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Celiac Artery Aneurysm: Anyone else with same illness?

Aortic Aneurysms | Last Active: Feb 27 5:36pm | Replies (497)

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@asdf

Hi, my name is Mary and I have been diagnosed with a celiac aneurysm with mesenteric haziness found during a colonoscopy.

The aneurysm is 1.3 cm. I have to wonder if the number that is used for determining an operation is based on males. I'm 5'4", whereas my husband is 6'3". Why would we use the same size of aneurysm to determine time for an operation? No one in SW Florida is experienced in this rare condition. If I went to the Mayo in Jackson, who would I go to? Any recommendations? I am frightened and feel like I've got a ticking time bomb inside me. 😳

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Replies to "Hi, my name is Mary and I have been diagnosed with a celiac aneurysm with mesenteric..."

Mary

I have been in this group for more than a year. The rarity of this condition is likely a significant reason as to why our respective doctors have varying views as to monitoring and potential corrective treatment. A couple have had their CA repaired so I urge you to read all the postings to learn of their experiences , where they were treated and how the majority of us who have not had treatment deal with the condition. My CA is 1.5 cm and I just had a scan last week and met with my Dr. who is a vascular surgeon at UCLA. I met with on Monday and he told me not to worry and have it scanned again in 3 years. He told me that it hasn't increased in size vey much since it was first discovered 7 years ago and it is unlikely to ever become a problem. My experience and medical advice differs from others so reading other postings could be helpful to you. I do recall that someone who I believe is a nurse was contemplating a move to Jacksonville as the Mayo Clinic there has experience with CA repair.

Regards

Dennis

I don’t know the answer, but I’m 5’3 also and my aneurysm is also 1.3cm. I’ve had it for 2 years that I’m aware of. I was freaked out when I found out but have come to grips with it and don’t worry at all. I get an ultrasound every year. They say it’s stable.
Best wishes!

@asdf - The Cleveland Clinic in FL may be closer to you than Mayo in Jacksonville. I think their hospital is near the west coast in addition to a clinic in West Palm Beach.