Problems walking after covid

How sad I'm so sorry to hear this. It took me a year to walk normal again. Now three years and 8 months later I still can't walk some days when I'm weak. They did a study in Europe about long covid patients who only have fast twitch muscle groups. They biopsied patients after doing heavy exercise on a bike for 15 minutes and that's what they found. It's like idk... Covid ate all normal muscle tissue. I don't know exactly but it seems like the best example or explanation anyway I found in three years. Plus I found when my doctor did a genese sight test I had the methalena tetra hydrogolate reductase DNA gene defect and it can show many different ways for people. I have it because I got it from my parents both parents had to have it to be passed down to their children. So my sister also has it. But hers presents as a low iron deficiency. Mine presented as a low b vitamin and d vitamin deficiency my parents were low d vitamins. But it means you'll always have to have blood work done to see whatever you are low in at the time. My doc told me to go to Greenleaf apothecary and buy "methyl folate" "methyl b12" and high doses of b6 and vitamin d. So get the gene sight test to confirm. It's expensive but Medicaid does cover it. It did with me because I had terrible adrenaline surges right after my two week coronavirus

My mother was just diagnosed with Parkinson’s Disease. The neurologist has said she has seen cases where Covid unmasks dormant or burgeoning Parkinson’s. This is an evil virus. We are so upset.

I found out my leg pain and weakness after having Covid was from arthritis in my hips....

My mom has the same symptoms as your mom. She had covid in Jauary and since then she has to use a walker or a cane. She will fall all of a sudden for no reason. When she does fall she can't get up because covid has affected her strength in her torso. She went to a neurologist and spine specialist and no one can say what is happening? Before getting covid my mom was very active.

@j77 How are you coming along?

I have the same, 10 months in. I had a brutal first 3 months with the lungs being the worst. It was like I got the worst form of asthma you can think of. Along with legs as cements, chest pain, 100% nasal congestion, cramps in the diapraghm, severe stomach pain/issues, muscle twitces etc.

After 5-6 months I started to slowly improve. During month 7-8 I could start taking longer and longer walks. During first week of september I played golf for 5 days straight and went out on challenging hike walks with my girlfried. A few days later I totally crashed (PEM?) and was back 5 months in time and both legs and arms are litterally as cement. Now I´ve struggled for 1,5 months to even walk 200 meters at slow pace. I also got the horrible neuropathy back where it vibrates like crazy. Mainly in my lower left leg and left ankle but sometimes it spread to stomach/arms as well. It makes me think of histamine intolerance or mast cell syndrome because the vibrations increase as soon as I eat or drink something, no matter what it is.

I´m also super tired/fatigued, but it is strange because I am almost dead from when I wake up until afternoons. Then I am "better" during late afternoons/evenings.

Another strange thing I´ve had for 7 months or so, I wake up in the mornings with difficulties breathing. It is like I have mucus made of rubber in the lungs. I do get some dry cough but it´s like super little mucus, but it prevents me from breathing normal. So it takes everywhere from 30 minutes to 2 hours before I can breathe normal again. I also have difficulties breating lying down overall. It is like my central nervous system forgets how to breathe when I lay down. I do use montelukast/singulair and cortison inhalator since I got covid, despite never having any asthma before and 4 different investigations does not show that I have any asthma, so this is something else.

The only tests that have not been normal is DHEA-S, PTH which both are a bit low and then homocystein and Calcium a bit high. Testosterone is on the low side as well.

So I am currently trying to figure out about the DHEA. Long time of stress can give adrenal fatigue and that is like textbook "burnout". So I´m thinking if the muscle fatigue is because of that. A severe burnout (caused by all the stress of covid and postcovid).

Hello! I am afraid I am still in pretty bad shape. I think I might have some Muscle Disease brought on by Covid they just can't figure out. I have many symptoms that mimic Myasthenia Gravis, but I guess Generalized because I don't have a droopy eye. I also have alot of symptoms that match up with Polymyositis. I just don't know what this is. The Rhuematologists say it is not Autoimmune even with a few positive ANA's and a high speckled pattern. All of my MRIs are clear. I had one EMG that was slightly abnormal for one leg, but the Neurologists did not make a big deal about it. I also had Genetic Testing that showed a few types of Muscular dystrophy including Limb Girdle Muscular Dystrophy, but the Specialists don't think it is MD either. I have alot of your symptoms. A constant dry cough, Low DEHA, cement legs, big heavy upper arms. My torso is very weak so it literally feels like I am walking a dead body. I did see an infectious disease Doctor that tested me for a bunch of diseases, but everything came back clear. He told me he would just diagnose me with Chronic Fatigue, but I have way more than that going on. I think it was that I was so burned out from working in Healthcare during the pandemic, going through perimenopause with caused anemia from severe periods and than getting covid on top of it. My immune system was probably already bad with everything going on and than probably fought so hard to fight up Covid with whatever I had left. It is almost like my DNA changed. Nothing in my body is the same anymore. Everything was attacked.I am so sorry that you are going through this as well. No one deserves this. I am praying that you feel better soon!

My legs have been a mess since March 2022. None of the conventional tests show anything. I’ve been out on drugs for Ankylosing spondylitis and psoriatic arthritis and they have done nothing. It’s super frustrating because it does not seem to fit into any rheumatologist play book.

Hello! Yes! When I walk it looks like have Anklosing Spondylitis or severe scoliosis. I testes negative for those, but it is so strange. I don't know if what I have is some new weird Autoimmune Disease brought on by Covid or something. I honestly feel like my DNA was changed. Nothing is the same.I am so sorry you are going through this as well.

Wow this group is Awesome.
I thought i was by myself out here 😪
I'm sorry for all the symptoms of whatever we are going through but it feels good to he understood and not like we are crazy.
I had covid in 22 for 23 days never had the shots.
Because I work as a pharmacy technician and don't approve of it.
I had been noticing tiredness and just never got over covid.
So I started getting worse after about a year past having covid and just shunned it because I'm so stubborn and take care of everything my self and everyone else. Mom of 3 and Meme of 8 grands and 1 great Grandson.
I would start feeling wobbly so I thought it was my sugar so I would go grab some chocolate milk and i thought it fixed it and this went on for a while so started checking BP and it was a little high probably cause I was scared about passing out .
I have syncope for year's.
So I was at work last year in December almost fell to floor luckily my dr is next dr to my work.
Had help walking there and ronevekg she said go see your heart dr and neurologist so 8 did every heart workup known .everything was good for my age lol 58.
So went to ear drs nothing wrong with eats had all test and VNGs.
Went to balance he referred me to physical therapy where 8 found out I don't have BPPV but do have vestibular hypofunction.
Neurologist said Neuropathy and severe osteoporosis. But blood work is coming back crazy and the balance dr said to not show it to my oncologist. We'll I don't have one.it scared me so I went back to my primary and she's doing more blood work. I have trouble walking by my self feel so wobbly and fatigue is crazy and family thinks 🤔. Haven't been a b le to work so this is very life changes 💔 don't like going shopping because of people and movement and lights I'm better outside and not around a crowd of people .
Not driving anymore.
Praying for answer 🙏

I can’t walk as LC has left me with ‘postural hypotension’, my BP plummets to 61/40 and HR goes up over 130 to compensate, diagnosed with tilt table test. I can manage a weekly supermarket shop if I have a trolley for support, and also provides arm exercise to stop blood falling to lower limbs. Husband has to take over at checkout to do packing as I just can’t stand still, before I feel I might collapse. This is a form of dysautonomia but includes a wide range of symptoms normally fully controlled without thinking: jelly legs, dislike of light/ noise included!