Grover's Disease

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

The arginine / lysine connection was made by me because I started to explore the theory that GD, while not Herpes, is Herpes-like. It comes on from a variety of triggers, sometimes heat and sun. Sun can be a trigger for Herpes 1. It can come once, or it can recur, much like other forms of Herpes. The first attack is often the worst. In me, it travels up and down my trunk by levels, suggesting a spinal source, not a systemic or skin source. And the fact that quite a number of us found ourselves with GD after shingles shot (and in some cases, including mine, shingles.) The fact that it did not touch the area of skin where my shingles occurred reinforced that impression. So I looked for what could aggravate and what could alleviate Herpes, and that's where arginine/lysine appeared in my research. It was just a wild guess and for me, it yielded a great result. Your diet is already rich in lysine – but my diet is high in arginine and low in lysine. I adopted my diet (essentially the original Pritikin diet, not the watered down version they promote now,) because my brother had serious heart disease. He went on this diet and I did too. My diet was very close to it when I started, so it wasn't a big change for me.

The cilantro connection does suggest heavy metals in some cases. In my case, the cilantro, and taking zeolite, which should also remove heavy metals, including mercury from my system, did nothing. BTW, my research on cilantro as a detox for mercury mentioned that it can removed mercury from organs which puts it into your circulatory system but if you don't take extra measures to remove it, mercury can redeposit itself in even more harmful ways. I read that chlorella should be taken 45 minutes to an hour before cilantro to help with the removal of mercury from the bloodstream. Here's an NIH article about chelation/detox that reviews some of these issues: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3654245/. Chlorella may be next on my list to use. What a journey!

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Dear Babbs, Your research astounds me! It's amazing how motivating misery is; forces us to educate ourselves.
The article you referenced has scientifically researched information is above my level of comprehension, yet I did take away that heavy metals do negatively affect our bodies. I have been taking Chlorella for months. I read it helped with metal removal but I didn't understand the science behind it. I was taking it simultaneously with the cilantro, which now I understand from your explanation is not the proper order. I have been taking NOW brand, Chlorella 1000 mg once daily with no noticeable negative side effects. I stopped the cilantro a month ago, but still take the Chlorella. It's inexpensive Algae full of chlorophyll and beta carotene and figure it's good for me for those reasons alone.

Cold Sores, herpes 1, are a mystery to me. My husband of 51 years has suffered with them occasionally when younger but as a senior they were frequently recurring until he started on Valacyclovir treatment. He takes 5 mg daily or if he did become symptomatic about every 3 months in the same spot on his lower lip he takes 1 gram for a few days. He must take the 1 gram to stop it right at the beginning of the tingle sensation he recognizes as a recurrence. Before Valacyclovir his cold sore could last for months. I learned that bee propolis in ointment form helps some with cold sores- both healing and suppressing it is anti-bacterial and anti-fungal. I ordered on Amazon and now after he has been using for about 6 months can say absolutely his recurrence rate is less, in 6 months only one beginning outbreak; short lived. I have shared info about Valacyclovir and propolis to friends ravaged with cold sores and they have had great success. Now I am wondering if the Valacyclovir PX could help with GD. I may ask my derm for a px when my next GD recurrence starts and see if I can be allowed to be a Guinea Pig. If not may simply get into my husbands stash, I keep extra amounts of the 1 gram stocked because if he has a recurrence he must take it ASAP to suppress it and often these pill expire but I don't discard unless years old, just in case. When my trunk is broken out from GD it would not be realistic to think I could coat the entire area with small propolis tube of ointment, but may try in a limited area to see if it helps. He has been using Propolis Ointment Homopathic, 30 gram tube (3 pack) $16.17, made in Russia by Mos Pharma from Amazon with free shipping.

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@gardeningjunkie

Dear Babbs, Your research astounds me! It's amazing how motivating misery is; forces us to educate ourselves.
The article you referenced has scientifically researched information is above my level of comprehension, yet I did take away that heavy metals do negatively affect our bodies. I have been taking Chlorella for months. I read it helped with metal removal but I didn't understand the science behind it. I was taking it simultaneously with the cilantro, which now I understand from your explanation is not the proper order. I have been taking NOW brand, Chlorella 1000 mg once daily with no noticeable negative side effects. I stopped the cilantro a month ago, but still take the Chlorella. It's inexpensive Algae full of chlorophyll and beta carotene and figure it's good for me for those reasons alone.

Cold Sores, herpes 1, are a mystery to me. My husband of 51 years has suffered with them occasionally when younger but as a senior they were frequently recurring until he started on Valacyclovir treatment. He takes 5 mg daily or if he did become symptomatic about every 3 months in the same spot on his lower lip he takes 1 gram for a few days. He must take the 1 gram to stop it right at the beginning of the tingle sensation he recognizes as a recurrence. Before Valacyclovir his cold sore could last for months. I learned that bee propolis in ointment form helps some with cold sores- both healing and suppressing it is anti-bacterial and anti-fungal. I ordered on Amazon and now after he has been using for about 6 months can say absolutely his recurrence rate is less, in 6 months only one beginning outbreak; short lived. I have shared info about Valacyclovir and propolis to friends ravaged with cold sores and they have had great success. Now I am wondering if the Valacyclovir PX could help with GD. I may ask my derm for a px when my next GD recurrence starts and see if I can be allowed to be a Guinea Pig. If not may simply get into my husbands stash, I keep extra amounts of the 1 gram stocked because if he has a recurrence he must take it ASAP to suppress it and often these pill expire but I don't discard unless years old, just in case. When my trunk is broken out from GD it would not be realistic to think I could coat the entire area with small propolis tube of ointment, but may try in a limited area to see if it helps. He has been using Propolis Ointment Homopathic, 30 gram tube (3 pack) $16.17, made in Russia by Mos Pharma from Amazon with free shipping.

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You all are so good at your research. The article about the detoxing was way over my head. From what I understand detoxing with cilantro should not be done unless taking the Chlorella supplement prior. Due to the toxins going to another area which could cause more problems. Did I get the just of that correctly? I’m not taking the Chlorella supplements. I did try cilantro with a recent breakout. I did not do as much as others did which was about 1 cup. I did about 10 sprigs cut it up along with stems and hid it in my salads for a week. Probably not a detox amount. I’m assuming I’m ok even though I’m not taking Chlorella supplements. It was a tough week of itching and a few bumps but mostly gone and not itchy for a couple of days now. Still a few on my upper back shoulder area but crusting up and not itchy. Was also applying Sarna. In any case good for now. It also got cold and rainy in California and been indoors as we all know with the corona virus. So being inside may have benefited too. In any case my question is should I not be doing the cilantro even in small amounts if I’m not taking Chlorella?

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@hope4cure

You all are so good at your research. The article about the detoxing was way over my head. From what I understand detoxing with cilantro should not be done unless taking the Chlorella supplement prior. Due to the toxins going to another area which could cause more problems. Did I get the just of that correctly? I’m not taking the Chlorella supplements. I did try cilantro with a recent breakout. I did not do as much as others did which was about 1 cup. I did about 10 sprigs cut it up along with stems and hid it in my salads for a week. Probably not a detox amount. I’m assuming I’m ok even though I’m not taking Chlorella supplements. It was a tough week of itching and a few bumps but mostly gone and not itchy for a couple of days now. Still a few on my upper back shoulder area but crusting up and not itchy. Was also applying Sarna. In any case good for now. It also got cold and rainy in California and been indoors as we all know with the corona virus. So being inside may have benefited too. In any case my question is should I not be doing the cilantro even in small amounts if I’m not taking Chlorella?

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I ran out of chlorella and am still doing fine with the cilantro. I also reduced the cilantro dose and frequency as I have not had an outbreak for many months. I can still feel a stinging sensation if the area gets heated, such as when I am hugging my feather pillow at night to protect my shoulder. I simply remove the heat source and drink a cilantro smoothie the next few mornings. Keeping my fingers crossed.

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@mariannj

I ran out of chlorella and am still doing fine with the cilantro. I also reduced the cilantro dose and frequency as I have not had an outbreak for many months. I can still feel a stinging sensation if the area gets heated, such as when I am hugging my feather pillow at night to protect my shoulder. I simply remove the heat source and drink a cilantro smoothie the next few mornings. Keeping my fingers crossed.

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That’s awesome. What did you reduce your cilantro intake to?

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@hope4cure

That’s awesome. What did you reduce your cilantro intake to?

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To begin with, I really really really hate the taste of cilantro so I never used more than a fourth of a bunch including stems, except in the very beginning when I used a half bunch. I mask it with so much fruit: banana, frozen blueberries, peaches or strawberries and then add chocolate unsweetened almond milk till the blender measures four cups with other ingredients. The colder the better for me. I eventually got accustomed to the taste and reduced amount to 1/6 of a bunch. Then I missed a few days here and there. Then I missed almost a week and when I returned to the cilantro I almost gagged again, so staying with it is definitely acclimating my body to the taste. I may try the sweetened milk to see if it helps but I opted for the unsweetened because of the calories. I have my bottle of chlorella tabs next to my computer so I can reorder. Just haven't done it yet. Another thing I did to get rid of the Grover's in the beginning was the Whole 30 diet, which meant no sugar, dairy, grains, legumes and whatever else they deny you. That is what really worked for me. No inflammatory foods were allowed. You can go back in time to my posts. I was a fanatic about cotton only and even gave up my bra in lieu of undershirts and big tops. I was desperate, however. So many people shared their stories and encouraged me, especially gardening junkie. I freeze the cilantro in single servings. It has been a year since my initial outbreak and I will never EVER forget my misery. Good luck to you. Find a taste blend that works for you and stick with it, and go the cotton route. The whole 30 route was brutal but I adapted and I pretty much stick to most of it now. Unfortunately, sometimes I go crazy for chocolate. In addition, I cover the area with the thick vanicream twice a day.

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@mariannj

To begin with, I really really really hate the taste of cilantro so I never used more than a fourth of a bunch including stems, except in the very beginning when I used a half bunch. I mask it with so much fruit: banana, frozen blueberries, peaches or strawberries and then add chocolate unsweetened almond milk till the blender measures four cups with other ingredients. The colder the better for me. I eventually got accustomed to the taste and reduced amount to 1/6 of a bunch. Then I missed a few days here and there. Then I missed almost a week and when I returned to the cilantro I almost gagged again, so staying with it is definitely acclimating my body to the taste. I may try the sweetened milk to see if it helps but I opted for the unsweetened because of the calories. I have my bottle of chlorella tabs next to my computer so I can reorder. Just haven't done it yet. Another thing I did to get rid of the Grover's in the beginning was the Whole 30 diet, which meant no sugar, dairy, grains, legumes and whatever else they deny you. That is what really worked for me. No inflammatory foods were allowed. You can go back in time to my posts. I was a fanatic about cotton only and even gave up my bra in lieu of undershirts and big tops. I was desperate, however. So many people shared their stories and encouraged me, especially gardening junkie. I freeze the cilantro in single servings. It has been a year since my initial outbreak and I will never EVER forget my misery. Good luck to you. Find a taste blend that works for you and stick with it, and go the cotton route. The whole 30 route was brutal but I adapted and I pretty much stick to most of it now. Unfortunately, sometimes I go crazy for chocolate. In addition, I cover the area with the thick vanicream twice a day.

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Now that you said you don’t like the flavor of cilantro I remember your older posts. My daughter can’t even stand the smell of it. For now I’m going to stick to just a little. And not everyday. I acquired a taste for it in salsa from a favorite Mexican restaurant. But, those were the fun days of eating. Now it’s mostly gluten free, (even though I don’t have an issue with just by choice) very little dairy, no sugar unless in the very little amount of fruit I eat like blueberries and an occasional splurge. Found sticking to anti inflammatory foods is best overall. No alcohol, preservatives, nitrites, lots of water and as much organic as I can get. Sometimes is gets really boring but boring is better than the itchies or seeing a grover. The healthier diet helps with the eczema on my scalp too. I think I’m just venting now sorry 🙄 lol I gave up the bra too. If I go out it comes off immediately once I’m home. I’ve figured out a few quirks on my own but this site has brought much hope and education.

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@mariannj

To begin with, I really really really hate the taste of cilantro so I never used more than a fourth of a bunch including stems, except in the very beginning when I used a half bunch. I mask it with so much fruit: banana, frozen blueberries, peaches or strawberries and then add chocolate unsweetened almond milk till the blender measures four cups with other ingredients. The colder the better for me. I eventually got accustomed to the taste and reduced amount to 1/6 of a bunch. Then I missed a few days here and there. Then I missed almost a week and when I returned to the cilantro I almost gagged again, so staying with it is definitely acclimating my body to the taste. I may try the sweetened milk to see if it helps but I opted for the unsweetened because of the calories. I have my bottle of chlorella tabs next to my computer so I can reorder. Just haven't done it yet. Another thing I did to get rid of the Grover's in the beginning was the Whole 30 diet, which meant no sugar, dairy, grains, legumes and whatever else they deny you. That is what really worked for me. No inflammatory foods were allowed. You can go back in time to my posts. I was a fanatic about cotton only and even gave up my bra in lieu of undershirts and big tops. I was desperate, however. So many people shared their stories and encouraged me, especially gardening junkie. I freeze the cilantro in single servings. It has been a year since my initial outbreak and I will never EVER forget my misery. Good luck to you. Find a taste blend that works for you and stick with it, and go the cotton route. The whole 30 route was brutal but I adapted and I pretty much stick to most of it now. Unfortunately, sometimes I go crazy for chocolate. In addition, I cover the area with the thick vanicream twice a day.

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Thank you for all of this good advice. I’m trying to find cilantro to make smoothies. I also don’t care for the taste but will mask with fruits. With this COVID pandemic finding certain items is difficult but looking forward to getting relief from these itchy painful outbreaks and rash. I’ve tried calamine, aloe Vera, Sarna, prescription steroid creams, Vick’s, frozen tea bags. My diet is not great so may have to modify.
Keep the tips coming.

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@mariannj

To begin with, I really really really hate the taste of cilantro so I never used more than a fourth of a bunch including stems, except in the very beginning when I used a half bunch. I mask it with so much fruit: banana, frozen blueberries, peaches or strawberries and then add chocolate unsweetened almond milk till the blender measures four cups with other ingredients. The colder the better for me. I eventually got accustomed to the taste and reduced amount to 1/6 of a bunch. Then I missed a few days here and there. Then I missed almost a week and when I returned to the cilantro I almost gagged again, so staying with it is definitely acclimating my body to the taste. I may try the sweetened milk to see if it helps but I opted for the unsweetened because of the calories. I have my bottle of chlorella tabs next to my computer so I can reorder. Just haven't done it yet. Another thing I did to get rid of the Grover's in the beginning was the Whole 30 diet, which meant no sugar, dairy, grains, legumes and whatever else they deny you. That is what really worked for me. No inflammatory foods were allowed. You can go back in time to my posts. I was a fanatic about cotton only and even gave up my bra in lieu of undershirts and big tops. I was desperate, however. So many people shared their stories and encouraged me, especially gardening junkie. I freeze the cilantro in single servings. It has been a year since my initial outbreak and I will never EVER forget my misery. Good luck to you. Find a taste blend that works for you and stick with it, and go the cotton route. The whole 30 route was brutal but I adapted and I pretty much stick to most of it now. Unfortunately, sometimes I go crazy for chocolate. In addition, I cover the area with the thick vanicream twice a day.

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It turns out that there is a certain segment of the population who genetically cannot stand the smell or taste of cilantro. I'm. not making that up: https://www.npr.org/sections/thesalt/2012/09/14/161057954/love-to-hate-cilantro-its-in-your-genes-and-maybe-in-your-head If so, don't despair. It looks like chlorella alone seems to be an excellent heavy metal detox. I wish cilantro was working for me, but it hasn't done a thing. I should be getting chlorella later this week. Fingers crossed. I also gave up my bra. For some reason, I am currently itching way more than usual, although my rash has subsided considerably. Feels like I'm being punished for some very serious misdeeds.

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I am one of those that have an aversion to cilantro. But I LOVE the fact it helped me get rid of the Grover's over a period of two months. I would happily choke it down again if it ever comes back.

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Freedom from nitrates helped me minimize itching.

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@kimass1

I am one of those that have an aversion to cilantro. But I LOVE the fact it helped me get rid of the Grover's over a period of two months. I would happily choke it down again if it ever comes back.

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How long have you been off cilantro?

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