Problems walking after covid

Posted by hopefuliny @hopefuliny, Apr 27 8:49am

My mother caught covid for the first time in the hospital after surgery a couple of months ago (don’t get me started on how lax hospitals are with covid protocols) and since that time she has problems walking. She either has to use a Walker or wheelchair depending on the day. Her legs will suddenly feel heavy or like “jelly legs” and give out on her. Has anyone else had this reaction. She had the same reaction after the first couple of moderna vaccines but they went away after a day.

Thank you all.

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I am praying for your mom. I am so sorry she is going through this.
I have Long COVID the brain fog is so bad I can’t remember what I did a few seconds later. Does anyone else have brain fog? Please help!

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@2tnt

Call Dr. Spencer at Minimally Invasive Procedure Specialists. You need an mrv of your pelvic area to see if you have iliac vein compression. Good luck.

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Thankyou so much!

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@j77

Thankyou!This is all very interesting.I think every Doctor should know about this.

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I saw this article today on Creatine. I have been taking it for muscles. It also helps cognitive function and aids sleep.

"Creatine is a common sports supplement that is believed to increase the amount of energy muscle cells generate during exercise."
https://www.medicalnewstoday.com/articles/creatine-improves-cognitive-performance-sleep-deprivation-study

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@searcher1

I saw this article today on Creatine. I have been taking it for muscles. It also helps cognitive function and aids sleep.

"Creatine is a common sports supplement that is believed to increase the amount of energy muscle cells generate during exercise."
https://www.medicalnewstoday.com/articles/creatine-improves-cognitive-performance-sleep-deprivation-study

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Thankyou so much!I am going to research this more too.It is all so interesting.

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@j77

Thankyou so much!I am going to research this more too.It is all so interesting.

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Another suggestion is Carnitine helps the body turn fat into energy and decrease fatigue. I do take it.

“The coronavirus disease is a viral infection that could induce different respiratory, gastrointestinal, and vascular problems. Evidence shows that many patients with the disease experience a long recovery period, and symptoms such as fatigue persist for several months after infection.

Fatigue depends on a variety of conditional and physiological factors, and its exact molecular mechanism has not yet been elucidated; however, it is probably caused by cytokine storm, which can cause inflammation and anorexia, followed by muscle loss, weakness, and tiredness.

L-Carnitine is a trimethylated amino acid that is structurally similar to choline and is needed as a cofactor to convert long-chain free fatty acids to acylcarnitine and transfer them to the mitochondrial matrix.
Dietary L-carnitine supplementation successfully has beneficial effects on the energy metabolism of the cells and related mechanisms in regeneration of muscles.

Since the beneficial effects of this medication in relieving fatigue caused by diseases such as cancer, MS, etc. have been demonstrated, it can also be considered as a potential option for relieving the fatigue caused by COVID-19. “
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8667465/

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@j77

Thankyou so much!I am going to research this more too.It is all so interesting.

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Did the doctors test your B12 and folate levels? A decade ago I had a B2 deficiency and couldn't walk. I have been taking sublingual B12 (under the tongue liquid) and I have been fine. I also have a lot of lentils that are high in folate. Both deficiencies can cause anemia that impacts the ability of the red blood cells to carry oxygen.

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@searcher1

Did the doctors test your B12 and folate levels? A decade ago I had a B2 deficiency and couldn't walk. I have been taking sublingual B12 (under the tongue liquid) and I have been fine. I also have a lot of lentils that are high in folate. Both deficiencies can cause anemia that impacts the ability of the red blood cells to carry oxygen.

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Thankyou so much!I will pick up some carnitine as well.I was low on B12,B6 and D.I have been taking all three for over a year with no change.I have not had my vitamin E checked yet,but my neurologist told me that would be extremely unusual to have low vitamin E.I am trying to think If there is any other vitamins that I am missing.I just let my neurologist appointment and he is sending me to a team of neuromuscular doctors to see if they can figure it out.His EMG he performed was normal.So I have had one abnormal EMG and one normal.The one neurologist thinks I have some kind of metabolic muscular disease,but said I should not be in as bad shape as I am and does not understand.I do believe their is a metabolic issue because of my massive weight gain.Nothing is working properly in my body.I did test for Cushings Disease and tgat came back negative.I have low DEHA sulfate and that would indicate Addisons Disease,but you lose weight and have low blood pressure with that.I have weight gain and high blood pressure.The only other thing they have found is low testosterone and low carbondioxide in my blood.All mu tests come back fine.I might meet with a holistic chiropractor.He told me he was going to adjust my liver.I am just wondering if covid/iron Infusion reactivated my epstein barr and my liver is not functioning properly.I have thought of almost everything.It all started with the extremely heavy periods and I also had gas coming from the front with the heavy periods which is so weird.They have checked for Fistulas through a MRI and can't find anything.So I had that going on for years before the Infusion/covid.I checked for Myasthenia Gravis because I know that can come on from low iron and covid,but my test was negative.I also asked about ALS because I have muscle twitching all over including my lip,but both Neurologists said no.My Genetic test showed a possibility of some types of Muscular Dystrophy Including Limb Girdle Muscular Dystrophy,but neither Neurologist thought that it was that either.I don't think they are going to figure it out.I just can't believe I went from exercising all of the time,working leading a normal life to this.I am mad because I did everything right.Ate well,exercised,did not smoke,drink or do drugs.I had to quit my job and I have to use up all my 401 k and because the doctors can't figure out what I have I can't even get disability.I have worked in Healthcare my entire life and never imagine something like this would ever happen to me.

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@j77

Thankyou so much!I will pick up some carnitine as well.I was low on B12,B6 and D.I have been taking all three for over a year with no change.I have not had my vitamin E checked yet,but my neurologist told me that would be extremely unusual to have low vitamin E.I am trying to think If there is any other vitamins that I am missing.I just let my neurologist appointment and he is sending me to a team of neuromuscular doctors to see if they can figure it out.His EMG he performed was normal.So I have had one abnormal EMG and one normal.The one neurologist thinks I have some kind of metabolic muscular disease,but said I should not be in as bad shape as I am and does not understand.I do believe their is a metabolic issue because of my massive weight gain.Nothing is working properly in my body.I did test for Cushings Disease and tgat came back negative.I have low DEHA sulfate and that would indicate Addisons Disease,but you lose weight and have low blood pressure with that.I have weight gain and high blood pressure.The only other thing they have found is low testosterone and low carbondioxide in my blood.All mu tests come back fine.I might meet with a holistic chiropractor.He told me he was going to adjust my liver.I am just wondering if covid/iron Infusion reactivated my epstein barr and my liver is not functioning properly.I have thought of almost everything.It all started with the extremely heavy periods and I also had gas coming from the front with the heavy periods which is so weird.They have checked for Fistulas through a MRI and can't find anything.So I had that going on for years before the Infusion/covid.I checked for Myasthenia Gravis because I know that can come on from low iron and covid,but my test was negative.I also asked about ALS because I have muscle twitching all over including my lip,but both Neurologists said no.My Genetic test showed a possibility of some types of Muscular Dystrophy Including Limb Girdle Muscular Dystrophy,but neither Neurologist thought that it was that either.I don't think they are going to figure it out.I just can't believe I went from exercising all of the time,working leading a normal life to this.I am mad because I did everything right.Ate well,exercised,did not smoke,drink or do drugs.I had to quit my job and I have to use up all my 401 k and because the doctors can't figure out what I have I can't even get disability.I have worked in Healthcare my entire life and never imagine something like this would ever happen to me.

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You said that your B12 is low. That should be addressed.
From National Library of Medicine:

"Nerve conduction studies on patients with confirmed vitamin B12-associated peripheral neuropathy have demonstrated severe impairment of sensory nerve conduction reflecting demyelinating disorder. Studies suggest that lack of vitamin B12 may lead to primary sensory demyelinating neuropathy"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8858590/#:~:text=Peripheral%20neuropathy%20is%20the%20most,activity%2C%20or%20decreased%20muscle%20mass.

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@searcher1

You said that your B12 is low. That should be addressed.
From National Library of Medicine:

"Nerve conduction studies on patients with confirmed vitamin B12-associated peripheral neuropathy have demonstrated severe impairment of sensory nerve conduction reflecting demyelinating disorder. Studies suggest that lack of vitamin B12 may lead to primary sensory demyelinating neuropathy"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8858590/#:~:text=Peripheral%20neuropathy%20is%20the%20most,activity%2C%20or%20decreased%20muscle%20mass.

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Thankyou!Yes!I have been taking B12 pills for a while,but I should ask about getting the injections.The last bloodwork they ran my B12 was o.k.,but who knows.

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