Grover's Disease: What works to help find relief?

Thank you so much for your response. Did you use 2 full bunches of cilantro for your smoothie ? I just bought the pills to see if they work.

I would buy several bunches, cut each bunch in half and freeze the halves. Each half was about the size of my hand. Add one to blender, add small carton of Yoplait strawberry yogurt (or any flavor), add orange juice so it filled at least half the blender. Mix, filled a glass, then I put the rest in a tall travel mug and put in refrigerator. So I actually got 2 days worth from half a bunch. The yogurt and OJ really makes it drinkable.
I also took capsules twice a day. Unsure if these worked at all. But I relied on the capsules during a 5 day trip to Seattle and all was well. I took about 5 capsules per day when I couldn’t make a smoothie. Why 5? No reason, just afraid of The Return of the Rash. Don’t think you can OD on cilantro. 😎😜

Going out right now to buy some. Very thankful for your advice.

I got all right here on Mayo Clinic website. Thankful to those who figured it out first. By the way, frozen cilantro blends easier and doesn’t go bad.

Just out of curiosity, how many smoothies do you drink in a day ? In your opinion, does it make any difference if you drink it all at once, or spread it out over an hour. I mix the cilantro with juice, a lot of fruit, yogurt and honey. It actually doesn't taste too bad at all. I haven't tried freezing it as I have access to fresh when ever I need it. I think the cilantro has lessened the itching a bit, just waiting for it to make it disappear. Ha !! Again thanks.

One glass in the morning. That’s it.

All at once

nodgabnoj-
In answer to your question I just drank one daily, yet read on the earthclinic GD site that one man who was going on a 6 year initial outbreak drank 6 bunches of cilantro daily- first treatment that ever put him in remission. Perhaps I need to drink 2 a day now.
I do not want to discourage you about trying cilantro. Until about a week ago it had been effective for me. I noticed symptoms beginning on my lower back but didn't want to discuss on this site until I was certain. Yep, the GD is starting up again.No way to ignore the bumps and now beginning scabs on my lower and now upper back. Last night after my shower I made the mistake of rubbing a very itchy papuale on my upper back and that inflamed the area, turning it red and oh my the intense itching kicked in in that spot, used my Flanax which helped to allow for sleep.
I had a 14 months break on cilantro. True the first 6 months of my break was my normal remission pattern, then when symptoms returned I began the cilantro smoothies to have it clear up the new break out scabs within a few months and after starting the cilantro had no new bumps or scabs appear and it never itched. Then had 8 months symptom free so that's my 14 months of freedom. Unlike Frogger I kept up with daily smoothies, even when in remission since starting the in late March 19. I am still taking them now, perhaps this will keep my breakout at a minimum.
I had been pleased I would be traveling over the holidays without symptoms and now must face what I will be coping with,
It seems to me and I have heard others mention this with eczema that diet or meds may work for a while but then stop working, as you know eczema is chronic meaning no cure. I can't think of any changes in my diet, true I am now wintering in an area with low humidity, but have done so for decades. It's also cool and although active outdoors have not been sweating. No change in clothing, grooming or cleaning products.
Please keep up the smoothies, you do have hope it will work for you and I so appreciate the long break it gave me. Like you I am also hoping it lessens the severity. I do know after having GD for about 5 years now each subsequent outbreak, after my initial 1 year of total agony, has been less severe in physical and internal symptoms.
A positive attitude always helps and I am staying positive that this outbreak will be minimal. Yet I know I have at least 100 little bumps and few scabbed already after just a week. Not a good sign.

nodgabnoj- OMG- Guess what I just thought of. My last post mentioned no change in diet or products or heat or sweat to bring on GD recurrence. I had a shingles vaccine before I got GD in my late 50's without an issue and decided to get the new senior SHINGLES vaccine about 2 weeks ago. Now after being in remission for 14 months since using cilantro my GD is back. You gave a warning call about the senior Shingles vaccine coinciding with your GD. I ignored that based on my past history. What have I done to myself? All I can think of is to drink 2 smoothies daily, yet traveling for a week, such a challenge. I had planned to go off the smoothie like Frogger as I had been clear. I am staying with family and do have access to grocery stores and full kitchen so not difficult to manage that.

I just read your posts. Again I am pretty sure that it was the shingles vaccine that gave me the GD. The only other thing that I can think of is that I work out quite a bit and I used to get a rash from sweating right around my solar plexus. I could usually eliminate it with a skin lubricant. Strangely, at this point, despite my working out 4 times a week, it seems to be a non issue at that location. I have started the cilantro smoothies, and they seem to be doing a little bit of good. I might try two a day. I find that for me the two worst times are just after I get up in the am and sometime later in the evening. Motrin is an effective itch stopper for me. I am reluctant to take too much of it as I know it has some negative side effects. At one point I was taking 6 a day, and despite my Dr. saying it was well below the recommended maximum, I try to take two at most. I buy the otc, which is 200 mg. Last night a woman I work with mentioned her Dr. prescribed her the 600 mg. for headaches. I never knew there was one and am wondering as to its effectiveness. Of course I could try 3 200's. Who knows !!!! I have seen a bunch of topicals that I never heard of on other people's posts. If I do try any of them and I find them effective I will let you know. I guess the only positive thing I can come up with is, there is a lot of stuff out there that is much worse than gd. Other than it being a major pain in the neck, it doesn't inhibit me in any other way. I wish us both the best. Have a happy holiday.