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1,156 total results

Comments (1,069)

Good morning, Keith. I have to confess that you and I are not on the same...

https://connect.mayoclinic.org/comment/912206/

symptoms that led to the discovery of her PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Hello @momoffivetoo. I’m 77 now and was diagnosed with PV in 1/2020. It was discovered by...

https://connect.mayoclinic.org/comment/1277135/

I’m 77 now and was diagnosed with PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

I would like to share this with you from the NIH Natural Library of Medicine.This is...

https://connect.mayoclinic.org/comment/950906/

rate (ESR), and plasma viscosity (PV

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

This may be of interest to all reading here: https://www.youtube.com/watch?v=8_-pv75uhIA&t=521s All the research I have read...

https://connect.mayoclinic.org/comment/1439265/

v=8_-pv75uhIA&t=521s All the

Discussion: Melatonin dosage for RBD

Support Group: Sleep Health

Posted: Nov 15, 2025

Below is a link to an Osteo Boston interview with Dr. Lewiecki. At about the 49:00...

https://connect.mayoclinic.org/comment/1435250/

v=pV5maUhAjOA He said near the end

Discussion: Reclast vs Fosamax??

Support Group: Osteoporosis & Bone Health

Posted: Nov 10, 2025

@sarahlynn1960 Thank you. I too have thrown my share of tantrums over the years! But honestly,...

https://connect.mayoclinic.org/comment/1430905/

list=PLKCyUEPtFhSg4EyRjWqYDQn0bpZRC3Pv9&

Discussion: resentment about restrictions and effort for managing BE

Support Group: MAC & Bronchiectasis

Posted: Nov 4, 2025

@kate2025 Kate have you seen this talk by Dr Jennifer Honda (at the NTM Conference) about...

https://connect.mayoclinic.org/comment/1433667/

list=PLKCyUEPtFhSg4EyRjWqYDQn0bpZRC3Pv9&

Discussion: Cleaning nebulizer/aerobika

Support Group: MAC & Bronchiectasis

Posted: Nov 8, 2025

@rozie83 I almost never post comments about other Bronchiectasis gathering places, because each has their following...

https://connect.mayoclinic.org/comment/1452015/

list=PLKCyUEPtFhSg4EyRjWqYDQn0bpZRC3Pv9&

Discussion: Should we stay away from down clothes?

Support Group: MAC & Bronchiectasis

Posted: Dec 3, 2025

@pv001 I had 3+4 gleason as well. I had a Decipher test (from the biopsy material)...

https://connect.mayoclinic.org/comment/1288166/

@pv001 I had 3+4 gleason as well.

Discussion: Gleason Grade 2

Support Group: Prostate Cancer

Posted: Apr 23, 2025

Hi Missy, welcome to Connect. Another member, @bobbie7, asked about stem cell therapy during a webinar...

https://connect.mayoclinic.org/comment/153934/

- Let's talk http://mayocl.in/2j73pv7

Discussion: Massive stroke/seizures-stem cell therapy

Posted: Jun 25, 2017

Newer thinking is to start with an anabolic medication like Tymlos, Forteo, or Evenity before a...

https://connect.mayoclinic.org/comment/1374838/

tTVBBrOylDRrY1Sn https://youtu.be/pV5maUhAjOA

Discussion: Would Fosomax be your first choice of drugs to treat osteoporosis?

Support Group: Osteoporosis & Bone Health

Posted: Aug 20, 2025

Hello, I, too am in this same boat. I can get up and do a little...but...

https://connect.mayoclinic.org/comment/870504/

I have multiple PV's in both lungs

Discussion: No strength and cough

Support Group: Lung Health

Posted: Jun 1, 2023

Hi, @katgirl You are asking a great question. I suggest watching this video by Michael Lavacot...

https://connect.mayoclinic.org/comment/1190599/

v=pV5maUhAjOA The order in which

Discussion: My Experience on Evenity for Treating Osteoporosis

Support Group: Osteoporosis & Bone Health

Posted: Dec 14, 2024

1. Dr Shawn Tassone WORKS IN THESE STATES https://www.instagram.com/p/CzpOGO3pv4f/ APPOINTMENT PROCESS with Shawn Tassone https://www.youtube.com/watch?v=TT1xvGfqgwQ 2....

https://connect.mayoclinic.org/comment/1186171/

https://www.instagram.com/p/CzpOGO3pv4f

Discussion: Hormone Replacement starting at 75yrs old

Support Group: Menopause

Posted: Dec 7, 2024

I was 2 years on hydroxyurea and then told to go on jakifi. Felt reL good...

https://connect.mayoclinic.org/comment/1124084/

and dizzy at times but I think it is Pv.Any ... Jakifi.They say the average death is 78 from pv.hope

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2024

I feel the pain and everyday when I get up see what pain is the winner.But...

https://connect.mayoclinic.org/comment/879473/

realize I still have lots to live for.PV

Discussion: Defeated today

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

I'd see another doctor, preferably an endocrinologist who is part of a hospital that specifically treats...

https://connect.mayoclinic.org/comment/1224335/

v=pV5maUhAjOA

Discussion: Advice about Osteoporosis treatment

Support Group: Osteoporosis & Bone Health

Posted: Jan 29, 2025

Hi @yoanne, I'm glad you found this post by Annie. I happen to know that at...

https://connect.mayoclinic.org/comment/377222/

- Let's Talk http://mayocl.in/2j73pv7

Newsfeed Post: Join The Discussion! Online support for those affected by PICS

Blog: Post Intensive Care Syndrome (PICS)

Posted: Jan 22, 2017

Susan (@sistergoldenhair), I'm very sorry for the loss of your sister. And am especially sorry that...

https://connect.mayoclinic.org/comment/132355/

- Let's talk http://mayocl.in/2j73pv7

Discussion: small cell lung cancer

Support Group: Lung Cancer

Posted: Jan 20, 2017

Hi Terry @terese7 Essential Thrombocythemia is a blood condition where your bone marrow is producing too...

https://connect.mayoclinic.org/comment/1091025/

%20the%20exact%20cause%20of,Like%20PV

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024