High calcium score: I'm in shock

Posted by sjy70 @sjy70, Jun 14, 2021

Hi everyone... just wanted to share my last few days - I'm scared and lost and was just hoping to hear from some people who have been in my place. Long story short - I went in for a "routine" checkup at age 50 to make sure my heart was okay. I had a stress test two years ago that was fine. But I do have a family history, and somewhat high LDL and blood pressure so the doctor sent me for a cardiac calcium score. It came back at 407 at age 50!!! That's like the 98th percentile for my age, which is shocking. I do Crossfit and have done half marathons so it was totally unexpected. Now I'm going for another stress test in two weeks to make sure no blockages are over 70%, and I'm not sure of the steps after that.... I'm terrified of needing open heart surgery - I've gotten myself into a place of being okay with a stent if needed. I know it's better to know than not know, but I just feel like my life was suddenly ripped out from under me and to be honest I'm spinning right now... every waking second I feel like I'm going to drop over..

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

@mayoconnectuser1

Those are not just good, they are very good. LDL could be lowered a bit more.

HDL is pretty high, but I don't know much about that, however, lots written on it - this from a Cleveland Clinic link: (https://my.clevelandclinic.org/health/articles/24395-hdl-cholesterol )

"What does it mean if I have high HDL?
An elevated, or abnormally high, HDL level is anything above 80 mg/dL.
One thing that can make your HDL cholesterol high is a genetic mutation. Some mutations to your genes can cause your body to produce too much HDL cholesterol or have trouble getting rid of it. For example, a mutation to the CETP gene can cause your HDL to be higher than 150 mg/dL.
Other causes of abnormally high HDL can include:
Hyperthyroidism.
Primary biliary cholangitis.
Alcohol use disorder.
Certain medications.
Your healthcare provider will investigate the cause of your elevated HDL and tell you if you need treatment."

Jump to this post

My GP had told me a high HDL is good and it helps with any bad LDL ?

REPLY

I'm in shock also and am looking for perspective. Just got results of 1,208 CAC. I'm 57, asymptomatic, active, with a very healthy diet, feel great, and have a family history of CVD on both sides. 2.5 years ago, I had a normal echo and treadmill stress test and just learned now that my CAC was 769 then(!) My primary put me on 20mg Rosuvastatin, 10mg Ezetimibe and 80mg Valsartan and did not refer to a cardiologist. Now total cholesterol is 100 (LDL 44, HDL 40), avg bp 130/70 with 55-60 bpm. My new primary bumped me up to 140mg valsartan and ref'd me to a cardiologist. I have an echo today and a CT Angiogram in two weeks. I am eliminating red meat, eggs, and dairy, and trying not to be scared until we see what the CT Angiogram reveals. In the meantime, I'm scared. I've already outlived one grandfather and watched the other live miserably for 14 more years after a stroke left him half paralyzed at 63. How common is high CAC with low blockage? Any insights are appreciated.

REPLY
@chrisaw

I'm in shock also and am looking for perspective. Just got results of 1,208 CAC. I'm 57, asymptomatic, active, with a very healthy diet, feel great, and have a family history of CVD on both sides. 2.5 years ago, I had a normal echo and treadmill stress test and just learned now that my CAC was 769 then(!) My primary put me on 20mg Rosuvastatin, 10mg Ezetimibe and 80mg Valsartan and did not refer to a cardiologist. Now total cholesterol is 100 (LDL 44, HDL 40), avg bp 130/70 with 55-60 bpm. My new primary bumped me up to 140mg valsartan and ref'd me to a cardiologist. I have an echo today and a CT Angiogram in two weeks. I am eliminating red meat, eggs, and dairy, and trying not to be scared until we see what the CT Angiogram reveals. In the meantime, I'm scared. I've already outlived one grandfather and watched the other live miserably for 14 more years after a stroke left him half paralyzed at 63. How common is high CAC with low blockage? Any insights are appreciated.

Jump to this post

I am not sure how common high CAC without blockage is, but anecdotally, a lot of folks post here that have very high CAC with no problems that require intervention. My CAC is 600ish and I have no blockage greater than 50%. (Not sure how close it is to 50 … I’m in the second category .. >25 and < 50 is my recollection)

It’s usual that your CAC score will go up after going on a statin, because the statin calcifies the plaque and the CAC test picks up on the calcium. There are noninvasive tests that will provide the percent blockage but some doctors won’t prescribe them until you are symptomatic. I was fortunate that because my LAD was involved, the doctor prescribed it. I guess there are pros and cons to knowing exactly what’s going on, but I got lucky and my situation was better than I thought it would be.

You might have your lipoprotein(a) tested. I gather soon there will be drugs to bring it down. You also might be interested in “Beat The Heart Attack Gene” by Bale et al. I have a family history and it was a good introduction to my situation when I learned about the high CAC score. I wish I had read it sooner.

Good luck!

REPLY
@chrisaw

I'm in shock also and am looking for perspective. Just got results of 1,208 CAC. I'm 57, asymptomatic, active, with a very healthy diet, feel great, and have a family history of CVD on both sides. 2.5 years ago, I had a normal echo and treadmill stress test and just learned now that my CAC was 769 then(!) My primary put me on 20mg Rosuvastatin, 10mg Ezetimibe and 80mg Valsartan and did not refer to a cardiologist. Now total cholesterol is 100 (LDL 44, HDL 40), avg bp 130/70 with 55-60 bpm. My new primary bumped me up to 140mg valsartan and ref'd me to a cardiologist. I have an echo today and a CT Angiogram in two weeks. I am eliminating red meat, eggs, and dairy, and trying not to be scared until we see what the CT Angiogram reveals. In the meantime, I'm scared. I've already outlived one grandfather and watched the other live miserably for 14 more years after a stroke left him half paralyzed at 63. How common is high CAC with low blockage? Any insights are appreciated.

Jump to this post

chrisaw,

Your LDL lipid number looks very good, HDL is low (normally something you would address with exercise) ... BP systolic a bit high at 130. What about triglycerides? I'm not a med pro.

A stress with echo (this means echo before and immediately after stress test) should have provided some indication of ejection fraction ... do you have the writeups?

What score did they assign to your stress test? METS?

A huge diet change may not make much difference since the plaque has built up over a long period, and your current LDL is good.

REPLY

My understanding is a huge diet change will help with progression .

REPLY
@lp77

My understanding is a huge diet change will help with progression .

Jump to this post

Well, it probably depends on one's baseline. If you're eating fast food breakfast tacos, fast food burgers, steaks and pork chops for dinner with fatty snacks between, then sure. But in these cases medical intervention with BP meds, and cholesterol lowering meds is likely first line (I'm not a med professional) while long term diet modification occurs.

In many of the cases posted here, folks are simply dealing with the long term cholesterol buildup (60 years in many cases) ... so sure, slowing progression with diet change helps, but it took a long time to get to the high cholesterol buildup.

In my case - I've been married for nearly 50 years - we eat at home most of the time. We had kids and when there was no other choice did fast food, but cooked most of the time at home. Net - I ate what my wife ate. Had a bit more alcohol, but pretty much same intakes. Her CAC zero, my CAC 1365.

I take statin, BP med (mild), 81mg aspirin, icosapent ethyl, vitamin. She takes no statin, no aspirin, no icosapent ethyl.

The genetic predisposition ... sorry, got off topic!

REPLY
@mayoconnectuser1

Well, it probably depends on one's baseline. If you're eating fast food breakfast tacos, fast food burgers, steaks and pork chops for dinner with fatty snacks between, then sure. But in these cases medical intervention with BP meds, and cholesterol lowering meds is likely first line (I'm not a med professional) while long term diet modification occurs.

In many of the cases posted here, folks are simply dealing with the long term cholesterol buildup (60 years in many cases) ... so sure, slowing progression with diet change helps, but it took a long time to get to the high cholesterol buildup.

In my case - I've been married for nearly 50 years - we eat at home most of the time. We had kids and when there was no other choice did fast food, but cooked most of the time at home. Net - I ate what my wife ate. Had a bit more alcohol, but pretty much same intakes. Her CAC zero, my CAC 1365.

I take statin, BP med (mild), 81mg aspirin, icosapent ethyl, vitamin. She takes no statin, no aspirin, no icosapent ethyl.

The genetic predisposition ... sorry, got off topic!

Jump to this post

It's a fair conversation and I agree that baseline matters.

I'm looking for data showing a causation or correlation between sudden diet changes, primarily a reduction of daily saturated fat from animals, and cvd.

My numbers are managed except CAC 1,208. However, I lost both grandfather's to arteriosclerosis.

Everything I'm finding is data linking saturated fat with cvd progression.

My goal is to stop the progression of lesions and formation of new blockage.

Is there opposing data for more than short-term future?

Im thinking where I'll be in 10 or 15 years.

Yes, it's calcified now. I am wondering about my brain and the rest of my circulatory system that may not have as much blockage yet.

My inner voice is saying the diet that got me here is not going to change direction and get me where I want to go. Years 10-15-20-25...

REPLY
@mayoconnectuser1

Well, it probably depends on one's baseline. If you're eating fast food breakfast tacos, fast food burgers, steaks and pork chops for dinner with fatty snacks between, then sure. But in these cases medical intervention with BP meds, and cholesterol lowering meds is likely first line (I'm not a med professional) while long term diet modification occurs.

In many of the cases posted here, folks are simply dealing with the long term cholesterol buildup (60 years in many cases) ... so sure, slowing progression with diet change helps, but it took a long time to get to the high cholesterol buildup.

In my case - I've been married for nearly 50 years - we eat at home most of the time. We had kids and when there was no other choice did fast food, but cooked most of the time at home. Net - I ate what my wife ate. Had a bit more alcohol, but pretty much same intakes. Her CAC zero, my CAC 1365.

I take statin, BP med (mild), 81mg aspirin, icosapent ethyl, vitamin. She takes no statin, no aspirin, no icosapent ethyl.

The genetic predisposition ... sorry, got off topic!

Jump to this post

I am in the same boat but had a NSTEMI at 57. I had a CAC score of 952…but I have been eating well…low carb plant based for over 30 years, exercise regularly, and love life and my job. I have statin intolerance, so could not take statins, but avoided red meat and saturated fats.

It wasn’t until John’s Hopkins tested me for Lipoprotein(a). It is a separate risk for CVD. My test came back at 312 nmol. Get your Lipoprotein(a) tested - it is not included in your lipid panel. You are doing all the right things…and remember…the stuff(calcified plaque) you see is not as dangerous as the stuff the doctors don’t see.

My brother smoked and drank for 40 years, was overweight, stressful job, and had a pretty rough diet from so much travel for work. He has been on low dose statins for nearly 15 years and has a lower CAC score (125), younger than me, and heart attack. His Lp(a) is 188 nmol…still high but less than mine. I think the statins helped him… So sometimes lifestyle doesn’t really matter. 😉

Kindest regards…life is good.

REPLY
@vaniag

I am in the same boat but had a NSTEMI at 57. I had a CAC score of 952…but I have been eating well…low carb plant based for over 30 years, exercise regularly, and love life and my job. I have statin intolerance, so could not take statins, but avoided red meat and saturated fats.

It wasn’t until John’s Hopkins tested me for Lipoprotein(a). It is a separate risk for CVD. My test came back at 312 nmol. Get your Lipoprotein(a) tested - it is not included in your lipid panel. You are doing all the right things…and remember…the stuff(calcified plaque) you see is not as dangerous as the stuff the doctors don’t see.

My brother smoked and drank for 40 years, was overweight, stressful job, and had a pretty rough diet from so much travel for work. He has been on low dose statins for nearly 15 years and has a lower CAC score (125), younger than me, and heart attack. His Lp(a) is 188 nmol…still high but less than mine. I think the statins helped him… So sometimes lifestyle doesn’t really matter. 😉

Kindest regards…life is good.

Jump to this post

I, too, had advanced lipids test done in mid 2022 - a pretty low 28 nmol.

My CAC increased from 1350 (2019) to 2350 (2023). Started statins in 2017 so perhaps this is continuing calcification.

REPLY
@mayoconnectuser1

I, too, had advanced lipids test done in mid 2022 - a pretty low 28 nmol.

My CAC increased from 1350 (2019) to 2350 (2023). Started statins in 2017 so perhaps this is continuing calcification.

Jump to this post

Probably… I hope you are feeling good and doing well. The heart attack really slowed me down. I don’t know if it is because I am too sensitive, the meds, or the blockages are holding blood flow back. But I realized I never really ever slowed down in my life and just enjoyed it. I am now…life is good.

I hope you and your wife take good care of yourselves and have some fun! 🤩

REPLY
Please sign in or register to post a reply.