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158 total results

Comments (147)

Invitae.com does hereditary testing. My nieces's best buddy is a genetic counselor's and she uses them...

https://connect.mayoclinic.org/comment/829661/

CMT (Charcot Marie Tooth) is what my

Discussion: Does anyone recommend a portable, rechargable TENS unit for pain?

Support Group: Neuropathy

Posted: Mar 21, 2023

I'm trying an anti-inflammatory diet as well. No caffeine, lots of vegies, lean grass-fed meat, fish,...

https://connect.mayoclinic.org/comment/825077/

My neuropathy/CMT seems to be caused

Discussion: Eliminating Foods for Neuropathy pain

Support Group: Neuropathy

Posted: Mar 12, 2023

Because of illness and moving it has been a while since I have been on this...

https://connect.mayoclinic.org/comment/784900/

but also possible Lyme Disease or CMT

Discussion: Immunotherapy - Keytruda for colorectal cancer

Support Group: Colorectal Cancer

Posted: Dec 14, 2022

I grew up with CMT because my grandmother, mother, uncles, and older brothers suffered from this...

https://connect.mayoclinic.org/comment/1134193/

I grew up with CMT because my grandmother

Discussion: Chronic Sensorimotor Axonal Polyneuropathy and CMTuagnised with Chroni

Support Group: Neuropathy

Posted: Aug 31, 2024

@decrepit - Believe me, I wasn't happy with the doctor who said that to me...what's the...

https://connect.mayoclinic.org/comment/818891/

your post, and I too was checked for CMT

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Feb 28, 2023

When my PN started 6 years ago, heat and cold intolerance happened many times a day,...

https://connect.mayoclinic.org/comment/785728/

ever been or should be tested for CMT

Discussion: Anyone Heard of Pirenzepine for Small Fiber Neuropathy?

Support Group: Neuropathy

Posted: Dec 17, 2022

I had some success with Sanexas Treatments. I'm certain that my experience is different than most,...

https://connect.mayoclinic.org/comment/808994/

hereditary peripheral neuropathy like CMT ... 35 kinds of neuropathy, including CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 9, 2023

I am new to this site- I was officially dx with Igm-CIDP/MGUS July 2019 by Mayo...

https://connect.mayoclinic.org/comment/238724/

I was first dx with CMT/CIDP after starting

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 23, 2020

Thanks for your reply @elained . My neurologist diagnosed mine as moderate to severe, but provided...

https://connect.mayoclinic.org/comment/247984/

related to Charcot-Marie-Tooth disorder (CMT

Discussion: Just diagnosed....continue testing for causes

Support Group: Neuropathy

Posted: Feb 20, 2019

I have the same neuropathy issues as you. Numbness in my feet, especially my toes. Can't...

https://connect.mayoclinic.org/comment/311046/

The doctor suspects CMT or HSN but also

Discussion: Neuropathy in feet and limited toe movement?

Support Group: Neuropathy

Posted: Jul 25, 2020

Hi, I have been reading your comments above. I too have swelling of the hand(s). It...

https://connect.mayoclinic.org/comment/290959/

mentioned that she specialized in CMT

Discussion: Extreme Swelling in the Hand

Support Group: Bones, Joints & Muscles

Posted: Feb 3, 2020

If you stop Prolia, there is a quick drop in bone density and high risk of...

https://connect.mayoclinic.org/comment/713464/

@CMT I would ask for Tymlos or Evenity

Discussion: Prolia treatment for osteoporosis: What is your experience?

Support Group: Osteoporosis & Bone Health

Posted: Jun 2, 2022

There are so many kinds of neuropathy that I'm not sure there is a one size...

https://connect.mayoclinic.org/comment/839614/

They guessed CMT, but it was HNPP (Hereditary

Discussion: Idiopathic Small Fiber Neuropathy Research

Support Group: Neuropathy

Posted: Apr 7, 2023

Hi John, Thanks for your response. I did find the SMA Foundation website. I actually called...

https://connect.mayoclinic.org/comment/317876/

The CMT thing is tolerable because I

Discussion: Is it worth trying to resolve peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 24, 2020

I have an appointment at Weil Cornell in Manhattan with a Medical Geneticist on October 26th...

https://connect.mayoclinic.org/comment/324715/

I have had CMT4B for many years as well ... The CMT thing runs in my family big

Discussion: Small Fiber Neuropathy and genetic testing?

Support Group: Neuropathy

Posted: Oct 12, 2020

I truly feel for you because I went through the same thing when I was 13...

https://connect.mayoclinic.org/comment/1039877/

Palsy (also falls into the category of CMT1A ... Palsy or Charot Marie Tooth Disease (CMT

Discussion: Don't know what to do anymore

Support Group: Chronic Pain

Posted: Mar 25, 2024

My mothers family has a five generation history of CMT. I developed those PN symptoms when...

https://connect.mayoclinic.org/comment/886477/

family has a five generation history of CMT ... Sensorimotor Axonal Polyneuropathy, CMT2 ... , CMT4B, and I’m a SMA carrier (entire ... Daughter two has CMT2. ... Daughter three has both CMT2 and CMT4B

Discussion: Neuropathy in hands, feet, and face that came on quickly

Support Group: Neuropathy

Posted: Jun 28, 2023

Ed - Interesting. My Dad was questionable. He developed severe dementia in his early 60’s. One...

https://connect.mayoclinic.org/comment/1019471/

$150 for the testing that is not for CMT

Discussion: PN: From Anger to Acceptance

Support Group: Neuropathy

Posted: Feb 20, 2024

@jula73, Jula .. I am assuming that is your first name .. PLEASE correct me if...

https://connect.mayoclinic.org/comment/62366/

and a neuromuscular disease called CMT ... which can be one of the symptoms of CMT