Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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@dougf

I went to minnesota one and spent a week. They checked me over good. No other aneurism. Piece of mind was worth it for me.

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May I ask what size was your aneurysm when you went and did you have any symptoms? Did they attribute any of your symptoms to the aneurysm?
Are you saying that you had a week of tests? Only tests I've had for this is CT scan and ultrasound. What other tests did they do?

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@dollylinda

May I ask what size was your aneurysm when you went and did you have any symptoms? Did they attribute any of your symptoms to the aneurysm?
Are you saying that you had a week of tests? Only tests I've had for this is CT scan and ultrasound. What other tests did they do?

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Mine was smaller. Like 2.5 cm. No other symptoms after initial diagnosis. They did mri to check for other aneurisms in whole body. Another ct. Ultrasound. Chest xray. Blood flow analysis. Those are all they ones i can remember.

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I appreciate everyone who has posted on celiac artery aneurysm's. I am learning so much. I am at risk for developing an aneurysm in this area, I feel like I am able to be better educated, so thank you!

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@marylisa

That is a very good question. Do they know any more than other doctors at major medical centers? I get the sense that no one knows a lot about this disorder. My husband has suggested going to Mayo for a second opinion but I don't know if it would be worth it. I'll look forward to hearing if anyone has been to Mayo for this.

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I was seen at Mayo in Phx. Great vascular team, the bay told me pretty much the same thing everyone here seems to be told under 2 cm is generally watch and see I only get CTS every two years. Was diagnosed about five and a half years ago and mine hasn't grown at all.

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Hi, I was 29 (30 now, all happened recent)when end up having a celiac aortic aneurysm that ruptured.
Began having abdominal pain first thing in morning, though tried working through it thinking go away. Three hours into shift got worst, end up leaving work and tried going emergency.
Was waiting two hrs, went through triage second time as still was getting worse, only get told not much they could do but put me up few places but wait time was probably still 2 more hrs.
Left emergancy cause was in enough pain and could not sit still and pacing moving around, was close to laying on the floor there. Went to a smaller town health center walk in clinic that was 15 mins away, there after seeing me they sent be back to the hospital by ambulance.
Back at the hospital, I honestly dont remember what test were and were not done, only was giving morphine and ice chip diet, discharge early next day.
Went home and pain moved to chest, couldn't lay still and tried hot bath in hope would help out some unfortunate didn't. Within few hours being home went back to emergency. Only few things recall from second visit was going for a chest xray and unable to even switch body from the pain and passing out, only to awake to bunch of doctors around me and being lifted to a stretcher. Got told was going be sent to another hospital as they didn't have a vascular surgeon.
The surgery told my close members in my family that my survival rate was 10%, more less prepare for the worst.
I undergone 3 surgeries, one for repairing the aneurysm, second was due to clamps shifting from first surgery resulting in mass blood loss. Carton of milk(1L) blood every 30 mins. Third surgery resulted in spleen removal due to loss of blood flow it died , and to repair artery in leg. Had four surgery to go back to fix the leg one later as they could not find a pulse in the foot about 10 days later.
Was in the icu unit for 3 weeks before being sent back to hospital in my area in regular unit for another 4 weeks.
Currently on anticoagulant, seeing doctors for different things every week so far.

The cause for this, unknown. Alone as they say quite young for this to happen. Not overweight, no high blood pressure, no drugs, no alcohol or smoking (other then vape if do want count that which only did for year and half) health wise I was pretty good.

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@reirei

Hi, I was 29 (30 now, all happened recent)when end up having a celiac aortic aneurysm that ruptured.
Began having abdominal pain first thing in morning, though tried working through it thinking go away. Three hours into shift got worst, end up leaving work and tried going emergency.
Was waiting two hrs, went through triage second time as still was getting worse, only get told not much they could do but put me up few places but wait time was probably still 2 more hrs.
Left emergancy cause was in enough pain and could not sit still and pacing moving around, was close to laying on the floor there. Went to a smaller town health center walk in clinic that was 15 mins away, there after seeing me they sent be back to the hospital by ambulance.
Back at the hospital, I honestly dont remember what test were and were not done, only was giving morphine and ice chip diet, discharge early next day.
Went home and pain moved to chest, couldn't lay still and tried hot bath in hope would help out some unfortunate didn't. Within few hours being home went back to emergency. Only few things recall from second visit was going for a chest xray and unable to even switch body from the pain and passing out, only to awake to bunch of doctors around me and being lifted to a stretcher. Got told was going be sent to another hospital as they didn't have a vascular surgeon.
The surgery told my close members in my family that my survival rate was 10%, more less prepare for the worst.
I undergone 3 surgeries, one for repairing the aneurysm, second was due to clamps shifting from first surgery resulting in mass blood loss. Carton of milk(1L) blood every 30 mins. Third surgery resulted in spleen removal due to loss of blood flow it died , and to repair artery in leg. Had four surgery to go back to fix the leg one later as they could not find a pulse in the foot about 10 days later.
Was in the icu unit for 3 weeks before being sent back to hospital in my area in regular unit for another 4 weeks.
Currently on anticoagulant, seeing doctors for different things every week so far.

The cause for this, unknown. Alone as they say quite young for this to happen. Not overweight, no high blood pressure, no drugs, no alcohol or smoking (other then vape if do want count that which only did for year and half) health wise I was pretty good.

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Hello @reirei Did you know you had a celiac aneurysm? And if you did what size? This to me is a good reason to repair before rupture. Why do they always want to wait? Hope you are doing well.

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Reirel, I am sorry for everything you have gone through. It is very scary. I hope you will ask your doctors for more information and perhaps seek a consult with Mayo, Cleveland Clinic or a major medical center. Is it a celiac aneurysm or something else? I have a celiac aneurysm and this condition is relatively rare so many doctors do not diagnose it or even know to look for it. Fortunately I live in a major city with excellent doctors and a university hospital. It was discovered last year after I had a splenic infarction which was caused by a clot from the celiac aneurysm (I also have stenosis at the same spot.) As a result my spleen mostly died from the lack of blood. They did not remove the spleen since that is no longer the usual protocol. My doctor is taking a wait and see approach since the aneurysm is relatively small. I see my internist twice a year and a vascular surgeon once a year. But that is what I have experienced and may be very different for you. I wish you the best and hope you will keep us posted. This group has been very helpful for me and we learn from each other.

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@marylisa

Reirel, I am sorry for everything you have gone through. It is very scary. I hope you will ask your doctors for more information and perhaps seek a consult with Mayo, Cleveland Clinic or a major medical center. Is it a celiac aneurysm or something else? I have a celiac aneurysm and this condition is relatively rare so many doctors do not diagnose it or even know to look for it. Fortunately I live in a major city with excellent doctors and a university hospital. It was discovered last year after I had a splenic infarction which was caused by a clot from the celiac aneurysm (I also have stenosis at the same spot.) As a result my spleen mostly died from the lack of blood. They did not remove the spleen since that is no longer the usual protocol. My doctor is taking a wait and see approach since the aneurysm is relatively small. I see my internist twice a year and a vascular surgeon once a year. But that is what I have experienced and may be very different for you. I wish you the best and hope you will keep us posted. This group has been very helpful for me and we learn from each other.

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Why would your doctor wait? You have already had issues from it. My celiac aneurysm is 1.25 mm. 1.5mm and they operate. I am wanting to do it now while I’m healthy. Don’t get the waiting.

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@marylisa

Reirel, I am sorry for everything you have gone through. It is very scary. I hope you will ask your doctors for more information and perhaps seek a consult with Mayo, Cleveland Clinic or a major medical center. Is it a celiac aneurysm or something else? I have a celiac aneurysm and this condition is relatively rare so many doctors do not diagnose it or even know to look for it. Fortunately I live in a major city with excellent doctors and a university hospital. It was discovered last year after I had a splenic infarction which was caused by a clot from the celiac aneurysm (I also have stenosis at the same spot.) As a result my spleen mostly died from the lack of blood. They did not remove the spleen since that is no longer the usual protocol. My doctor is taking a wait and see approach since the aneurysm is relatively small. I see my internist twice a year and a vascular surgeon once a year. But that is what I have experienced and may be very different for you. I wish you the best and hope you will keep us posted. This group has been very helpful for me and we learn from each other.

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The celiac artery is much smaller than the arotic. So the sizes do not correspond. 1.5 mm on the celiac is large compared to 1.5mm on the aortic. The aortic could have a 5 mm and still be small compared to the celiac.

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The aneurysm was unknown, further if test were done while having the abdominal pain during first visit they should of caught it considering within under 24 hrs it was diagnosed as ruptured.
Grateful to be alive as I'm sure alone any ruptured aneurysm if fatal.
Clearly assuming someone in the emergency didn't do proper testing and assumed morphine would do, took a guess on their own that being young it wasn't an aneurysm. Clearly any age can get one.
If this was discovered earlier then I'm sure surgery would have been less evasive along with less time in hospital along with less issues that came with the surgery. Scar prob may been less long(one have is from under my bust to 3 inches under belly button)
To me comes as surprise how something like this went under detective to point where it ruptured.

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