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Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
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My Celiac Aneurysm was found the same way. A CT scan looking for kidney stones uncovered the CA. I wasn't informed about it but became concerned while reading the results of the scan. I contacted my doctor who referred me to a vascular surgeon. I discussed it with him and he suggested that I monitor it periodically to determine if it increases in size. I am in a wait and see mode like most of us.
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1 ReactionThank you for your replies I didn't know there was a lot of people like myself I found out about mine from ACT scan another doctor took but never told me sent me to another doctor that was a surgeon and found out from him after he read that report he called me and said I have aneurisms on my aorta never knew for 6 months and number days doing anything but keep an eye On it I don't know what to do for Certain things in Alaska
About two weeks ago, after two days of worsening pain....starting with what felt like indigestion in my upper left abdomen with increasing low then full back pain....and an inability to find any position that was comfortable, or be able to eat, I went to an Urgent Care where they did all the tests, plus a CT, all of which were normal. They then suggested I head to our very busy ER. They, too, did all the tests, plus a CT. An attentive radiologist saw a barely visible anomaly in my celiac artery. They did another CT to confirm, told me I was going into surgery as soon as the surgeon, an Interventional Radiologist, and his team arrived at the hospital. Barely had time to call family, arrange for care for my dogs. The CT scan showed disruption of the celiac arterial trunk from dissection with intramural hematoma and development of pseudoaneurysm. The final “Impression” after the closed surgery was: Initial visceral angiography confirming an irregular dissection of the celiac artery and development of prominent, irregular pseudoaneurysm from the false lumen. Due to the irregular narrowed lumen, primary repair with stent graft placement was not possible. Alternative, successful coil embolization of the celiac artery trunk and bifurcation and left gastric artery to prevent further pseudoaneurysm growth and mitigate risk of rupture and hemorrhage.
So I got lucky. None of this showed up two months ago on a CT I have every year to monitor an aneurysm in my ascending aorta. I don’t know what caused it or what any of this means for the future. The surgeon had seen this before and was well qualified to perform this procedure. My experienced PCP had never seen this before. I live in central Oregon, in Bend, where I would not have thought my care could be so good. The surgeon was Dana Mann, MD.
Now I need to find out how to take care of myself. Diet, exercise, future monitoring. Wish my energy would come back. Maybe with time.
I was incredibly lucky and am so grateful to the fine people working at our one hospital, who cared enough to save my life.
Thank you for letting me share this journey with you. So glad I found you all.
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4 ReactionsWow!!! that certainly happened fast.. Glad that you had a great surgeon to take care of you. Just take it easy and follow doctors orders..
That is so incredibly fortunate that you had a team of medics that were clued in and competent. I hope you continue to heal well. This reassures my feelings that monitoring is important as I too live in an area in Canada that I pray will have the experience should my aneurysm start changing. Thanks for sharing .
That is great news and thanks for sharing!!!
Thank you all so much for your replies. I was so frightened by this dissection, coming out of nowhere, and was so relieved to find you. No idea the cause, or whether there are more surprises awaiting me, just needed to share the facts. Am dealing with the emotional part as best I can. Thank you again for being here.
Hi, my name is Mary and I have been diagnosed with a celiac aneurysm with mesenteric haziness found during a colonoscopy.
The aneurysm is 1.3 cm. I have to wonder if the number that is used for determining an operation is based on males. I'm 5'4", whereas my husband is 6'3". Why would we use the same size of aneurysm to determine time for an operation? No one in SW Florida is experienced in this rare condition. If I went to the Mayo in Jackson, who would I go to? Any recommendations? I am frightened and feel like I've got a ticking time bomb inside me. 😳
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1 ReactionMary
I have been in this group for more than a year. The rarity of this condition is likely a significant reason as to why our respective doctors have varying views as to monitoring and potential corrective treatment. A couple have had their CA repaired so I urge you to read all the postings to learn of their experiences , where they were treated and how the majority of us who have not had treatment deal with the condition. My CA is 1.5 cm and I just had a scan last week and met with my Dr. who is a vascular surgeon at UCLA. I met with on Monday and he told me not to worry and have it scanned again in 3 years. He told me that it hasn't increased in size vey much since it was first discovered 7 years ago and it is unlikely to ever become a problem. My experience and medical advice differs from others so reading other postings could be helpful to you. I do recall that someone who I believe is a nurse was contemplating a move to Jacksonville as the Mayo Clinic there has experience with CA repair.
Regards
Dennis
I don’t know the answer, but I’m 5’3 also and my aneurysm is also 1.3cm. I’ve had it for 2 years that I’m aware of. I was freaked out when I found out but have come to grips with it and don’t worry at all. I get an ultrasound every year. They say it’s stable.
Best wishes!