fibromyalgia pain

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the ‘tender spot test’ several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I’m alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I’ve tried them all, I think), or anything, besides hobbies and such? I’ve tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn’t help, but I’m hoping one of our members might have some knowledge that could help. I’d really appreciate it.
hugz,
Clownscrytoo

@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

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You a re not weak  You are Fibrowarrior Strong.  Nerve pain is one of the worst.  I am on Lyrica finally.  It is amazing the difference in my life.  I also take magnesium and ginko biloba.  Cymbalta and Flexeril at bedtime. Mobic for joint pain, as needed. Here's hoping that you find a regimen that works.  You are worth it!

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@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

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@parus

You are being very hard on yourself. Thinking of, and calling yourself "pathetic" and "weak" only hurts your tired mind more. Pain is exhausting and depressing, as you know. What we tell ourselves reinforces the old messages we got originally from parents, spouses, siblings or other "authority" figures in our lives. One of the first things I had to learn was to stop calling myself names. I used to think and say out loud to myself, "Stupid", "Dummy", "Lazy", "Clumsy", etc. because that's what I heard about me from adults running the orphanage where I spent 7 years of my childhood. It has taken me years to stop putting myself down and to see that I am a talented, smart, action – oriented woman. I have a Master's degree and have had a very successful career, in spite of my childhood. The only way I could have done those things was that I learned to stop putting myself down.

My hope for you Parus is that you can begin to see your value as a loving and loveable person. You have an illness that causes great pain, but that doesn't mean you lack value. You are a talented artist from what I've seen, and you are expressive in writing as well. Even without those talents, you are a person who deserves human dignity and love. I hope you love yourself and begin giving yourself positive messages. I know it's hard when you're in pain and suffering from depression. This is when it's especially important I think. Be kind to yourself. I used to put my arms around myself and hug me like I had longed to be hugged as a child. I would close my eyes and imagine all the little "Gails" at different ages and imagine myself pulling all of them close and hugging them all, telling them that I loved them with all my heart. I cried every time I did that. I would also imagine putting a little "Gail/me" in my lap and talking gently and lovingly telling her all the wonderful things I loved about her. By repeating this process whenever I needed to, I slowly began to trust myself as a loving and loveable person. I hope this is something you will try, even though you may feel awkward at first. It's new behavior, which always feels awkward and unnatural at first. The longer you do it, the more natural you will feel. I'm hoping the best for you.

Gail
Volunteer Mentor

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@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

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@grandmar

I had a laminectomy in December, 2016, and it was one of the best things I have done. My L5-S1 pain is gone! My brothers have both had fusions of various lumbar disks, and they still have pain, but they are able to walk and are not in wheelchairs. We have genetic predispositions to back issues. I have DDD, spondylitis, C7 compression fracture, osteoarthritis, F4 disk slipping on top of my L5-S1 disk and pressing on my spinal cord, and a bunch of other things. The L4 disk repair will be major surgery, so my surgeon told me to try everything else I could to reduce the pain before surgery.

I read on Mayo Connect about ART, Active Release Technique, relieving lumbar and back pain for others with my same issues so I decided to try it. I have written in other posts about finding a great chiropractor who was certified to use this technique. In 3 weeks, with 2 sessions a week, my pain was nearly completely gone! I'd had chronic pain on my right side for about 8 years, but it had gotten worse in the past 2 years. I could hardly believe it was gone after 3 weeks! This was a year ago, and I am still pain free. No more pain medication, and I can walk, climb stairs, etc. without pain. I see the chiropractor once a month for a tweak and to address other issues (radiculopathy from my C7). It's the best thing I have done for my pain. ART works on the theory that muscles and nerves get bound together in a mass as a result of trauma at various times in our lives. It uses deep deep muscle massage and movement of the limb (my right leg) at the same time. Wow, it worked for me. It may be something you want to look into. BTW, I had shots in my right hip years ago for what the doctor had said was bursitis. They never helped my pain, probably because of misdiagnosis. Best of luck to you.

Gail
Volunteer Mentor

Liked by grandmaR

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@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

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Amen. We can't give in its not our time yet to check out yet ,our day will come to go home then will celebrate this disease ,we,ve won then

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@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

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Wonderful I have gone
all my life I have a sacrelization birth defect and he is the only one that can help ,since then I have found that for fibro he works wonders Once a month I also go

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@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

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Gail,
So happy for you that you have been able to find help. It sounds wonderful!
Continued success!
Ronnie

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@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

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Well, I do not know that much about backs. However in a recent fall on concrete, I shattered my L11? It was so painful and I could not walk. A doctor wanted to do a new procedure on me. It has been done quite a few times from what I understand. He used concrete to fill in the lost Vertibrae. I was able to walk immediately. BUT, I do have pain if I overdo it. If I fall again, I suppose I could break another one. REASON: Doctor said now my L11 is stronger than ever, making the rest of my spine even weaker. SO NO FALLING. I use my cane faithfully. Even tho the came is a signal that I am OLD> Well, I am 76 and I must be careful. At this point I have no pain meds and use Advil. I have a pain Dr appt next week and today I am traveling to all the hospitals I was sent in THREE nights in a row. I need to get all my records and films to have the Pain Dr even attempt to help me. My issue with the pain dr is I don't know what he could give me that would not be addictive. Been there done that and believe me, I never want to go through withdrawal ever again. I wanted to die about half way through the process of withdrawal. My doctor did not know I was attempting withdrawal by myself. I did not want "DRUG ADDICT on my chart. I was not, but you better believe the doctors will put a RED X on me to make sure they do not overdose me and get sued. What a world we are living in

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@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

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Oregongirl. Hi you where right after beating pad on back and sleep ,my back is better today .Where is your L11? Last I know you only have 5lumbar vertebrae you must be a Very Tall Women lol When I fractured my L2I was offered that cement I refused that's why I get the lidocaine-cortisone shots they last about 6,months of longer but now I have to go back in 4months but please be very careful I've heard talked to people who,he gone that route ,so be very careful Linda

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@gailb Thank you for your caring comments. Hard to hug myself when I do not like myself. The only help I can get comes from within and I cannot find thus. So discouraging to realize I wasted an entire life trying to please others and never found myself. An empty shell. So, yes, for now I am pathetic and mayhap need to grovel in my own unworthiness. I was doing better and just lost my grip and motivation. My self worth has been threatened and I am endeavoring to recover and not be unkind in doing so…

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@parus

@gailb Thank you for your caring comments. Hard to hug myself when I do not like myself. The only help I can get comes from within and I cannot find thus. So discouraging to realize I wasted an entire life trying to please others and never found myself. An empty shell. So, yes, for now I am pathetic and mayhap need to grovel in my own unworthiness. I was doing better and just lost my grip and motivation. My self worth has been threatened and I am endeavoring to recover and not be unkind in doing so…

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We are all special. You are worthy of more than you know. Remember Jesus went thru horrible pain with no pain management. Suddenly, your pain will leave you. When it does, do something good for your self Are you getting any pain relief? I wish I could hold your hand as you go thru this time. Praying for you..

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@parus

@gailb Thank you for your caring comments. Hard to hug myself when I do not like myself. The only help I can get comes from within and I cannot find thus. So discouraging to realize I wasted an entire life trying to please others and never found myself. An empty shell. So, yes, for now I am pathetic and mayhap need to grovel in my own unworthiness. I was doing better and just lost my grip and motivation. My self worth has been threatened and I am endeavoring to recover and not be unkind in doing so…

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Think back…all the way and think about the things that you have always loved the most…treat yourself to those things. ,

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@parus

@gailb Thank you for your caring comments. Hard to hug myself when I do not like myself. The only help I can get comes from within and I cannot find thus. So discouraging to realize I wasted an entire life trying to please others and never found myself. An empty shell. So, yes, for now I am pathetic and mayhap need to grovel in my own unworthiness. I was doing better and just lost my grip and motivation. My self worth has been threatened and I am endeavoring to recover and not be unkind in doing so…

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From day one I felt a connection with you. I want you to take just a moment and think about all the good things in your life. Now, in spite of the horrible pain, think to yourself this marvelous thought: There WILL be even more good things for you ahead. New treatments, new meds, new ways of managing health issues happen all the time. Make a list on paper of the things you used to do that you enjoyed. Now, plan right now to try just a couple of those things, once again. Only this time, keep reminding yourself that you are loved, you are worthy, and God doesn't make junk! The sun will shine again for you. I have been where you are. I am praying for you to begin to feel at ease, to have hope. Peace and love, my friend.

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@parus

@gailb Thank you for your caring comments. Hard to hug myself when I do not like myself. The only help I can get comes from within and I cannot find thus. So discouraging to realize I wasted an entire life trying to please others and never found myself. An empty shell. So, yes, for now I am pathetic and mayhap need to grovel in my own unworthiness. I was doing better and just lost my grip and motivation. My self worth has been threatened and I am endeavoring to recover and not be unkind in doing so…

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PArus you are God's child ,we will be seeing our new home someday and have no more pain just happiness If Jesus died for you ,you can't leave him down ,don't let the devil win in your pain.

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@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

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All we can do is what we can Like I said I didn't have that cement put in ,it was just in 1996 I had my by-pass surgery and If it broke loss I didn't like this idea so still just put up with it .

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@parus

@gailb Thank you for your caring comments. Hard to hug myself when I do not like myself. The only help I can get comes from within and I cannot find thus. So discouraging to realize I wasted an entire life trying to please others and never found myself. An empty shell. So, yes, for now I am pathetic and mayhap need to grovel in my own unworthiness. I was doing better and just lost my grip and motivation. My self worth has been threatened and I am endeavoring to recover and not be unkind in doing so…

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Time to change directions! You need a new positive direction? Everyone has worth, just takes a new contact?

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