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174 total results

Comments (162)

Good morning, I’m a 54 year old female and had a double knee replacement a year...

https://connect.mayoclinic.org/comment/100479/

Icing was invaluable as well as a CMT

Discussion: Having knee replacement: how to prepare and questions about PT

Support Group: Joint Replacements

Posted: Jan 13, 2019

HNPP - I have HNPP as well. I'm 64 and it first started with numbness at...

https://connect.mayoclinic.org/comment/834743/

neuro issues and they thought he had CMT

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Mar 30, 2023

@ronoejello1, @SusanEllen66 - I would be interested to hear how your appointment went with Dr. David...

https://connect.mayoclinic.org/comment/921906/

trialbulletin.com/lib/entry/ct-02260388 • CMT ... /PMC4392824/ • PXT-3003 Study for CMT1A

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 31, 2023

Hello @johnhans, welcome to Mayo Connect and thank you for your question. I also have small...

https://connect.mayoclinic.org/comment/91644/

trialbulletin.com/lib/entry/ct-02260388 - CMT ... PMC4392824/ - PXT-3003 Study for CMT1A

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 15, 2016

In 2008, I started with episodes of feeling like passing out. Then symptoms went away. Month...

https://connect.mayoclinic.org/comment/238727/

but said I have a dual diagnosis of CMT

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 24, 2020

@j77 How very frustrating and scary for you. MG was the first thing that came to...

https://connect.mayoclinic.org/comment/1034943/

neuropathy I have that falls under the CMT

Discussion: ALS starting in the trunk of the body

Support Group: Neuropathy

Posted: Mar 17, 2024

I too suffered for years not knowing what was wrong. Similar symptoms and every neurologist said...

https://connect.mayoclinic.org/comment/1061471/

Neuropathies) and the genetic counselor for CMT

Discussion: MS? Fibro? - Still no diagnosis. Anyone else in similar situation?

Support Group: Brain & Nervous System

Posted: May 3, 2024

I am making some headway in determining the cause of my CMT2. My local neurologist ordered...

https://connect.mayoclinic.org/comment/867728/

headway in determining the cause of my CMT2

Discussion: Any recommendations for a neurologist at Mayo in Rochester MN

Support Group: Neuropathy

Posted: May 27, 2023

Thanks for providing this information. It is a little difficult to wade through for someone without...

https://connect.mayoclinic.org/comment/673595/

I am assuming I have CMT2I.

Discussion: CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD

Support Group: Neuropathy

Posted: Jan 21, 2022

I have Chronic and Severe Sensorimotor Axonal Polyneuropathy plus CMT2 and CMT4B. These are incurable and...

https://connect.mayoclinic.org/comment/1121579/

Sensorimotor Axonal Polyneuropathy plus CMT2 ... and CMT4B.

Discussion: Slowing the progression of PN

Support Group: Neuropathy

Posted: Aug 11, 2024

I have MDS/MPN-RS-T which is an extremely rare overlap disease. I have multiple gene mutations on...

https://connect.mayoclinic.org/comment/855780/

Sensorimotor Axonal Polyneuropathy, CMT2 ... and CMT4B which are PN diseases.

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Hello Mr. Preusler. I'm srhappy on Just want to talk, Mayo Clinic, a happy senior. I...

https://connect.mayoclinic.org/comment/739815/

hereditary, progressive condition (CMT2

Event: Caring for the Caregiver Support Group (Florida)

Posted: Aug 21, 2022

In most cases, you get what you pay for. My first hearing aids (on a trial...

https://connect.mayoclinic.org/comment/675085/

I do have a peripheral neuropathy (CMT2U

Discussion: I'm completely new to the world of hearing aids. Advice please.

Support Group: Hearing Loss

Posted: Jan 26, 2022

Sorry my response took a long time. Not only am I suffering from Chronic Sensorimotor Axsonal...

https://connect.mayoclinic.org/comment/1241264/

from Chronic Sensorimotor Axsonal PN, CMT2 ... , and CMT4B but I've had MDS/MPN

Discussion: Chronic Sensorimotor Axonal Polyneuropathy and CMTuagnised with Chroni

Support Group: Neuropathy

Posted: Feb 20 8:17am

PN runs in my family and I was told it was HSN it HSPN or the...

https://connect.mayoclinic.org/comment/311072/

I have CMT4 based on a positive SBF2

Discussion: Neuropathy in feet and limited toe movement?

Support Group: Neuropathy

Posted: Aug 14, 2020

@cmt25, your case certainly is confusing. Where do you go for answers if not from the...

https://connect.mayoclinic.org/comment/657792/

@cmt25, your case certainly is confusing

Discussion: I have c diff

Support Group: Infectious Diseases

Posted: Nov 27, 2021

I went to the Mayo in 2013 and had a week of testing. They had no...

https://connect.mayoclinic.org/comment/864525/

likely are causing the neuropathy (CMT2

Discussion: Anyone go to a Mayo Clinic for neuropathy?

Support Group: Neuropathy

Posted: May 22, 2023

Do you know which type of CMT2 you have?

https://connect.mayoclinic.org/comment/671568/

Do you know which type of CMT2 you have

Discussion: CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD

Support Group: Neuropathy

Posted: Jan 17, 2022

Yes, I was diagnosed with CMT2 recently. I don't know anything about types.

https://connect.mayoclinic.org/comment/673496/

Yes, I was diagnosed with CMT2 recently

Discussion: CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD

Support Group: Neuropathy

Posted: Jan 21, 2022

Welcome @judy1812, Did you mean no, you don't know which type CMT2 you have? Have you...

https://connect.mayoclinic.org/comment/673133/

no, you don't know which type CMT2

Discussion: CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD

Support Group: Neuropathy

Posted: Jan 20, 2022