Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms group.

@auntbrenda44

Hello. I’m new here. My celiac artery aneurysm is 2cm. I was diagnosed recently and my vascular surgeon advised that I will likely require an open surgical procedure as opposed to a stent. At this time I’m still having more CT scans and working with a cardiologist as I must be cleared by him first. When I first heard the work aneurysm I panicked as my mom died of an aortic aneurysm rupture. Sometimes I feel like I’m walking around with a time bomb. I’ve been trying to find information as to things to avoid, i.e foods, activities etc. Thank you for reading.

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My surgeon said that surgery shouldn't be considered unless the aneurysm is at least 2.5 cm. I have done some of my own research by reading articles in the Journal of American medical association and Journal of Vascular surgery and I have found articles that agree with him. Also from what I have read Aortic Aneurysms are much more likely to rupture than Aneurysms in the Celiac Artery.

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@hopeful33250

Thanks for your response, @auntbrenda44. It sounds like everything is coming along. I would like to hear how you are progressing. Will you keep in touch with updates as to the surgery date and any other concerns you might have? Did your doctor give you any idea how long you might be hospitalized after surgery?

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Hello Teresa. I hope that this finds you well. It looks like my surgery will be the first week in June. I have a CTA scheduled for next Friday (took 3 tries for insurance to approve) and then will be meeting with my vascular surgeon the following Monday. I am reaching out to see if anyone has experience with the open procedure and perhaps would be willing to share their experience, recovery, etc. Continued many thanks, Brenda

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@auntbrenda44

Hello Teresa. I hope that this finds you well. It looks like my surgery will be the first week in June. I have a CTA scheduled for next Friday (took 3 tries for insurance to approve) and then will be meeting with my vascular surgeon the following Monday. I am reaching out to see if anyone has experience with the open procedure and perhaps would be willing to share their experience, recovery, etc. Continued many thanks, Brenda

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P.S. Turns out the oirginal sizing of the aneurysm was incorrect. Newest film shows 2.5cm x 1.9cm.

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@auntbrenda44

Hello Teresa. I hope that this finds you well. It looks like my surgery will be the first week in June. I have a CTA scheduled for next Friday (took 3 tries for insurance to approve) and then will be meeting with my vascular surgeon the following Monday. I am reaching out to see if anyone has experience with the open procedure and perhaps would be willing to share their experience, recovery, etc. Continued many thanks, Brenda

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Thank you so much for your update @auntbrenda44. I'm sure you are relieved to have this surgery scheduled and to be progressing in the resolution of this problem. I hope that others who have had the open procedure will post with you to let you know of their experiences. If the invasive surgery will eradicate the aneurysm, I can understand why that would be preferable.

You and your doctor are to be congratulated for persisting in getting the approval for a CT scan. It takes a lot of follow-ups to make these procedures happen. Please keep in touch before the surgery and let us know how you are doing.

Do you know how long you will be hospitalized after the surgery? Will you have support/help when you return home?

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@hopeful33250

Thank you so much for your update @auntbrenda44. I'm sure you are relieved to have this surgery scheduled and to be progressing in the resolution of this problem. I hope that others who have had the open procedure will post with you to let you know of their experiences. If the invasive surgery will eradicate the aneurysm, I can understand why that would be preferable.

You and your doctor are to be congratulated for persisting in getting the approval for a CT scan. It takes a lot of follow-ups to make these procedures happen. Please keep in touch before the surgery and let us know how you are doing.

Do you know how long you will be hospitalized after the surgery? Will you have support/help when you return home?

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Dear Teresa, thank you for your continued kind thoughts. It means a great deal to me.

I was told that the less invasive (stent) procedure is not an option. I do not know why. I suspect it may be due to my BMI.

It certainly was frustrating to worry about being approved for the CTA. I am unable to tolerate a traditional or pharmaceutical stress test so this CAT scan ordered by my cardiologist is vital to being cleared for surgery.

I do not yet know how long my anticipated hospital stay will be. I am meeting with my vascular surgeon on the 24th and expect to get the details.

I live alone and am cautiously optimistic about being able to recuperate on my own for the most part. My son and my brothers will be available to come by. Although both brothers offered for me to recover at their homes I prefer to be at my own and deeply hope that this is realistic.

Thank you again. It truly helps to communicate with someone who understands and I am sincerely grateful.

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@auntbrenda44

Dear Teresa, thank you for your continued kind thoughts. It means a great deal to me.

I was told that the less invasive (stent) procedure is not an option. I do not know why. I suspect it may be due to my BMI.

It certainly was frustrating to worry about being approved for the CTA. I am unable to tolerate a traditional or pharmaceutical stress test so this CAT scan ordered by my cardiologist is vital to being cleared for surgery.

I do not yet know how long my anticipated hospital stay will be. I am meeting with my vascular surgeon on the 24th and expect to get the details.

I live alone and am cautiously optimistic about being able to recuperate on my own for the most part. My son and my brothers will be available to come by. Although both brothers offered for me to recover at their homes I prefer to be at my own and deeply hope that this is realistic.

Thank you again. It truly helps to communicate with someone who understands and I am sincerely grateful.

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Hello @auntbrenda44, I'm so pleased to hear from you again. I'm glad that Connect is helpful to you. After going through surgeries myself I know how important it is to be able to share your concerns.

I certainly understand your desire to be at home where you are more comfortable. I would encourage you, however, to reach out for help after your surgery. After my major surgeries (which required a 7-day hospital stay) it was really important to have someone nearby who could help me. You will probably know more about the help you will need when you are discharged from the hospital.

Will you post again after your appointment on the 24th?

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Saccharomyces Boulardii Hi am trying to find latest comments…. have been recommended this by Naturopah laste week in Canada.
I have had radiation damage to bowel many years ago, IBS=D, C.DIFF 2018 and since then fecal incontinence. I take Imodium as needed which is probably one full pill every other day and half a pill the day in between but still many messes, diet is poor.

My question, as I dont see Naturopath for a month:
Can I, or should I, still take Imodium on the same days (all) I take Saccaromyces Boulardi? Or do I give up the Imodium and see how the Saccharomyces Boulardii works?

As an aside I was upset, just found an OLD doctor file sitting here at home and read when he did colonoscopy in 2008 both he and my family doctor said all ok…that radiation damage from 1985 had healed; then I read that at a certain point in my bowel I had some Diverticulitis!!!!!!
Would have been nice if they had told me? Would this have caused all my bowel problems since that time? Upset.

Now I am slated for a surgeon to do a colonoscopy mid June I have never met him, arranged via referral from emerge clinic as have no fam. dr. and a form to fill in and BRING TO APPOINTMENT… and he knows nothing about my other illnesses…wont until the day I have test done and only then he sees my replies to all the questions: whats going on here? What if he sees something that stops the test or ??

I am 77 and would have preferred an mri of abdomen but another gastro office I phoned said our hospital cannot afford to do them, so its a colonoscopy. THANKS FOR YOUR HELP, AGAIN

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@hopeful33250

Hello @auntbrenda44, I'm so pleased to hear from you again. I'm glad that Connect is helpful to you. After going through surgeries myself I know how important it is to be able to share your concerns.

I certainly understand your desire to be at home where you are more comfortable. I would encourage you, however, to reach out for help after your surgery. After my major surgeries (which required a 7-day hospital stay) it was really important to have someone nearby who could help me. You will probably know more about the help you will need when you are discharged from the hospital.

Will you post again after your appointment on the 24th?

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Hello Teresa. I hope that this finds you and all well. To update, I have been told that my median arcuate ligament is pressing on the celiac artery and aneurysm. My surgeon advises that both she and one of her vascular surgeon partners will perform my surgery. This week she informed me that her third partner was advocating that I undergo an endovascular rather than open surgical procedure. She requested that I obtain a second opinion. Although I have scheduled a second opinion for this Friday, I feel firm in that I want to go ahead with the open procedure because the endovascular will not permanently eradicate the aneurysm and cut at the median arcuate ligament to alleviate the pressure. Although of course I am not keen on an extensive surgical procedure and the associated risks of any major surgery, the thought of possibly having to undergo future surgery(ies), at a later age (I am presently 61) is far more negative for me. It is hoped that I will have surgery within the next 2 weeks. I am told that I will likely be hospitalized for 5-7 days, spend first 2 days in ICU with tube in nose to allow large intestine to recover. Once home it sounds highly unlikely that I will need the originally stated 6-8 week recovery (I am cautiously optimistic on this) and only 2 weeks without driving. I would be so grateful to hear from any people who read this and have experience with this surgery. Many thanks.

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@auntbrenda44 I so appreciate the update. I'm glad that you are in the home stretch in terms of scheduling your surgery and having a resolution to your problem.

I can understand how you made your decision to have open surgery. I'll be interested in hearing the opinion of the doctor you will see for your second opinion.

It seems to me that you have looked at these options and you feel that open surgery will be a good solution and will avoid other surgeries in the future. Is that correct?

While my previous surgeries were for a different diagnosis, I also spent 5 – 7 days in the hospital with an NG tube as well. That seems to be typical for surgery involving the upper digestive tract.

How is your health in general? Do you have any heart, kidney, untreated blood pressure problems?

I would like to follow your progress. Please keep in touch.

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@hopeful33250

Hello @auntbrenda44, I'm so pleased to hear from you again. I'm glad that Connect is helpful to you. After going through surgeries myself I know how important it is to be able to share your concerns.

I certainly understand your desire to be at home where you are more comfortable. I would encourage you, however, to reach out for help after your surgery. After my major surgeries (which required a 7-day hospital stay) it was really important to have someone nearby who could help me. You will probably know more about the help you will need when you are discharged from the hospital.

Will you post again after your appointment on the 24th?

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Hi Teresa. My surgery is scheduled for this Friday. It will be an open repair. Thank you for your encouragement and comforting thoughts. I sincerely appreciate it.

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@auntbrenda44

Hi Teresa. My surgery is scheduled for this Friday. It will be an open repair. Thank you for your encouragement and comforting thoughts. I sincerely appreciate it.

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@auntbrenda44,

I'm so glad that you felt comfortable enough to make a decision.
Thank you for letting me know. I'll be thinking of you on Friday and I'd be happy to pray for you if that is OK with you.

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@hopeful33250

@auntbrenda44,

I'm so glad that you felt comfortable enough to make a decision.
Thank you for letting me know. I'll be thinking of you on Friday and I'd be happy to pray for you if that is OK with you.

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Dear Teresa, thank you very much for your kindness. I welcome and am grateful for prayers. Blessings to you.

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