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Comments (2,428)

I’ve not been diagnosed with sojourns, I’ve seen a rheumatologist twice and she has told me...

https://connect.mayoclinic.org/comment/732686/

told me that I don’t have MCTD or lupus

Discussion: Still Undiagnosed

Support Group: Just Want to Talk

Posted: Jul 31, 2022

I take 1200mg Alpha Lipoic Acid daily (NOW brand). It seems to help with my neuropathy...

https://connect.mayoclinic.org/comment/676699/

I have been diagnosed with Lupus/Sjogrens

Discussion: SFSN: Symptom Relief

Support Group: Neuropathy

Posted: Jan 31, 2022

It is my wife who has Graves’ disease. She quit smoking but took up vaping. She...

https://connect.mayoclinic.org/comment/676421/

It’s possible she has lupus, but she

Discussion: Thyroid Graves Disease: Anyone else?

Support Group: Autoimmune Diseases

Posted: Jan 30, 2022

Hi and thx for posting all your symptoms. I could be your twin I have them...

https://connect.mayoclinic.org/comment/605589/

work was high in the ANA to rule out lupus

Discussion: Has anyone experienced internal vibrations?

Support Group: Brain & Nervous System

Posted: May 29, 2021

@Mamacita In 1988, I was diagnosed with Systemic Lupus. It was a months-long process involving a...

https://connect.mayoclinic.org/comment/289218/

1988, I was diagnosed with Systemic Lupus

Discussion: How You Experience Autism

Support Group: Autism (ASD)

Posted: Feb 13, 2020

I want to jump out of bed, it’s 2:15 am PST and celebrate. I am 79....

https://connect.mayoclinic.org/comment/1204191/

I was diagnosed with Systemic Lupus

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jan 5 4:37am

7 years ago I had complicated bunion surgery. I also had severe foot pain where I...

https://connect.mayoclinic.org/comment/57311/

fibromyalgia, chronic fatigue syndrome, ms, lupus

Discussion: Burning sensations on skin pressure points, i.e. elbows, hands, feet

Support Group: Skin Health

Posted: Oct 18, 2018

Yes, Based on my family all of my father's mother side had some kind of autoimmune...

https://connect.mayoclinic.org/comment/107343/

Parkinson's, RA, Lupus, ALS, Sjogrens

Discussion: Multiple family members with autoimmune diseases....is there a link?

Support Group: Autoimmune Diseases

Posted: Sep 28, 2016

I do a low dose but I have kidney disease, atrial fibrillation, lupus and react to...

https://connect.mayoclinic.org/comment/1224519/

kidney disease, atrial fibrillation, lupus

Discussion: What should i request of my doctor for a Reclast infusion

Support Group: Osteoporosis & Bone Health

Posted: Jan 29 9:21am

I got an allergic reaction to the Covid vaccine inj - now it's so challenging I...

https://connect.mayoclinic.org/comment/1222580/

challenging I have hashimoto's Lupus

Discussion: Current treatments and new guidelines for diagnosis of CIDP

Support Group: Autoimmune Diseases

Posted: Jan 26 7:48pm

@quazar I am on 140mg Aimovig. I began to improve 4 days after the medication was...

https://connect.mayoclinic.org/comment/67598/

Emgality does have a problem in that Lupus ... Emgality increases the toxicity of the Lupus

Discussion: New Daily Persistent Headache

Support Group: Headache & Migraine

Posted: Dec 31, 2018

@gdcm @tarmansbks Im sorry you're having such difficulty with meds. That is my issue too and...

https://connect.mayoclinic.org/comment/933436/

tomorrow and what do I note.....the lupus ... concerned but without knowledge of lupus

Discussion: Anyone stopping immuno suppressing drug had a flare up?

Support Group: Autoimmune Diseases

Posted: Sep 20, 2023

HI, I am new to this site. I found your post when I was searching for...

https://connect.mayoclinic.org/comment/137306/

them check you for Epstein Bar virus, lupus ... Crohn’s disease, Type 1 diabetes, and lupus

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: Mar 27, 2017

I don't know where to start. It has done many things for me. I got diagnosed...

https://connect.mayoclinic.org/comment/172966/

fell out and came back looking like lupus ... Test for Lupus and RA were negative.

Discussion: Any Adhesive Arachnoiditis members here?

Support Group: Spine Health

Posted: Jan 29, 2019

@johnbishop Hi John, I have been to my primary care Dr. for the flu. I have...

https://connect.mayoclinic.org/comment/175716/

is in regards to the drug induced lupus ... that called about the drug induced lupus

Discussion: Surgery caused autoimmune disease or Drug Induced Lupus

Support Group: Autoimmune Diseases

Posted: Dec 1, 2017

My problem is that I moved from Atlanta where I had been diagnosed and treated until...

https://connect.mayoclinic.org/comment/146234/

doctors that specialize in this type of Lupus ... be dealing with this rare form of Lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Jul 5, 2017

I have had lupus for over 25 years. It is mostly of the skin variety, and...

https://connect.mayoclinic.org/comment/1329542/

I have had lupus for over 25 years.

Discussion: ANA positive for Lupus

Support Group: Autoimmune Diseases

Posted: Jun 17 11:54pm

I wonder if any of the knowledgeable people here know whether avoiding activities that raise the...

https://connect.mayoclinic.org/comment/1162100/

and was eventually diagnosed with lupus

Discussion: diagnosis or treatment for my 15 year old with tachycardia.

Support Group: Heart Rhythm Conditions

Posted: Oct 24, 2024

How long have you had sweats and is it all day or just nights? Hope this...

https://connect.mayoclinic.org/comment/1152745/

I also have lupus and Sjögren’s.

Discussion: Nights sweats and Shingrix vaccine

Support Group: Autoimmune Diseases

Posted: Oct 6, 2024

Agree Vitamin D, thyroid issues or Sjogren's may cause it. Sjogren's requires either positive blood or...

https://connect.mayoclinic.org/comment/1023173/

It mimics Lupus and thyroid disease.

Discussion: Afraid will not be taken seriously

Support Group: Autoimmune Diseases

Posted: Feb 26, 2024