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1,156 total results
Discussions (85)
Anyone else taking Hydroxyurea plus Gabapentin for Polycythemia Vera?
Diagnosed with PV two years ago at age ... So strange to be diagnosed with PV the ... I’m convinced the shots caused my PV
Last active: Oct 19, 2025
Polycythemia Vera and low iron
Anybody else dealing with low iron with PV ... Would love to hear from other PV patients
Last active: Jun 8, 2025
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. ... Besremi as a first-line treatment for PV ... some people were able to discontinue PV
Last active: Sep 7, 2025
Been struggling with Polycythemia Vera for 2 years
medical opinions about whether or not PV ... issues with the “correct label” for PV
Last active: Jul 30, 2024
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
that there could be a link between PV ... insisted blood diagnosis was confirmed re PV ... I was taken off treatment for PV review ... in trying to clarify link between PV
Last active: Mar 19, 2024
Wow, a boomerang with a doctor.
advised me he didn't think I had pv ... but don't mention anything about pv ... already diagnosed you with secondary pv
Last active: Oct 9, 2023
Medicines for reducing fibrosis in polycythemia vera patients
I am a PV patient, currently age 50, ... understand why it would also work for PV ... medicine without any proof it working for PV ... Did it work for your case of PV in reducing
Last active: Dec 16, 2024
Jak2 Detected, Healthy otherwise, What's next?
with suspicion of Polycythemia Vera (PV ... have been steady for 10+ years and no PV
Last active: Sep 3, 2025
MPNs - I have so many questions.
, my father(73yo) was dx with MPN -PV ... BMB done and stated iron deficiency PV ... determining that he doesn't have PV
Last active: May 11, 2025