I’m writing this on behalf of my partner. She is a 25 year old who has been debilitatingly sick since she was thirteen. She was hospitalized with extreme abdominal pain which was initially misdiagnosed as appendicitis. Her entire teen years were spent in hospital without any diagnosis. Her condition was dire enough that school was out of the question. As an adult she has been unable to work due to many widespread symptoms, most notably near constant excruciating abdominal pain and nausea. Other symptoms include myoclonic seizures, low platelets, chronic anemia, hypothyroidism, muscle weakness, tremors in all limbs and jaw, and extreme pain in all limbs. This is not a full list of symptoms. Any advice or similar stories would be very welcome. In general, her experience of the medical system has been very hostile and accusatory. She has been treated as a chronic complainer, attention seeker, or otherwise been told that she has to accept this low quality of life. I do not accept that.
Liked by John, Volunteer Mentor