Problems walking after covid

Three years and three months ago I had the Moderna booster. Immediately I was unstable walking, which got worse as days went on. I kept waiting for it to go away, used a walker sometimes, and was very fatigued. A year and a couple months later I saw a neurologist and had a nerve conducive test. He said it appeared that I had guillaine barre syndrome. Nothing was recommended or prescribed. I continued with physical therapy and rest thinking my life was about to end this way, I had retired just five months before the booster. Then in this last July, I read about nattokinase, and began taking it twice daily. In just a couple weeks I noticed a difference! Now it is six months later and I feel 80-85 percent improved! Am so excited to think I have some life left.

No research to date has found a"cure". Relief of some particular symptoms has been reported by some individuals, but that's it. This is worldwide. No vaccine can truly prevent getting it, nor transmitting it. We are just trying to adjust to a permanent new reality the best we can. God bless you all.

I've survived it 4times.(barely on the 4th) I have good days and bad days too. Once a dancer, I now have such bad equilibrium, that I'm labeled a 'fallrisk'. I share her pain. In my long covid treatment program, I've been taught to do only one thing a day, then rest. Lots of water and proper nutrition (hard without smell or taste) but I pay when I don't follow their orders. I hope shestarts having more good days and less setbacks.. just go slow and steady that's best...

@itsmeagain
Jello and cement- quite familiar to me. Mostly cement and tingling these days (4yrs later)Ivig treatments-3 yrs. Pt in my facility has been helpful but it’s still wheelchair or bed for me. Diagnosed with CIDP 3yrs ago through a spinal tap. I’m progressing but have plateaued and not sure what comes next. Not fair!

Cannot agree more. Lots of stats etc., BUT, no updates on actual, effective remedies, cures.

4 years and a few months ago, I had COVID. It was before the vaccine was available. A couple weeks later I got very dizzy and couldn’t walk without a cane. I have progressively gotten worse and now require a walker to feel safe. I have been to numerous neurologists, ENT’s and myriad of other doctors and just see no improvement. I have been to 6 different physical therapy groups and little help, although a group called FYZICAL seems to have a unique approach and has been somewhat helpful. I have been going to Cleveland Clinic and am hopeful since they are keeping on top of the problems.

I have trouble walking now as well. I recently pruchased walking sticks. My legs are heavy, and I am easily fatigued. My balance is also an issue. I will be curious to know what you learn at the Cleveland Clinic. Please share. Thank you.

My legs kill me! They ache like I've worked out, or had the flu! I've even had a muscle bx which was negative,😔 I've had covid 5x, and 2 moderna shots. Since 2021, I've started with the long covid clinic in Bham Al, and was told I have microclots. I suffer still with leg pain,aches, dizziness and extreme fatigue..I take blood thinners,and hydroxychloroquine.. ibuprofen for pain and PCP put me on Adderall for the dizziness, hoping to help attention span, from the fog.. I guess.. I'm miserable..

My only coment is that it sounds like a lot of medication. I will be seeing a Dr. in April, who specializes in long COVID issues. I am really looking forward to getting some medical advice about all the changes in my body. I just ended being a participant in a third long COVID study with Banner and the University of Arizona. I learned about the long term effects of COVID, but there has not been a concerted effort by the study managers to better inform us, the participants of what we need to do going forward to mitigate the health issues we are faced with.

I will do that. My appointments are March 20 and 21. They think it might be Parkinson’s without most of the symptoms or something else. I really think it is long COVID. I hope to find out, but I doubt I get a firm diagnosis in Cleveland. I wil for sure share my results.though.