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bunnysammy
@bunnysammy

Posts: 31
Joined: Jun 30, 2018

UCTD

Posted by @bunnysammy, Tue, Jul 31 10:23pm

Hey everyone! So if you've seen my last post you know I've been in the process of diagnosis. I'm still not 100% but my Rhuemy is think Undifferentiated Connective tissue disease which is not the same as Multiple connective tissue disease. I was wondering if there's anyone on here who has this? I don't see much awareness for this disease or much information. I see a lot of mixed info so I'd love to hear experiences, explanations, like anything and everything that anyone knows about this. Thanks guys.
So if I do have UCTD mine presents itself very similarly to lupus and RA with some Sjorgens similarities too. So one step closer to diagnosis:)

Liked by chefjody

REPLY

Hi @bunnysammy — I did a search of Connect for the term UCTD by going to the top of the window and clicking on the search icon (small magnifying glass) and typing UCTD. It came up with several discussions that you might want to look at — your post above is the first one listed:

https://connect.mayoclinic.org/search/?search=UCTD

John

@johnbishop Thank you.
It's crazy.. there's only 2 discussions actually on UCTD and no one seems to really know what it is. MCTD seems to be understood more… from my understanding if I'm diagnosed with UCTD it's because I have Lupus and RA symptoms with some blood test markers of both but the tests aren't conclusive enough… but treatment is the same as lupus. Strange to me. Ive found no foundation and almost no awareness on this disease at all..

@bunnysammy

@johnbishop Thank you.
It's crazy.. there's only 2 discussions actually on UCTD and no one seems to really know what it is. MCTD seems to be understood more… from my understanding if I'm diagnosed with UCTD it's because I have Lupus and RA symptoms with some blood test markers of both but the tests aren't conclusive enough… but treatment is the same as lupus. Strange to me. Ive found no foundation and almost no awareness on this disease at all..

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Hi @bunnysammy — I usually go to Google Scholar (https://scholar.google.com/) when I'm trying to find some in depth information or studies on a medical diagnosis or research papers. I'm no medical expert and have no training but I think the term undifferentiated connective tissue disease (UCTD) is similar to use of the term idiopathic for a diagnosis that's not specific. Here are a few articles I found using Google Scholar.

Quality of life in patients with connective tissue diseases: results from the Lupus Extended Autoimmune Phenotype (LEAP) study
https://academic.oup.com/rheumatology/article/57/suppl_3/key075.351/4971252

High burden of immunosuppressant use in undifferentiated connective tissue disease: results from the Lupus Extended Autoimmune Phenotype Study (LEAP) cohort
https://academic.oup.com/rheumatology/article/57/suppl_3/key075.346/4971247

PS8:154 Therapeutic and cardiovascular disease burden in undifferentiated connective tissue disease and systemic lupus erythematosus: results from the lupus extended autoimmune phenotype study (leap) cohort
https://lupus.bmj.com/content/5/Suppl_1/A112?utm_source=trendmd&utm_medium=cpc&utm_campaign=lsm&utm_content=consumer&utm_term=0-A

John

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