in the waiting area that if you test positive, they will no longer provide care. Due to all of the federal stuff going on right now, my Dr told me that they can no longer do the urine test but the lab will randomly call you in for your drug test. My Dr was very upset. He did have patients that he approved to use marijuana but they can no longer use it because he has no control over when the testing is done. Our healthcare really sucks for us. I’m among the many that actually need treatment and because of people that faked illness to get the narcotics, we suffer… sorry to rant …

REPLY

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

REPLY

God bless you real good! So sorry it took so long to get the right medication. But the good news is now you are doing better! Kudos to you for your perseverance!

REPLY
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

Lyrica helped my fibro soooo much and quickly! Unfortunately, after about 2 months, it swelled my lower legs and ankles/feet to the point where that I could no longer take Lyrica. Dr changed my meds to Cymbalta. It helped but again, the same swelling came back. Not sure what to do now. Dr has referred me to pain clinic. Hoping they will help me.

REPLY
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

Everyone is different, that's for sure. How smart you were to work with your physician to make the best choices for your body! We have some really good pain clinics around here. I have heard that they can be very beneficial in helping to regain your health. I will be hoping with you that just the right treatment plan is found for you. We are here for you. @mamacitalucita

REPLY
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

@mamacitalucita sounds like you found peace and helping others is what's it's all about.Congrats

REPLY

@grand mar ,sorry letters are acting up.This article was really interesting thanks Linda

REPLY
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

Yes and thank you! I'm being treated at Mayo in Phoenix. I will have my 1st consult at the pain clinic there soon. I'm hopeful they can help me.

REPLY
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

Right now I'm not on any meds for my fibro until I have my 1st consult at the pain clinic. I'm in a lot of pain but trying to do the best I can to get around. It's hard to exercise when the temp here in AZ is 105-115°. Going to work everyday is difficult but does get me out of the house. The sleepiness nights and daytime tiredness are almost more bothersome than the pain.

REPLY
Please login or register to post a reply.