Wow, a boomerang with a doctor.
I think I've posted my journey to diagnose my elevated rbc and ht. They exrayed and ran tests, checked my heart did 1 philbotomy.
I was to see my hemotologist to go over tests and make a plan. My levels had come down just a few points from the philbotomy but still elevated.
She could not be there that day for some reason, they were calling those that had appts but another doctor saw us few who were already there.
He advised me he didn't think I had pv, that there wasn't anything found to cause it. That I just had thick blood. I said so what do I do about that, take aspirin or what…he said if you want to. Then he asked how did the philbotomy make you feel. I replied better for a time. He said well go donate blood but don't mention anything about pv.
While we were talking g he was reviewing my file and said I see she has already diagnosed you with secondary pv so just go back to your pcp we don't need to see you here anymore.
I've set up an appt with my pcp. I will tell her what he said when I see her in person but I will say to anyone, I would not donate blood when there is any chance it could be tainted.
I'm feeling abandoned but the good news is they didn't even find anything to address with my heart and arteries. Not bad for 65 but I'm trying to push to stay active. I lead a very physical active career but fighting this us wearing me out.
I felt really good for about a week after philbotomy then I noticed the draining if energy each day to about 3 weeks it was back to struggling again. I'm definitely going to ask my pcp for it regularly.
I'm interested if anyone else has been told they didn't have it because they couldn't find the primary cause.