Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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somehow the first part of my reply disappeared. I ave Factor V Leiden which is a gene mutation. the Effect is that my body makes blood clots too easily. My celiac is very compressed and I may have MALS but the radiologists were hesitant to interpret it as MALS. My renal artery is narrowed, as well as my lower illiac and my femoral artery was full of clots, but I now have two stents placed in the femoral. I am on Xarelto 20 mgs and oh Plavix and will be for the rest of my life, The celiac compression gives me only mild discomfort. Beyond the compression is a small 9mm aneurysm.

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I am sorry that you are having to deal with all of this bad news, Susan Thanks for the celiac info.

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Hey! I was diagnosed with Ciliac aneurysm last month. I ran across your post hoping For a little info.

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@burchtl

Hey! I was diagnosed with Ciliac aneurysm last month. I ran across your post hoping For a little info.

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Sure. Will you be getting a stent? Where do you live?

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Yes a stent but they will do also a bipass have a open Surgery 30, of january

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@mfolan

Sure. Will you be getting a stent? Where do you live?

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I’m not sure. I go to a cardiologist on the 30th. I live in North Mississippi. It was found while doing a ct scan of my renal arteries. Luckily the renal arteries are fine.

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Has anyone else after having a stent in the celiac artery still has digestive issues? I still have bloating and certain foods irritate my digestion which leads to issues. UGH!

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I find that a probiotic daily similar to an over the counter "Saccharomyces Boulardii" works for me in mitigating gas and diarrhea…and that urgent necessity..

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@ken82

I find that a probiotic daily similar to an over the counter "Saccharomyces Boulardii" works for me in mitigating gas and diarrhea…and that urgent necessity..

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Yes! Bloating, gas, urgency to get to a bathroom. Horrible. Dr. Koufman's book Drop Acid (Amazon) has been a huge help. A tsp. of honey has surprisingly helped with bloating and gas. If I veer off the foods in this book, which was recommended by my doctor, I l'll pay with a big digestive upheaval that will take me a few days to stabilize. Good luck to you finding what works best for your personal health situation. Before my celiac aneurysm arrived, I never had any of these issues. 😳🙄

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@hopeful33250

@jurney01 Hi Jen: I just saw your post regarding your health problem. I’m so sorry to hear about that, but I’m glad that you were able to have a procedure to help. While I’ve never been diagnosed with this, I also have a rare disorder, Neuroendocrine tumors, and I know how important it is to connect to others who are also going through something similar. Hopefully, someone on Mayo Connect will be able to relate with you and share their experiences. I see that you just recently joined Mayo Connect so let me welcome you to this very supportive, encouraging community. We are here for each other and learn from each other!

I “googled” the disorder and I see that is very rare. If you would like to share your experience, please let us know how your doctor found this aneurysm and if you were having specific symptoms or if it was just found incidentally. Best wishes to you as you share your experience and find help and support from others! Teresa

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I too have a celiac artery compression
Not sure if it is a tangle of nerves compressing it or a ligament from my diaphragm )MALS). There is a 9 m mlm aneurysm beyond the compression
I have no pain at all . I do have factor Leiden V heterogenous, which means i have a propensity to form blood clots. I have two other arteries that leave the abdominal Ao
rta: renal and lower iliac which boyh have significant stenosis with thrombus. I just comleted surgery for clots in my femoral artery. Blood from the artery filled my abdominsl cavity. I was awake because m bp kept tanking and they could not give me anesthesia. I was in exteme pain my foot and leg started swelling and i lost all feeling in my foot. I was freezing cold and at one point mu haglobin was 4. Finally my bp went up enough and i was given something and my cardiologist inserted two stents. Ivwoke up with swelling going down and could wiggle my toes. My abdomen still hurt.i do not have any pail that MALS patients ha e and do not know why i don't. I wish you all well with your surgeries. I was 5 minutes away from a total leg amputatio.

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