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225 total results
Comments (208)
Because WM is a rare blood cancer, some oncologists have no experience with WM. I would...
https://connect.mayoclinic.org/comment/691824/
Because WM is a rare blood cancer, some ... oncologists have no experience with WM ... strongly recommend consulting with a WM ... The IWMF website has a list of WM specialists
Being a WM patient and knowing other WM and Amyloidosis patients, I concur with Colleen that...
https://connect.mayoclinic.org/comment/687248/
Being a WM patient and knowing other ... WM and Amyloidosis patients, I concur ... specialist who specializes in both WM ... , Mayo Clinic, specializes in both WM
@pices - I too have WM with wild type MYD88. Did you find treatment options to...
https://connect.mayoclinic.org/comment/803564/
@pices - I too have WM with wild type ... find treatment options to manage your WM ... Did you find a WM physician for our
Hello @janemichele. Here is some additional information: From a Mayo Clinic Hematologist, "A provider could apply...
https://connect.mayoclinic.org/comment/284537/
Ann Arbor Staging for lymphoma) to WM ... However, in particular for WM, the Ann ... staging system is not helpful as all WM ... , which is designed for WM and actually ... Here is a link to the original IPSS-WM
Julie, I’m surprised there is no strong thread here about WM. The WM foundation does have...
https://connect.mayoclinic.org/comment/615465/
there is no strong thread here about WM ... The WM foundation does have lots of
Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...
https://connect.mayoclinic.org/comment/624405/
I was diagnosed with WM in 2014. ... Since WM is so rare, most hematologist ... possibly understand everything about WM ... With WM, there are two mutations, found ... specialists in determining the best WM
Hi Mr. Perezy, There is a very active support group for people with WM on Facebook....
https://connect.mayoclinic.org/comment/788884/
active support group for people with WM ... WM is a very rare disease - it represents ... doctors may not be up-to-date with WM ... directory take a special interest in WM ... and are involved the latest WM clinical
I am sorry to read of your PN symptoms. Being an I.W.M.F, MN/WI support group co-leader,...
https://connect.mayoclinic.org/comment/923959/
have not already consulted one of the WM ... There are fewer than 1500 WM patients ... oncologists/hematologists have few WM ... The worldwide WM specialists not only ... have multiple patients but have other WM
Welcome to Connect, @jessabell I see you’re newly diagnosed with WM. We have quite a few...
https://connect.mayoclinic.org/comment/994283/
I see you’re newly diagnosed with WM ... quite a few members who also have WM ... There is a good discussion in the WM ... if you haven’t already seen it:
~WM ... of information and guidelines for WM
Welcome, @cpu. I moved your question about Waldenstrom macroglobulinemia (WM) to this existing discussion: - Waldenstrom...
https://connect.mayoclinic.org/comment/1070292/
about Waldenstrom macroglobulinemia (WM ... - Waldenstrom macroglobulinemia (WM ... /connect.mayoclinic.org/discussion/wm-treatment-options ... posts and connect easily with other WM
Welcome @breathernow. Having a fatigue as your travel companion is a real drag…though there are plenty...
https://connect.mayoclinic.org/comment/1311658/
with Waldenstrom macroglobulinemia (WM ... search=WM
Are you currently in treatment ... for your WM?
I’m not sure you need all these tests. The MDY88 is over 90 % positive for...
https://connect.mayoclinic.org/comment/1317936/
The MDY88 is over 90 % positive for WM ... Fat Pad test which further confirms WM
I have to wonder if my WM was also caused by covid shots. The VA hospital...
https://connect.mayoclinic.org/comment/1169987/
I have to wonder if my WM was also caused ... Feb 2023 that determined that I had WM ... doctors still do not want to treat my WM ... telling me that I have smoldering WM ... think that my progression from MGUS to WM
I was diagnosed in 2022 with WM, and lately I have been having tired spells and...
https://connect.mayoclinic.org/comment/981123/
I was diagnosed in 2022 with WM, and ... know if these are some symptoms of WM
@colleenyoung Thanks for sharing the link . Hubby has WM , on Ibrutinib since 3 years...
https://connect.mayoclinic.org/comment/909848/
Hubby has WM , on Ibrutinib since 3 ... was keen to know that anyone having WM
What does your oncologist suggest as far as getting the genetic testing done to confirm WM?...
https://connect.mayoclinic.org/comment/990739/
the genetic testing done to confirm WM ... There is a good discussion in the WM ... WM, What to expect during watch and ... You’ll be able to connect with other WM ... of information and guidelines for WM
WM is better than MM but be wary of treatments.
https://connect.mayoclinic.org/comment/860832/
WM is better than MM but be wary of
Just diagnosed with WM. Anyone on oral chemotherapy?
https://connect.mayoclinic.org/comment/746371/
Just diagnosed with WM.
Hi @brewmaster, welcome to Connect. I moved your message to this existing discussion about Waldenstrom macroglobulinemia...
https://connect.mayoclinic.org/comment/256249/
about Waldenstrom macroglobulinemia (WM ... pysullivan, whose husband also has WM
Recently diagnosed with WM. Also have CLL.
https://connect.mayoclinic.org/comment/845215/
Recently diagnosed with WM.
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