Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
1,156 total results
Comments (1,069)
@jackiecarey Hi Jackie, please tell me more about the difference between PV and PV-JAK2. I've not...
more about the difference between PV ... and PV-JAK2. ... diagnosed with in 2023 but now told I have PV ... They never say PV JAK2.
Posted: Nov 16, 2025
I have diagnosed as PV just a few days ago. When I was searching for the...
I have diagnosed as PV just a few days ... I was searching for the details of PV ... I am 37 and diagnosed as PV. ... a relationship with Vitamin-D and PV
Posted: Aug 19, 2022
@lynnebgraham Hi Lynne, I was diagnosed with ET 4 years ago and only had platelets that...
Dr. thought that I may really have PV ... other gene mutations may point to PV ... if needed dif. meds that required PV ... So maybe the PV in order to justify
Hi @mirakrye Well, that’s a heckuva way to ring in the new year with a change...
PV or polycythemia Vera is one condition ... In the case of PV, too many red blood ... Which may be related to the PV. ... discussions And also, members with PV ... search=PV Do you recall on your lab
Posted: Jan 11 10:03am
Your comments are much appreciated and my biopsy did confirm I still had PV but could...
my biopsy did confirm I still had PV ... a medical paper that suggested my PV ... was in the "spent phase" of PV ... returning to normal (for an active PV
Posted: Jun 11, 2023
Here are some related discussions: - PV Itching Not After Bathing https://connect.mayoclinic.org/discussion/pv-itching-not-after-bathing/ - PV: terrible itching...
Here are some related discussions: - PV ... /connect.mayoclinic.org/discussion/pv-itching-not-after-bathing ... / - PV: terrible itching after shower ... /connect.mayoclinic.org/discussion/pv-terrible-itching
Posted: Aug 17, 2025
@hipsu5, I am also a member of the myeloproliferative neoplasm (MPN) club. My condition is called...
condition is called Polycythemia vera (PV ... PV is an ugly sister of your ET and ... In May of 2018 I was diagnosed with PV ... Is that from PV or just being an old
Hi @dragonflylynda. For clarification, you actually have PV (polycythemia vera) caused by a defect in the...
For clarification, you actually have PV ... Since you’re new to the PV diagnosis ... US and the world take HU for their PV ... It is a first line treatment for PV ... How were you diagnosed with PV?
@chorusgirl500 a PV diagnosis without finding the JAK mutation is very unusual. I think something like...
@chorusgirl500 a PV diagnosis without ... I think something like 95% of PV patients ... recommended a biopsy if you had a PV ... Even with a PV diagnosis and JAK mutation
@ryjon So sorry, May I ask if you have any of the symptoms described here: Polycythemia...
described here: Polycythemia Vera (PV ... swaresearch.blogspot.com/2025/02/polycythemia-vera-pv-causes-symptoms.html
Posted: Dec 9, 2025
I have had PV with JAK2 for over 4 years. Started with phlebotomies and Hydrea, now...
I have had PV with JAK2 for over 4 years ... found sleep apnea may be related to PV ... If anyone has info on apnea and PV
Posted: Dec 9, 2022
Welcome to Connect, @patpambern. Having itchy skin seems to be pretty common with Polycythemia Vera. There...
through the same thing with their PV ... discussions that might be helpful: PV ... /connect.mayoclinic.org/discussion/pv-itching-not-after-bathing ... How long ago were you diagnosed with PV
Posted: Mar 20, 2024
I have PV was on hydrox 500mg 7 day a week and three of those days...
I have PV was on hydrox 500mg 7 day ... My PV numbers are down however my blood ... 's never seen hypotention with PV ... Has anyone with PV experienced Blood ... I understand PV is one of the orphan
@chorusgirl500 My Jak2 was positive and my doctor and I decided together that the bone biopsy...
underlying condition and can be treated.PV ... Primary is with JAK2 + PV secondary ... Did they say they believe it is PV? ... raise all your blood levels and mimic PV
@pamdg, you may be interested in these related discussions: - What's the latest Jakafi (ruxolitinib) for...
ruxolitinib) for polycythemia vera (PV ... effects from Jakafi (ruxolitinib) for PV ... has-anyone-had-adverse-affects-from-jakafi-for-pv
Posted: Nov 21, 2025